Read the Latest in ME News and Campaigns
Never miss a beat! Subscribe to our newsletter and select “Daily Digest” to get a summary of the day’s news & actions delivered to your inbox.
This is an exciting opportunity to set research priorities for ME, and could be the next big step towards improvinging research funding in the UK.
Last November, I announced that I was stepping down as Executive Director to focus on my health and well-being. Since then, our entire Board of Directors have led a wide search for the right person to lead #MEAction into the future.
#MEAction is excited to share more work from the Writing from our ME Lives writing group!
We are excited to announce that #MillionsMissing t-shirts are now available for purchase along with other items in our
#MEAction has written an open letter to NIH institute director, Dr. Walter Koroshetz, and CDC division director Dr. Inger
Please help #MEAction UK and #MEAction Scotland by taking part in this survey to find out the effect that
Solve M.E. Advocacy week will be from Sunday, April 18th, 2021 to Saturday, April 24th, 2021. As a core
In response to an article on Long Covid last week, the Guardian published a letter from three men –
PLEASE NOTE: The Unrest CME has now expired. If you have postcards remaining, please direct your providers to this
It has come to light that a letter from NHS England and NHS Improvement to all vaccination centres and
Do you want to win a free copy of Waiting for Superman? We have three copies to give away
If you live in Scotland, please join our campaign to ask your MSPs to pledge their support for people
The Scottish Government has said it must not wait to address the needs of the ME community, but its latest report indicates that this is precisely what it has done and continues to do.
#MEAction has written to the Chief Medical Officer and the Joint Committee on Vaccination and Immunisation to call for ME to be included on the vaccination priority list.
PwME appeals for help “They’re trying to commit me to a mental health ward with very severe ME… I
This online international ME/CFS Family Impact Study looks at the quality of life of patients and their family members.
The ME community has had a lot of questions about whether it is safe to get a COVID-19 vaccine.
#MEAction UK’s press team was instrumental in getting an excellent article published in the Daily Mail at the beginning of January. The article criticises the blanket advice of GPs to recommend exercise for long COVID patients without taking into consideration those with symptoms of ME, particularly post-exertional malaise.
Moving short film “This is ME” shares more in nine minutes than most people with ME can begin to share in words alone.
We want to make you aware of new funding allocated through the Covid-19 relief package that has potential to
On December 3-4, 2020, the National Institutes of Health (NIH) / National Institute of Allergy and Infectious Diseases (NIAID)
#MEAction UK volunteers have worked to produce a robust and comprehensive response to the draft ME/CFS guideline from NICE.
The Scottish Sunday Express published a Comment piece by Emma Shorter who shared her experience of getting a virus
#MEAction UK has just received a momentous email from the National Institute for Health and Care Excellence (NICE), advising us that they have updated the warning on the 2007 CFS/ME guideline, directing health professionals to the new draft recommendations on graded exercise therapy.
I am so thankful that I get to witness the extraordinary compassion of this community on a daily basis.
Last Sunday, the Observer published an article called, “Long Covid: Is This Now Me Forever?” that derides and stigmatizes
#MEAction is proud to join Solve ME/CFS Initiative (Solve M.E) and 18 other chronic disease stakeholders to sign a
Does the U.S. spend more money researching diseases that primarily affect men? The answer is emphatically yes, according to
Below, we chat with Superbloom founder, Erin Berman, about her own struggle with chronic illness, hopes for Superbloom, and her issue with “positive washing.”
Goodbye to graded exercise therapy but concerns about physical activity programmes – Community Discussion
There were significant concerns about the recommendation of a physical activity programme in the draft ME/CFS guideline, even with the caveats attached. The recommendation that a physical activity programme should be considered if patients would ‘like’ to start one, was felt to imply that there is a choice or a desire involved, rather than increased physical activity being impossible for many.
At our first community call on the draft ME/CFS guideline from NICE, training in all areas of the guideline was seen as key if it is to have an impact on the health and social care professionals implementing these recommendations.
Harmful graded exercise therapy for people with ME has been dropped in a new draft ME/CFS guideline from the National Institute for Health and Care Excellence (NICE).
We’re thrilled to announce the winners of our postcard design contest for our second annual Postcards to Doctors campaign! We
Last week the U.S. National Institutes of Health (NIH) announced it will hold its next ME/CFS Telebriefing on Thursday,
#MEAction UK is highlighting the links between “Long Covid” and ME in the press. In particular, we want people at risk to know about the danger of exercise if they have post-exertional malaise.