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The National Institute of Health and Care Excellence (NICE) is rewriting the UK ME guidelines. As part of this
Australia’s NHMRC has released the ME/CFS Advisory Committee’s draft report for public consultation. The public consultation process will remain open until Monday February 18, 2019.
Research scientist, Dr Mark Guthridge, PhD, from Melbourne Australia created this piechart to show that of these 13 diseases,
Stanford University hosts an annual academic conference, Medicine X, every September to bring together community stakeholders, innovators and leaders
Listen to the article: Researchers have published a paper that shows various measures of deformability in the
2018 has been a big year at #MEAction! Thank you to all of you who have put forth immense
Jenny Horner is another stalwart advocate in the myalgic encephalomyelitis (ME) community who inspires us to dig deeper and
#MEAction UK and #MEAction Scotland are recruiting new volunteers to join our social media teams. We are looking for
As the year comes to a close and we look over all that we have accomplished, we know that
Thanks to another strong turnout from the ME/CFS community, 14 Senators and 28 Congressional Representatives joined together to
The holidays are upon us! As you go about shopping for family and friends – or making gift suggestions
#MEAction activists for myalgic encephalomyelitis (ME) met with the director of the National Institutes of Health (NIH), Dr. Francis
MINUTES: Friends, Family and Allies for ME (FFAME) meeting: Saturday, December 1 Primary Discussion Topic: Advocating for ME while
Australian Greens MP, Adam Bandt, formally tabled a petition for Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS) in Parliament on Dec.
Written by Ronald W. Davis, PhD This paper documents that red blood cells are less deformable in ME/CFS patients
Last month, Mary Gelpi sent a petition with more than 50,000 signatures to the director of the U.S. National Institutes
This article was first published on ME Australia. An international collaboration of scientists, including Fane Mensah, Jo Cambridge and
This Giving Tuesday, I’ve got some good science to show why you should donate to #MEAction and other advocacy
Across the globe, we are pursuing creative projects across all mediums to tell the world about myalgic encephalomyelitis (ME).
We are thrilled to honor Terri Wilder as our fall Volunteer of the Month. Terri spearheaded the protest and
Suomalaiset ME/CFS-potilaat tarvitsevat apuasi. Allekirjoitathan vetoomuksen! [maxbutton id=”21″ url=”https://my.meaction.net/petitions/me-cfs-is-not-a-functional-disorder-we-call-for-appropriate-treatment” text=”Allekirjoita vetoomus!” ] Editorilta: Klikkaa tätä lukeaksesi englanninkielinen versio artikkelista.
The #MEAction community has dug in deep this fall to undertake the incredibly important work – and heavy lifting
On Thursday, 8th November, the Scottish Parliament Public Petitions Committee met to review evidence submitted in support of various
On Friday, November 2nd, #MEAction, the Solve ME/CFS Initiative, and eight other ME/CFS organizations sent a letter to our
There are a lot of moving pieces to keep track of as we push for our U.S. federal agencies
For the past 35 years the FDA has neglected to bring meaningful treatments to market for people with Myalgic
What’s been happening at NICE? The National Institute of Clinical Excellence (NICE) is re-writing its guidelines on ME/CFS. Health
Carol Monaghan MP presented her application for a debate on ME to the Backbench Business Committee on Tuesday October
Australia: An hour-long, nationally televised discussion panel on myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS) on Oct. 16 has
It appears that Cochrane will NOT temporarily remove a review from its database that claims exercise therapy is effective for
Mary Gelpi first published this post on her blog, 25 Pills a Day. Mary launched a petition asking the
Cochrane has temporarily removed a review from its database that claims exercise therapy is effective for chronic fatigue syndrome