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ME/CFS is an extremely complex disease that is poorly understood by medical science. To date, much of the research has been conducted on a small scale, targeting single aspects of the disease. Ambitious and groundbreaking, the Solve ME/CFS Initiative’s DEFEAT ME/CFS is a comprehensive plan aimed at mastering the complexity of ME/CFS to render meaningful results, bringing us closer to a cure.
Using a new technology that allows the sampling of living T-cells in real time, researchers at Stanford University have found
Action for M.E. is submitting feedback to the United Kingdom’s House of Lords Select Committee on Equality Act The
Excerpts from Llewellyn King’s article Virus Hunters Turn to Social Media — and Chili Peppers posted on Huffington Post,
Australian Parliament is asking for public submissions into chronic disease prevention and management in primary health care, let’s tell them about ME and ask for help!
Open Medicine Foundation (OMF) End ME/CFS Project This is a game-changing initiative to find a cure for ME/CFS, a
Palo Alto Online recently published a series of three articles highlighting the struggles faced by Mylagic Encephalomyelitis (Chronic Fatigue
I have started a petition as I feel the general public need to be more educated on chronic illnesses.
Meet Mike, the man behind Mike’s EU Marathon Challenge Mike has pledged to run 28 marathons for Myalgic Encephalomyelitis
Compare real sufferers of FM, CFS and MCS to models who ‘portray’ these illnesses for magazines and articles on the net is very easy (and sad)
BBC Interview about ME Awareness and Fundraising! We have been overwhelmed by the response to Tom’s Marathon for ME
Why $250,000,000 in research funding? The #MEAction flagship Funding Equality Petition is called “Tell Congress to Support Funding Equality
#MEawarenesshour: first symptom-themed hour, 24th June Next Wednesday (24th june) we’ve decided to try something a little different for
Tune in to the LIVE webcast on July 1st, 1:00PM EST and watch Dr Ian Lipkin and Dr Mady
Researchers at Columbia CII have taken on the #chilliMEchallenge – and they just made it a whole lot spicier!
We have our next update on END ME/CFS’s Big Data study of severely ill patients and the sum raised so far is an amazing $103,840, from 235 donations.
#MEAwarenesshour uses Twitter to reach beyond the ME/CFS patient community From the organizer, Amanda Carroll: The 10th of June
The Artist book consists of a set of loose A5 sheets, gathered in a custom-made wooden box, reflecting on life with chronic illness seen through art and nature.
Online art and health exhibition featuring extracts from “The State of ME” As part of London Creativity and Wellbeing
We humbly ask for the community’s help to fundraise for a field worker in Auckland, New Zealand. We hope to set a precedent for the international community, providing a platform for other countries to campaign for their own field workers
Excerpted from Science and Popular Science A new test called VirScan would allow a patient to be tested for
Every Wednesday #MEawarenesshour is a set time to tweet and share stories about the illness, personal experiences, research, funding
Contact your Congressional Delegation – Share Llewellyn King’s article and ask them to speak up for ME/CFS Please find
I have learned to cope with M.E., a serious and potentially disabling chronic disorder, through art and creativity. Excerpted
The NIH Pathways to Prevention workshop panel will hold a press telebriefing to discuss their findings and answer questions
28 Marathons for Myalgic Encephalomyelitis Awareness and Research I’ll be running a marathon in each of the 28 EU
The demonstration has kicked off yesterday June 1st, with a great start, at the Justice Department in Washington DC.
It’s rare that new research means rewriting textbooks. But new information discovered by University of Virginia School of Medicine researchers
ME/CFS Illness Management Survey Results “No Decisions about me without me” The ME Association just released the results of