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DePaul Fatigue Study: ME, CFS, MS, Lupus, and Cancer

DePaul University researchers invite persons with ME, CFS, MS, Lupus, and Cancer to participate in a voluntary research study to determine which symptoms may be commonly experienced by individuals in multiple fatiguing illness groups, and which symptoms may be unique to each illness. Participation includes completion of a confidential online questionnaire, which takes approximately 45 minutes to complete.

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Study overturns old ideas on mitochondria

“Scientists are reporting the first clear evidence that muscle cells distribute energy primarily by the rapid conduction of electrical charges through a vast, interconnected network of mitochondria — the cell’s “powerhouse” — in a way that resembles the wire grid that distributes power throughout a city.”

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Help Shape Research in the NHS

The UK’s National Institute for Health Research (NIHR) is asking for suggestions from patients, carers and members of the public for tests and treatments that need to be researched.

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Suffering the Silence Campaign for M.E.

Write “M.E.” on your left hand or forearm (if you do not want to use marker on your skin, you can improvise with a piece of paper as many have done). Cover your mouth with your hand and make sure to look into your camera lens. Upload to Twitter or Instagram with the hashtags: #sufferingthesilence #MEAction and #severeme. If you are on Facebook, you will need to post to The #MEAction Network page AND use the hashtags above.

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CDC – Public Health Promotion of Chronic Fatigue Syndrome

The CDC wants information from businesses about producing public radio/audio recordings to increase ME/CFS awareness
Deadline: Aug 05, 2015 4:00 pm Eastern
Objectives:
The goal of this work is to increase awareness of CFS through the use of public radio/audio recording. The specific objectives are to 1) produce radio/audio recording, 2) produce segments that are broadcast on NPR’s Morning Edition and on the NPR website; and 3) increase awareness of CFS and further facilitate the support of loved ones and society as a whole to improve the quality of life for patients with CFS.

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Fund the SMCI Defeat ME/CFS Research Plan

ME/CFS is an extremely complex disease that is poorly understood by medical science. To date, much of the research has been conducted on a small scale, targeting single aspects of the disease. Ambitious and groundbreaking, the Solve ME/CFS Initiative’s DEFEAT ME/CFS is a comprehensive plan aimed at mastering the complexity of ME/CFS to render meaningful results, bringing us closer to a cure.

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News from Wales

The situation for people with ME in Wales is extremely difficult. This is because there is no Specialist Care

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Life with M.E. – Short Film Fundraiser

Change For M.E. Change For Us is creating a short film about discrimination and neglect that those living with M.E. must face every day in the medical community. Our volunteers are raring to go, now we just need vital funding…

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#myMEstory

As part of the #chilliMEchallenge we are encouraging people to tell us their #myMEstory and create awareness by putting a voice and a face to this illness.

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