Just In Time for the School Year: A New Pediatric Pacing Guide

#MEAction is excited to share a new and much-needed resource just in time for back to school! We are so thankful to have our allies at Long Covid Families join us in developing the Pacing and Management Guide for Pediatric ME/CFS and Long COVID. 

Our Pacing and Management Guide has been a critical and well-received part of our #StopRestPace campaign and we have been planning on adapting it specifically for children and teens. The Long Covid Families team brought in exactly what we needed to help bring this modified guide into fruition. 

As many children are heading back to school, it’s imperative that educators and caregivers are equipped with the tools to help children who are struggling with post-exertional malaise (PEM) as part of ME and/or Long COVID. This guide is meant to equip children and caregivers of children with ME or Long COVID with the tools they need to help their child learn how to pace their activity. Pacing is the number one tool for post-exertional malaise, or PEM: one of the core symptoms of Long COVID and the defining symptom of myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS). PEM is a flare of symptoms and/or the appearance of new symptoms after exertion, often presenting 24 hours after the triggering event. Physical and cognitive activity or sensory overload can all trigger PEM.

Pacing is key for avoiding “crashes,” and can be combined with radical rest and recovery time to prevent a worsening of symptoms. We realize Stop/Rest/Pace is easier to say than to do. That is why our guide offers practical insight on how to recognize PEM, strategies for most effectively managing activity, and suggestions on how to accommodate children with ME/CFS and Long COVID in school. 

Looking for more insights into managing Back-To-School with Long Covid and/or ME? Check out the Long Covid Families Back-To-School Virtual Event next week, August 8-12, 2022! 

Thank you to Long Covid Families for their efforts and excellent allyship! Thank you to everyone who shares our #StopRestPace campaign and pacing guides to help get the word out to those who need to hear this critical message now! Help us get this pediatric guide into the hands of those who need it! 

Facebook
Twitter
WhatsApp
Email

Leave a Comment

Your email address will not be published.

Latest News

A laptop on a desk displaying the PDF of the NICE guideline for diagnosis and management of ME. There is a cup to the left and a pair of glasses and some folder to the right. White text in a red box reads ‘Update on Scottish implementation of the NICE Guideline’ and the ME Action Scotland logo is in the top left.

An update on the Scottish implementation of the NICE guideline

As we announced in February, the Scottish Government has committed to implementing the new NICE guideline for diagnosis and management of ME. The first step in the process was a Scottish stakeholder review, carried out externally by consultant Blake Stevenson.  The report on the review was published in July and #MEAction Scotland supports its findings.

Read More »

Dept. of Labor hosts dialogue on Long COVID in the workplace

The U.S. Department of Labor (DOL) has opened a national online dialogue on “Understanding and Addressing the Workplace Challenges Related to Long COVID.” The online dialogue is a text-based forum that will remain open for posting ideas and voting and commenting on those ideas until August 10th. In addition to people with Long COVID, #MEAction

Read More »

Help keep our work going

We rely on donations from people like you to keep fighting for equality for people with ME.

Donate

Get actions alerts and news direct to your inbox

You can choose what you want to be kept up to date on.

Subscribe
Scroll to Top