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Stuart Murdoch talking openly about his experiences of M.E., Los Angeles, August 2015 “This is a pop band that
The UK CFS/ME Research Collaborative People with M.E. need better treatment and support. This can only be achieved through
Bestselling Author John Connolly’s Latest Novel Features Girl with ME/CFS “I know some people with ME, and tried hard
It will take more than people with ME/CFS to achieve a world free of ME/CFS. It will take a committed team of many rallying together to effect change – Families, loved ones and friends coming together to make a difference and fund progress. Join Team Solve and help us Solve ME/CFS!
AIDS Research took a death sentence and made it a manageable disease. ME-CFS needs the same level of effort
A month ago, patient advocate Jennifer Spotila discovered that the U.S. Senate was proposing to zero-out the ME/CFS budget at the
The Open Medicine Foundation’s (OMF) Severely Ill Patient Big Data study is now fully funded with $1 million in private research funding thanks to a groundswell of crowdfunding efforts and several generous donations by anonymous donors!
Very little research has been done in the bedbound patients “Hopefully, the more severely ill will have a stronger signal of what’s going wrong.”
The VideoHealth study is currently in its final months of national recruitment for participants and is seeking to enroll eligible patients and their partners. For more information please call 305-355-9200 and press option 5, or email us at [email protected]
A larger, stronger, even more robust microbial diversity and immunity study is starting at Columbia Center for Infection &
I want Sweden to contribute to international research for ME / CFS – it will also help you! Sweden has about 40 000 people suffering from ME / CFS. I hope that Sweden can contribute to the Open Medicine Foundation and Lipkin / Hornig study.
CDC – Collaboration to Develop ME/CFS Educational Materials Based on IOM Report The CDC is requesting quotes from business
Three Quarters of a Million Dollars for ME/CFS Research at Columbia University! [pullquote align=”full” cite=”” link=”” color=”#E7453A” class=”” size=””]”ME/CFS
DePaul University researchers invite persons with ME, CFS, MS, Lupus, and Cancer to participate in a voluntary research study to determine which symptoms may be commonly experienced by individuals in multiple fatiguing illness groups, and which symptoms may be unique to each illness. Participation includes completion of a confidential online questionnaire, which takes approximately 45 minutes to complete.
Australian survey on ‘Better Outcomes for People with Chronic and Complex Conditions Through Primary Health Care’
I am one of the 250,000 people in the UK suffering with CFS/ME. Please help us to get the help that we so desperately need.
“Scientists are reporting the first clear evidence that muscle cells distribute energy primarily by the rapid conduction of electrical charges through a vast, interconnected network of mitochondria — the cell’s “powerhouse” — in a way that resembles the wire grid that distributes power throughout a city.”
Ampligen price more than doubling in the US? As many patients who are receiving Ampligen in the US already know,
This is the UK government review on how to get newly researched treatments and tests to patients more quickly and has asked patients to engage with our views.
NHS Citizen Gather is a way for the public to play a more active role in NHS England’s decision making.
John Oliver, please talk about ME/CFS Funding! Please sign up/login to HBO’s “Last Week with John Oliver” page to
Jennie Spotila is an ME/CFS patient and advocate who has done extensive research on government funding for CFS. She
Write “M.E.” on your left hand or forearm (if you do not want to use marker on your skin, you can improvise with a piece of paper as many have done). Cover your mouth with your hand and make sure to look into your camera lens. Upload to Twitter or Instagram with the hashtags: #sufferingthesilence #MEAction and #severeme. If you are on Facebook, you will need to post to The #MEAction Network page AND use the hashtags above.
Help Find a Cure for Whitney Dafoe and others like him!
Hearing that funding has been reduced to nothing is heartbreaking. Please hear out these words from something who is suffering, and help him:
Leonard Jason and the DePaul Research team’s #ChilliMEchallenge supporting #MEAction Thank you to the entire team at DePaul’s Center
The CDC wants information from businesses about producing public radio/audio recordings to increase ME/CFS awareness
Deadline: Aug 05, 2015 4:00 pm Eastern
The goal of this work is to increase awareness of CFS through the use of public radio/audio recording. The specific objectives are to 1) produce radio/audio recording, 2) produce segments that are broadcast on NPR’s Morning Edition and on the NPR website; and 3) increase awareness of CFS and further facilitate the support of loved ones and society as a whole to improve the quality of life for patients with CFS.
This beautiful photography project, Suffering the Silence, aims to make more visible the millions of Americans suffering from invisible
A new Danish study shows that ME patients have among the greatest levels of disability when compared to other common
A constituent with ME in the Australian Capital Territory (ACT) sent the Chilli ME Challenge to one of her representatives and