Beth Mazur (Board Chair)
Person with ME and science nerd. Beth earned her Bachelor’s in Computer Science and Electrical Engineering from MIT. She is interested in how to best use technology to empower people with ME and achieve health equality. She worked as a developer and technical product manager for various for-profit and non-profit technology companies including HealClick, Grameen Foundation, and Jaspersoft.
Michelle Pinedo (Treasurer)
Michelle Pinedo is VP of Finance & Operations with Episcopal Relief & Development, a global relief organization that works with Anglican and ecumenical partners around the world to find solutions to hunger, poverty, disaster and disease in collaboration with local communities. In this capacity, she is responsible for ensuring that all of the support functions – Finance, IT, and Human Resources are performing at peak level.
Michelle has over 20 years of senior level experience in leading non-profit organizations to new degrees of efficiency and impact. Before joining Episcopal Relief & Development, Michelle worked as Director of Finance with Amref Health Africa, a Nairobi, Kenya based organization that provides health services and health worker training to over 30 African countries.
Prior to her work with Amref, Michelle held the most senior finance position with the Museum for African Art. As Controller, Michelle managed the operational and capital finances for the museum and traveled to over 15 African countries.
A graduate of the City University of New York, she holds a Bachelor of Science degree in Business.
Michelle has seen the devastation of this illness up close and considers herself a strong ally in our fight for recognition of ME.
Ryan Prior (Secretary)
Ryan is a multimedia journalist and social entrepreneur. He was the founder and editor-in-chief of the Georgia Political Review and went on to write for The Daily Beast and USA Today. Currently working at CNN, he was selected as a Stanford Medicine X ePatient Scholar and was recognized as ProHealth’s 2014 ME/CFS Advocate of the Year. He is president of the Blue Ribbon Foundation and serves on the Board of Directors for #ME Action Network. He is a graduate of the University of Georgia. @r_prior
Jen is a filmmaker, academic and community organizer. She earned her bachelor’s in political science from Princeton University, where she graduated magna cum laude, and was a Ph.D candidate at Harvard in political science and statistics before becoming ill with ME. She co-founded #MEAction, directed Unrest, the Sundance award-winning documentary about ME, and is a TED Fellow.
JD Davids is a writer and advocate with more than 25 years of experience in health activism, social movements, policy and journalism who is living with ME/CFS and a handful of other troublesome diagnoses. As a member of ACT UP Philadelphia and co-founder of Health GAP, Davids was a core organizer in the movement that slashed the cost of HIV treatment and opened up treatment access for millions worldwide, and later founded a national advocacy network devoted to HIV/AIDS and social, racial and economic justice. He’s been an expert advisor to the National Institutes of Health (NIH), the Centers for Disease Control and Prevention (CDC), the Conference on Retroviruses and Opportunistic Infections (CROI) and other acronyms. After a stretch as managing director and director of strategic communications for The Body, he now runs JD Strategies in Brooklyn NY, supercharging strategic communications and organizational development for health and research policy, gender advocacy, and hell-raising activist groups. He’s also writing The Cranky Queer Guide to Chronic Illness. @TheCrankyQueer.
Jill is an international business leader with twenty years combined experience in organization change, leadership development, and marketing. She is a founding member of ChangeFusion and supports a diverse range of clients to accelerate change, develop leaders, and build organizational effectiveness.
Jill holds master’s degree in Organization Development from American University/NTL and an undergraduate bachelor of business/marketing degree from James Madison University. Jill is the co-author of the article, “Leading in Complex Times” in the Practicing Social Change Journal and the book chapter, “Tapping the Power of Emergent Change” in The NTL Handbook of Organization Development and Change. She serves on the Board of Directors for #MEAction and NTL.
Robert M. Sklans
Rob Sklans is a senior Human Resources executive with an extensive track record of transforming and building HR functions globally. A trusted adviser and coach to executive teams and boards of global companies, he has also served as an HR leader for multiple internal start-ups.
Currently a Principal Consultant with Enspira LLC, Rob provides consulting services for start-up through mid-sized companies in the biotech, consumer products, pharmaceuticals and technology industries.
Before, as Chief HR Officer at Innophos, Rob created and launched a 4-year global HR strategy to help it grow into a $1.25Bn company by 2022. Previously, as CHRO at Elementis, he led the global HR function and served as a Supervisory Board Member for Elementis Specialties, Netherlands BV. Before joining Elementis, Rob served in a variety of leadership roles for Royal DSM North America, Evonik Industries and Johnson & Johnson.
He earned an MA in Organizational Psychology from Columbia University and a BA in Psychology from Connecticut College. Rob has two family members who have been impacted by the disease and he serves as a strong ally and advocate for proper recognition and medical care for patients globally.
Katie Bach is the Managing Director of the Good Jobs Institute (GJI), a non-profit that helps companies improve job quality while better enabling employees to provide a great customer experience. Prior to joining GJI, Katie was a Director of Global Strategy at Starbucks, where she led the company’s annual strategic planning process. Before Starbucks, Katie spent 5 years in management consulting, first with McKinsey & Company, and then with a start-up firm in Kenya. Katie has an undergraduate degree in Politics, Philosophy, and Economics from the University of Oxford. She was valedictorian of her Master’s program at the London School of Economics, and received her MBA from MIT Sloan School of Management. At MIT Sloan, she won a Siebel Scholarship, McKinsey Award, and Forte Fellowship, all for outstanding academic and leadership contributions.
Judy is Vice President and Deputy General Counsel – General Corporate at Freddie Mac, where she leads a team that handles commercial transactions, intellectual property, privacy, data security, real estate and other general corporate matters. Judy holds a B.A. in Economics from the University of Michigan and a J.D. degree from the Harvard Law School. She is a past President of Fairfax Court Appointed Special Advocates (Fairfax CASA), a nonprofit that serves the best interests of abused and neglected children in Fairfax County, Virginia. She also provides pro bono legal assistance and otherwise volunteers with various nonprofit organizations in her area.