WHO WE ARE
We are an international organization that works to develop and support a global network of individual advocates, local and affinity groups, city and state chapters, and country affiliates. We are people with ME, caregivers, family members and allies.
We’re building a global movement to fight for recognition, education, and research so that, one day, all people with ME will have support and access to compassionate and effective care.
We provide tools, train advocates, and embed them in networks so that all members can become effective participants, educators and leaders in the fight for long-term, strategic change. When people with ME and their allies are empowered to take action, the impact of our work multiplies.
Distributed & Networked Learning
We value local knowledge and initiative. By embedding on-the-ground organizers in interdependent, national and international networks, we can share tools, learnings and best practices. When we act locally and internationally, we become an unstoppable force.
We use the latest in community organizing and political advocacy technology to mobilize tens of thousands to action, even from their homes and bedrooms. Everyone, no matter their disability, can contribute to changing lives and building a better future.
Diversity & Inclusion
We aim to build a community of diverse gender, sexual orientation, racial, ethnic, religious, cultural, political, geographic and socioeconomic backgrounds. We actively involve key volunteers and the broader community in setting the direction of #MEAction. People with ME comprise the majority of our board, volunteers, and staff.
The obstacles we face are enormous. The status quo has persisted for decades. Because of this, we not only need to effectively advocate within the current system, we have to get creative, experiment, learn, and iterate to change the state of play. We endeavor to push the boundaries of what is possible.
That ME is universally known as a serious, organic disease that devastates the lives of millions around the world; that there is no effective care; and that there will be no effective care without massive investment in research and education.
Robust ecosystem of research & care
That there is equitable funding for research, a vigorous scientific field, and that the medical system is equipped to effectively diagnose and care for people with ME.