Our Vision

To create a world where all people with myalgic encephalomyelitis (ME) have support and access to compassionate and effective care.

Our Mission

To build a global movement of people with ME, their families, and allies that leverages the power of technology, community and creativity. Together, we fight for research funding, medical education, and public awareness.

Who We Are

We are an international network of patients fighting for health equality for Myalgic Encephalomyelitis (ME) and Chronic Fatigue Syndrome (CFS). We build community and mobilize patients, family, and allies to make ME visible and fight for health equality. We were founded with the belief that while we may find it difficult to advocate for ourselves in the physical world, by making our activism accessible, we can be an unstoppable force.

#MEAction’s staff runs our headquarters, based in Los Angeles. They help to set strategies, provide project management to our volunteer projects, provide tools and training, and supports our activists, organizers, US state leaders and national affiliates.

#MEAction USA is a collaboration between #MEAction International’s staff and volunteer teams, organized into three committees: Congress, NIH and CDC. In addition, volunteers work as part of nine #MEAction USA State Chapters (Arizona, California, Colorado, Florida, Georgia, New York, Pennsylvania, Tennessee, and Texas) and 50 #MEAction USA State Facebook Groups.

#MEAction UK is a collaboration between #MEAction International’s staff and volunteer team.

#MEAction Scotland is a collaboration between #MEAction International’s staff and Scottish volunteer team.


What We Do

We focus on five main areas:

REACH: increase recognition of ME as a debilitating disease suffered by millions by engaging press and developing compelling multimedia education tools.

CONNECTGrow a thriving community of support, friendship, fun, creativity, and purpose for ME patients and families.

ADVOCATEMobilize patients and allies to advocate for more public investment in research and medical education. Our emphasis is on community organizing and local, strategic action in order to build, our time, our capacity for national impact.

EDUCATEEngage doctors, nurses and other health professionals to encourage empathetic, knowledgeable care for all.

INSPIRE: Motivate a new generation of researchers to join this field through our outreach and fellowship programs.