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On April 13, NIH announced two new funding opportunities for ME/CFS research: PAR-20-165, Research on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
At the Sundance Film Festival in January, I had the privilege of watching Crip Camp, a documentary film that premieres
March 11 Update: After thoughtful deliberation, we have made the difficult but necessary decision to postpone our Medical Education
ME/CFS Protesters Interrupt House Appropriations Hearing FOR IMMEDIATE RELEASE:Contact: Adriane Tillman [email protected] Today, #MEAction protesters wearing red #millionsmissing t-shirts interrupted NIH Director
Sign-up to Attend a Webinar for COVID-19 (Coronavirus) Preparation for people with Chronic Illnesses in the U.S.
The Cranky Queer Guide to Chronic Illness and #MEAction are co-sponsoring a webinar on COVID-19 (Coronavirus) prep, this Saturday March
We are so excited that the Postcards to Doctors Initiative sent more than 6,000 postcards to physicians across the
Dr. Lucinda Bateman has treated over a thousand patients with chronic fatigue conditions since starting the Fatigue Consultation Clinic
Hi everyone! Time for an update: We have super important news! The Committee on Petitions is preparing a resolution
#MEAction sat down for an interview to catch up with songwriter and ME activist Kaeley Pruitt-Hamm, who in 2017
As we enter into 2020, we want to take a moment to recognize all the hard work our State
The fight continues in Denmark for proper recognition and care for people with myalgic encephalomyelitis (ME). Last March in
It was a big holiday season for Dr. Walter Koroshetz who oversees ME/CFS research at the National Institutes of
It is with heavy hearts that we share the passing of ME community advocate, Cindy Siegel Shepler. Cindy lived
A year and a half ago in March of 2018, many of the leading U.S. ME/CFS clinicians came together
This holiday season, the #MEAction community plans to flood the mailbox of the U.S. National Institutes of Health (NIH)
The holidays are a stressful time. Between gift-giving (and buying), travel, cooking, decorating, and guests in the home –
Mark and Marcie Zinn are once again conducting assessments and producing elaborate reports to help patients!
Host a Postcards to Doctors party this holiday season! And announcing: #MEAction’s first Pinterest boards! Together, the #MEAction community
Last month, we presented information about the diagnostic criteria, exploring their similarities and differences. Click here to read that article.
NINDS Institute director, Dr. Walter Koroshetz, has made it clear that neither he nor the National Institutes of Health
NINDS director, Dr. Walter Koroshetz, sent the following response to #MEAction’s Oct. 21st letter calling on the NIH to take immediate
Bateman Horne center is re-opening applications for the #MEAction Blue Ribbon Clerkship. Please read below, the application has changed.
Additions and corrections Initially we stated that ICC requires three months before diagnosis; this was in error. ICC
Our dear community, Let us take a moment to gather together and comfort one another. We are saddened to
#MEAction is fighting to end the crisis of myalgic encephalomyelitis (ME) and create an equitable world for people with
Not. Enough. Those are the two words the National Institutes of Health (NIH) needs to hear from all of us about
The National Institute for Health and Care Excellence (NICE) are re-writing their guidelines on ME. As part of this