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Darren Randon, a poet, qualified teacher, community builder, facilitator, host and co-founder of Well Versed Ink from Thornton Heath,
#MEAction CA’s advocacy work resulted in getting an article & interview published in Medical Board of CA’s newsletter!
#MEAction is excited to announce our Severe ME Artists Project which will feature work from those within the severe ME community in honor of Severe ME Day on August 8th! This project will be an opportunity for those with severe ME to showcase their artwork (whether it be writing, photography, drawing, singing, or any other medium that illustrates their talents) with multiple ways to participate based on a person’s energy levels.
Activism comes in many forms, and #MEAction recognizes the significant role that art can play, not only as healing
The U.S. Centers for Disease Control and Prevention (CDC) has published interim guidance for evaluating and caring for patients
Earlier in 2021, concerns were raised by people with ME about the REGAIN clinical trial and whether there was
On May 16th the U.S. Centers for Disease Control and Prevention (CDC) published a notice of request for public
The Director of Scientific & Medical Outreach at #MEAction, Jaime Seltzer, has partnered with Physician Scientist and Associate Professor
We are thrilled to see the press tell our story of the #MillionsMissing this year, and the #MillionsMore “long
#YouAreNotAlone now or ever. We are with you.
Scottish Action Alert! Use your voice to make a difference and respond to this goverment consultation.
#MEAction sent out a press release last week to alert media to the #MillionsMore developing ME following COVID-19. We
In light of this new evidence of exacerbation of ME from Covid-19, #MEAction UK have again written to Matt Hancock and Professor Stephen Powis to make them aware of the risk to people with ME in not being able to access the Covid-19 vaccine as a priority.
Read the first findings from the survey #MEAction UK and #MEAction Scotland are conducting with Action for ME to
Outreach to BIPOC communities has always been a challenge in ME/CFS. In a disease where diagnosis is so hard
We are thrilled to see that the ME/CFS Clinician Coalition has released recommendations for medical providers on specific tests and treatments to use for caring for people with ME/CFS.
This is an exciting opportunity to set research priorities for ME, and could be the next big step towards improvinging research funding in the UK.
Last November, I announced that I was stepping down as Executive Director to focus on my health and well-being. Since then, our entire Board of Directors have led a wide search for the right person to lead #MEAction into the future.
#MEAction is excited to share more work from the Writing from our ME Lives writing group!
We are excited to announce that #MillionsMissing t-shirts are now available for purchase along with other items in our
#MEAction has written an open letter to NIH institute director, Dr. Walter Koroshetz, and CDC division director Dr. Inger
Please help #MEAction UK and #MEAction Scotland by taking part in this survey to find out the effect that
Solve M.E. Advocacy week will be from Sunday, April 18th, 2021 to Saturday, April 24th, 2021. As a core
In response to an article on Long Covid last week, the Guardian published a letter from three men –
PLEASE NOTE: The Unrest CME has now expired. If you have postcards remaining, please direct your providers to this
It has come to light that a letter from NHS England and NHS Improvement to all vaccination centres and
Do you want to win a free copy of Waiting for Superman? We have three copies to give away
If you live in Scotland, please join our campaign to ask your MSPs to pledge their support for people
The Scottish Government has said it must not wait to address the needs of the ME community, but its latest report indicates that this is precisely what it has done and continues to do.
#MEAction has written to the Chief Medical Officer and the Joint Committee on Vaccination and Immunisation to call for ME to be included on the vaccination priority list.
PwME appeals for help “They’re trying to commit me to a mental health ward with very severe ME… I
This online international ME/CFS Family Impact Study looks at the quality of life of patients and their family members.
The ME community has had a lot of questions about whether it is safe to get a COVID-19 vaccine.
#MEAction UK’s press team was instrumental in getting an excellent article published in the Daily Mail at the beginning of January. The article criticises the blanket advice of GPs to recommend exercise for long COVID patients without taking into consideration those with symptoms of ME, particularly post-exertional malaise.
Moving short film “This is ME” shares more in nine minutes than most people with ME can begin to share in words alone.