ABOUT #MEACTION UK
Our movement fights for recognition, education, and research so that one day all people with ME (myalgic encephalomyelitis) will have access to rapid diagnosis, and compassionate, effective care. As people with ME, carers and allies ourselves, we campaign on the issues that are most pressing.
In Scotland, health is a devolved issue for the Scottish Parliament and covered by #MEAction Scotland.
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We are always looking for volunteers with ME and healthy allies to join our team. If you are interested in helping or getting involved click on the photo to contact us today.
Check out our guide to meeting your Member of Parliament (MP). Click the photo to find tips, suggestions, asks and sample language to meet your MP. It will give you the basic tools to help you to feel comfortable meeting with your MP.
What Primary Care practitioners need to know about the new NICE guideline for myalgic encephalomyelitis/chronic fatigue syndrome in adults
Caroline Kingdon’s new paper on the NICE guideline for ME was co-written with #MEAction UK volunteer Adam Lowe, as well as Charles Shepherd of the ME Association and Luis Nacul of the London School of Tropical Medicine. As members of the NICE guideline development committee, the authors wrote this paper with GPs and primary care
Taking BOLD ACTION with our press outreach has led to national media writing about ME.
On Wednesday 28th September, #MEAction Scotland led a successful #MillionsMissing demonstration outside the Scottish Parliament – the first time it’s been held in-person for three years. While it was in some ways a smaller event than #MillionsMissing Scotland was in 2018 and 2019, what it lacked in spectacle it made up for in engagement from