ABOUT #MEACTION UK

Our movement fights for recognition, education, and research so that one day all people with ME (myalgic encephalomyelitis) will have access to rapid diagnosis, and compassionate, effective care. As people with ME, carers and allies ourselves, we campaign on the issues that are most pressing. 

In Scotland, health is a devolved issue for the Scottish Parliament and covered by #MEAction Scotland.

Our Work

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senate hearing room image with the words, Historic Hearing on Long COVID in the Senate overlayed it. In the bottom left corner is the meaction logo and in the top right hand corner is the HELP committee logo
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Historic Hearing on Long COVID in the Senate HELP Committee

The U.S. Senate HELP Committee held a historic hearing about Long COVID last Thursday to discuss advancing research and improving patient care. #MEAction contacted the press to alert them to the hearing, and issued a follow-up press release sharing highlights from the hearing, and explaining the connection with ME/CFS. Our Scientific Director worked behind the

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Get Involved in Campaigning

We are always looking for volunteers with ME and healthy allies to join our team. If you are interested in helping or getting involved click on the photo to contact us today.

MEET YOUR MP

Check out our guide to meeting your Member of Parliament (MP). Click the photo to find tips, suggestions, asks and sample language to meet your MP. It will give you the basic tools to help you to feel comfortable meeting with your MP.

Your experiences of ME Services - #MEAction UK

Explore OUR RESOURCES

Take a look through the resources our volunteers have created to help you understand our work, as well as factsheets and guides to enable you to take action.

Latest News

#MEAction UK’s letter to The Telegraph, Feb 2024

In  Judith Woods’ Comment piece on 2nd February 2024, ‘28-year-old Lauren Hoeve died by euthanasia – to a degree, I understand her pain’ she boldly asserts that a great deal of Lauren’s anguish was ‘psychological’.  The writer then belittles the immense pain suffered by people with severe ME, as Lauren did from 2019, as she

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#MEAction UK’s letter to the BBC over the show Dragons’ Den

We are writing to express our deep concerns about a segment featured on an episode of Dragons’ Den, which aired on BBC1 on Jan 18th 2024. The episode in question showcased a product “Acu Seeds” that had a back story where the entrepreneur said she “believed they had aided in her recovery of ME/CFS”. This

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Explore our UK resources

CONTACT THE UK TEAM

Looking to contact someone else? Contact the global team here, or the Scotland team here.

Support our work!

Donate now to support #MEAction UK.

MEACTION UK is a registered company in the UK. Company number 14391671. Charity Number 1202130

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