ABOUT #MEACTION UK
Our movement fights for recognition, education, and research so that one day all people with ME (myalgic encephalomyelitis) will have access to rapid diagnosis, and compassionate, effective care. As people with ME, carers and allies ourselves, we campaign on the issues that are most pressing.
In Scotland, health is a devolved issue for the Scottish Parliament and covered by #MEAction Scotland.
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We are always looking for volunteers with ME and healthy allies to join our team. If you are interested in helping or getting involved click on the photo to contact us today.
Check out our guide to meeting your Member of Parliament (MP). Click the photo to find tips, suggestions, asks and sample language to meet your MP. It will give you the basic tools to help you to feel comfortable meeting with your MP.
As a charity we were pleased to be able to submit a longer response than is possible using the online survey. Below is the text as submitted to the DHSC. (PDF Version available here) Introduction This response is submitted on behalf of #MEAction UK, a not for profit organisation operating in all regions of the
MEAction UK have been in communication with the BMJ and are delighted to announce that the Journal of Neurology, Neurosurgery & Psychiatry (JNNP) are publishing an edited version of our rapid response to ‘Anomalies in the review process and interpretation of the evidence in the NICE guideline for chronic fatigue syndrome and myalgic encephalomyelitis’. We
#MEAction UK has now received a reply to our complaint about the removal of our rapid response from the Journal of Neurology, Neurosurgery & Psychiatry (JNNP). ‘Thank you for your email. I can confirm that your complaint has been received and is currently under review by the Content Integrity team at BMJ. We will endeavour