Over 2,000 people with ME/CFS, carers and health professionals in the UK engaged with the recent survey from the ME/CFS Priority Setting Partnership.
Through three stages of participation, this process is aiming to define the top ten research priorities for people affected by this disease.
The process now has just one more step – and you could be part of it.
These final workshops are an opportunity for different people to express their views and hear different perspectives about ME/CFS research priorities. There is immense value in bringing people together to engage in careful consideration and quality discussion to make shared decisions and reach genuine consensus. Through the workshops the final top ten ME/CFS research questions will be agreed.
The deadline for applications is midday Tuesday 11th January 2022.
When and where?
The workshops will take place on Zoom:
- Saturday 5th March 1.00pm – 2.30pm
- Thursday 10th March 5.30pm -7.00pm
- Friday 18th March 2.00pm – 4.00pm
The event is spread across three dates to allow time for recovery, and there will be rest breaks in each workshop. We need you to be at all three sessions. You may of course consider naming a proxy who can step in on your behalf at any time should this prove necessary.
Who can apply?
- Do you have lived experience of ME/CFS, care or support someone with ME/CFS or work in the field as a healthcare professional?
- Are you over 16 and living in the UK?
Then you can apply.
This is an exciting opportunity to be at the forefront of future research into this debilitating disease.
We want to recruit approximately 30 people who have lived experience of ME/CFS, carers and supporters including family, and healthcare professionals working in this field. This includes people with all severities of ME/CFS.
What happens at the workshop?
You should be prepared to share your experiences and opinions, and listen carefully to other people, in a series of small group discussions. There will be about five people in each small group at the workshop. Together, you will be helping us to make decisions about the top 10 research questions you think should be prioritised.
It will all be facilitated by specialists from the James Lind Alliance.
Find out more about the workshops at www.psp-me.co.uk/workshops
Do you want to be part of deciding the future of ME/CFS research in the UK?
Apply today at https://www.psp-me.co.uk/take-part/
