#MEAction Featured in Infection Control Today Whose Audience is Researchers & Medical Practitioners

As you know, Adriane Tillman, has been working extremely hard, alongside her team of volunteers to get featured in the press and she has tapped into a new audience with her latest press hit in Infection Control Today’s article, “Long COVID Shouldn’t Have Taken Us by Surprise”, by Frank Diamond.

This new audience includes researchers and medical practitioners which we are desperately trying to reach. It is imperative to #MEAction that our story be shared in the publications that will make a difference, especially in front of the eyes of those on the medical frontlines, so that people get the care and access they deserve.

In this article, Adriane does not hold back from her frustration at the National Institutes of Health (NIH) and shares how the ME community has known Long COVID was coming from the beginning. 

She states that the number of people with long-lasting symptoms after Covid-19 is  “no surprise to the ME/CFS community.”

“And yet, we continue to see amnesia and inaction from the NIH when it comes to building off the post-viral knowledge that already exists. Researchers with little experience in long COVID and no experience before COVID-19 are directing NIH-funded initiatives; this means people who have been in the field for six months are grantees over researchers with three decades’ experience.”

We applaud Adriane yet again for her continued, urgent action in getting featured in as many diverse publications as possible. You will remember that she worked hard to get in Rolling Stone, Time, Vox, and so many more. 

Click, share, read… and at #MEAction, we will get back to work. We aren’t stopping anytime soon. Thank you.

Facebook
Twitter
WhatsApp
Email

Latest News

A laptop sitting on a desk. In the background, you can see a cup and saucer, some post-it notes and a folder. On the screen is the Scottish Government's website, with a large title that says 'Scottish Good Practice Statement on Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME-CFS).' A red banner is at the bottom of the photo with white writing which says, '#MEAction Scotland responds to the updated Scottish Good Practice Statement on ME.’ The ME Action Scotland logo is in the top left corner.

#MEAction Scotland responds to the updated Scottish Good Practice Statement

The Scottish Government published the updated Scottish Good Practice Statement (SGPS) on ME-CFS on 28th February 2023.  The decision to update the Scottish Good Practice Statement, originally published in 2010, was a result of the Scottish stakeholder review of the 2021 NICE guideline on ME/CFS, and its recommendations for implementing the guideline in Scotland. The

Read More »

Help keep our work going

We rely on donations from people like you to keep fighting for equality for people with ME.

Donate

Get actions alerts and news direct to your inbox

You can choose what you want to be kept up to date on.

Subscribe
Scroll to Top