Staff

The majority of #MEAction staff are people living with ME, making our team uniquely positioned to understand the real-life impacts of the government and medical community’s decisions or inaction on the disease.  

Julia Miele (Executive Director)

Julia has over 20 years of experience in the fields of public health, human services and the arts. Prior to joining the #MEAction team, Julia worked in HIV/AIDS prevention, testing, treatment and care with AIDS Healthcare Foundation in Los Angeles – capabilities she leveraged from her HIV/AIDS, family planning and maternal and child health work with Population Services International in Washington, DC and India. Most recently, Julia served as the Executive Director of The Gabriella Foundation, an arts organization that transforms young lives and communities through dance. With a deep connection to the HIV/AIDS movement and the healing power of the arts, Julia is excited to bring her passions for both to #MEAction.

Laurie Jones

Laurie Jones (Managing Director)

Laurie has years of experience working in non-profits and the arts. Prior to joining the #MEAction team, Laurie was the Director of Impact for Unrest, using the film to educate and advocate for those in the ME community.  She has served as Programs Director at Brave New Films, worked on the Why Poverty? film campaign and fundraised for United Way of Metropolitan Chicago.  She has a BA in Production Studies in Performing Arts from Clemson University and an MA in Applied Human Rights from the University of York.

Ben HsuBorger

Ben HsuBorger (U.S. Advocacy Director)

Problem-solver, project manager. Over the past 10 years Ben has worked in nonprofit, academic and government organizations on projects spanning: microfinance, study-abroad, public health, fair housing and community development. He is a former Fulbright scholar eager to help teams innovate through better integration of people, processes and information. He loves extra-large whiteboards. 

Jaime Seltzer

Jaime Seltzer (Director of Scientific and Medical Outreach)

Jaime Seltzer was an educator in the sciences when she contracted ME. Through research, determination, and the help of hundreds of other patients posting their experiences, she was able to restore some of her well-being.

Seltzer did freelance writing before accepting a position as an Assistant Professor in graduate-level Organic Chemistry. In 2016, she was hired as Managing Editor for #MEAction, where she played a key role in organizing the #MillionsMissing protests, engaged with representatives on Capitol Hill, the CDC, and the NIH, and represented #MEAction at scientific conferences. In 2017, Seltzer was hired to work at the Stanford Genome Technology Center, doing benchwork and research writing, helping to create disease models and investigate treatments. 

Adriane Tillman

Adriane Tillman (Public relations manager)

Adriane graduated with degrees in literature and Russian language. She worked as a newspaper journalist for five years, and consulted in marketing and copywriting before joining #MEAction. 

Erin Roediger

Erin Roediger (Programs and Campaigns Director)

Erin began her professional career working for health non-profits. She has worked as both an events manager and volunteer coordinator with her focus on ensuring individuals felt connected to the cause and were energized to take action. While working, Erin supplemented her knowledge by earning a Masters in Clinical Psychology at Pepperdine University, providing a deeper understanding into human relationships and connections. She has also worked on several electoral campaigns. Training volunteers on these campaigns, Erin witnessed firsthand how a powerful group of individuals can create change in their communities, especially when they are working together towards a common goal. 

Holly Latham

Holly Latham (Social Media Manager)

Holly has been an enthusiastic volunteer in a variety of capacities in the ME community for years. She had two strong passions prior to illness: facilitating compassionate communities and advocacy. She was on track to turn these passions into a career with a psychology major and goals of a master’s degree and doctorate until ME struck and derailed her plans. Holly worsened from more moderately ill to 23.5 hours a day in a darkened room holding on through the pain and hoping for better days. Eventually, those better days did come and Holly immediately turned to the active online ME community. She jumped right into advocacy as a co-manager of the Justice for Karina Hansen campaign. She has since volunteered in a variety of roles through #MEAction where she has used her talents for advocacy and community building.  Holly is excited to serve the community in the role of social media manager. 

Steven Molony (Communications Manager)

Steven Molony has been shooting #MillionsMissing footage and editing videos for #MEAction since 2017. As of 2021, he signed on in a greater capacity to assist in advancing #MEAction’s mission. Molony is an actor, writer, and filmmaker with a passion for using that skill set to serve others. 

Our country programs are led and sustained via a collaboration between our staff and volunteers.

Volunteers

#MEAction’s staff support and are supported by hundreds of volunteers all around the world. We are always looking for new volunteers with ME and healthy ME allies to join our team. If you are interested in helping, please get in touch via this form.

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