Jennifer Brea (Co-Founder / Volunteer Executive Director)
Jennifer Brea is an independent documentary filmmaker based in Los Angeles. She has an AB from Princeton University and was a PhD student at Harvard until sudden illness left her bedridden. In the aftermath, she rediscovered her first love, film. Her Sundance award-winning feature documentary, Unrest, has screened in over 30 countries and had its US national broadcast on PBS’s Independent Lens. She is also co-creator of Unrest VR, winner of the Sheffield Doc/Fest Alternate Realities Award. An activist for people with disabilities and chronic illness, she co-founded a global advocacy network, #MEAction and is a TED Talker. @jenbrea
Laurie Jones (Managing Director)
Laurie has years of experience working in non-profits and the arts. Prior to joining the #MEAction team, Laurie was the Director of Impact for Unrest, using the film to educate and advocate for those in the ME community. She has served as Programs Director at Brave New Films, worked on the Why Poverty? film campaign and fundraised for United Way of Metropolitan Chicago. She has a BA in Production Studies in Performing Arts from Clemson University and an MA in Applied Human Rights from the University of York.
Ben HsuBorger (Global Community & Campaigns Director)
Problem-solver, project manager. Over the past 10 years Ben has worked in nonprofit, academic and government organizations on projects spanning: microfinance, study-abroad, public health, fair housing and community development. He is a former Fulbright scholar eager to help teams innovate through better integration of people, processes and information. He loves extra-large whiteboards. @hsuborger
Jaime Seltzer (Director of Scientific and Medical Outreach)
Jaime Seltzer was an educator in the sciences when she contracted ME. Through research, determination, and the help of hundreds of other patients posting their experiences, she was able to restore some of her well-being.
Seltzer did freelance writing before accepting a position as an Assistant Professor in graduate-level Organic Chemistry. In 2016, she was hired as Managing Editor for #MEAction, where she played a key role in organizing the #MillionsMissing protests, engaged with representatives on Capitol Hill, the CDC, and the NIH, and represented #MEAction at scientific conferences. In 2017, Seltzer was hired to work at the Stanford Genome Technology Center, doing benchwork and research writing, helping to create disease models and investigate treatments.
Adriane Tillman (Editor & Communications Manager)
Adriane graduated with degrees in literature and Russian language. She worked as a newspaper journalist for five years, had a few stints in organic farming, and consulted in marketing and copywriting before joining #MEAction.
Erin Roediger (U.S. Advocacy Manager)
Erin began her professional career working for health non-profits. She has worked as both an events manager and volunteer coordinator with her focus on ensuring individuals felt connected to the cause and were energized to take action. While working, Erin supplemented her knowledge by earning a Masters in Clinical Psychology at Pepperdine University, providing a deeper understanding into human relationships and connections. She has also worked on several electoral campaigns. Training volunteers on these campaigns, Erin witnessed firsthand how a powerful group of individuals can create change in their communities, especially when they are working together towards a common goal.
Holly Latham (Social Media Manager)
Holly has been an enthusiastic volunteer in a variety of capacities in the ME community for years. She had two strong passions prior to illness: facilitating compassionate communities and advocacy. She was on track to turn these passions into a career with a psychology major and goals of a master’s degree and doctorate until ME struck and derailed her plans. Holly worsened from more moderately ill to 23.5 hours a day in a darkened room holding on through the pain and hoping for better days. Eventually, those better days did come and Holly immediately turned to the active online ME community. She jumped right into advocacy as a co-manager of the Justice for Karina Hansen campaign. She has since volunteered in a variety of roles through #MEAction where she has used her talents for advocacy and community building. Holly is excited to serve the community in the role of social media manager.
Hannah Bowlus (Administrative Coordinator)
In June 2017, Hannah Bowlus started working on the impact campaign of Unrest. She joined #MEAction full time in January 2019.
Beyond her work for Unrest and #MEAction, she is a published essayist. She likes to help out with Los Angeles community organizations, play music, and work on her friend’s films.
Our country programs are led and sustained via a collaboration between our staff and volunteers.
#MEAction’s staff support and are supported by hundreds of volunteers all around the world. We are always looking for patient volunteers and healthy ME allies to join our team. If you are interested in helping, please get in touch via this form.