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Team

Staff

Jennifer Brea (Co-Founder / Voluntary Executive Director)

Jennifer Brea is an independent documentary filmmaker based in Los Angeles. She has an AB from Princeton University and was a PhD student at Harvard until sudden illness left her bedridden. In the aftermath, she rediscovered her first love, film. Her Sundance award-winning feature documentary, Unrest, has screened in over 30 countries and had its US national broadcast on PBS’s Independent Lens. She is also co-creator of Unrest VR, winner of the Sheffield Doc/Fest Alternate Realities Award. An activist for people with disabilities and chronic illness, she co-founded a global advocacy network, #MEAction and is a TED Talker. @jenbrea

Laurie Jones

Laurie Jones (Managing Director)

Laurie has years of experience working in non-profits and the arts. Prior to joining the #MEAction team, Laurie was the Director of Impact for Unrest, using the film to educate and advocate for those in the ME community.  She has served as Programs Director at Brave New Films, worked on the Why Poverty? film campaign and fundraised for United Way of Metropolitan Chicago.  She has a BA in Production Studies in Performing Arts from Clemson University and an MA in Applied Human Rights from the University of York. laurie@meaction.net

Ben HsuBorger (Global Community & Campaigns Director)

Problem-solver, project manager. Over the past 10 years Ben has worked in nonprofit, academic and government organizations on projects spanning: microfinance, study-abroad, public health, fair housing and community development. He is a former Fulbright scholar eager to help teams innovate through better integration of people, processes and information. He loves extra-large whiteboards. @hsuborger ben@meaction.net

Jaime Seltzer (Director of Scientific and Medical Outreach)

Jaime Seltzer was an educator in the sciences when she contracted ME. Through research, determination, and the help of hundreds of other patients posting their experiences, she was able to restore some of her well-being.

Seltzer did freelance writing before accepting a position as an Assistant Professor in graduate-level Organic Chemistry. In 2016, she was hired as Managing Editor for #MEAction, where she played a key role in organizing the #MillionsMissing protests, engaged with representatives on Capitol Hill, the CDC, and the NIH, and represented #MEAction at scientific conferences. In 2017, Seltzer was hired to work at the Stanford Genome Technology Center, doing benchwork and research writing, helping to create disease models and investigate treatments. jaime@meaction.net

Adriane Tillman

Adriane Tillman (Editor)

Adriane graduated with degrees in literature and Russian language. She worked as a newspaper journalist for five years, had a few stints in organic farming, and consulted in marketing and copywriting before joining #MEAction. adriane@meaction.net

Espe Moreno (UK Coordinator)

Based in London, Espe previously worked for the Time for Unrest impact campaign in the UK, overseeing social media, events, and various advocacy efforts. She is a marketing, film and communications professional with 10+ years of international experience in campaign management, film distribution and festivals, startups and nonprofits. Espe has a Masters of Journalism and International Relations from Monash University and a BA in Journalism. espe@meaction.net

Holly Latham (Social Media Manager)

Holly has been an enthusiastic volunteer in a variety of capacities in the ME community for years. She had two strong passions prior to illness: facilitating compassionate communities and advocacy. She was on track to turn these passions into a career with a psychology major and goals of a master’s degree and doctorate until ME struck and derailed her plans. Holly worsened from more moderately ill to 23.5 hours a day in a darkened room holding on through the pain and hoping for better days. Eventually, those better days did come and Holly immediately turned to the active online ME community. She jumped right into advocacy as a co-manager of the Justice for Karina Hansen campaign. She has since volunteered in a variety of roles through #MEAction where she has used her talents for advocacy and community building.  Holly is excited to serve the community in the role of social media manager. holly@meaction.net

 

Volunteers

#MEAction’s staff support and are supported by hundreds of volunteers all around the world. We are always looking for patient volunteers and healthy ME allies to join our team. If you are interested in helping, please get in touch via this form.

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