New #MEAction Volunteer Survey

#MEAction is excited to announce our new Volunteer Survey! We invite everyone to complete the survey. The survey link will be available on #MEAction’s website until Friday, July 29th. We encourage everyone to thoughtfully consider each question, fill out their responses, and submit the survey by the due date. The survey consists of 12 questions and is a combination of multiple choice and fill in the blank options. If you are not able to fill out the survey at one time, you can submit your survey and come back later to finish all the questions. Learn more about this process at the bottom of this article.* The responses from the survey will inform and improve #MEAction’s volunteer program. All data captured will be confidential.

This volunteer survey is the result of #MEAction being awarded a Ford Foundation Grant in 2021 to diversify and build capacity within our volunteer program. Since then, we have worked to have ambitious goals around creating high-quality volunteer training modules and a fully operational, accessible, and interactive volunteer recruitment, training, and deployment system. We are excited about the grant and the opportunity it provides to grow our social movement. As Long COVID and other diseases stimulate more awareness about ME/CFS, there is an increased need for volunteers from all backgrounds to join #MEAction.

Over the past few months, we have been strategizing and reaching out to specific community members about how to make our volunteer program more effective and diverse.
We also conducted insightful listening sessions where Black, Indigenous, and people of color living with ME/CFS and Long COVID were invited to share their perspectives on volunteerism. Our next step was for #MEAction consultants, Terri L. Wilder and Chimére L. Smith, to create this survey to continue capturing significant data from a wider array of current and prospective #MEAction volunteers. Once the survey closes, #MEAction will review the data and use it to inform future strategies for volunteer engagement and recruitment. We hope you will take part.

We appreciate your time and efforts–your participation matters. We look forward to building a volunteer program that ensures a lasting change and a stronger sense of community.

*We understand that some people may not be able to complete the survey in one sitting. If you need to come back later, you will need to hit submit on your partially filled out survey. Once you hit submit, you will receive a confirmation email. In this email, there will be a section titled “edit response” that will allow you access to your survey, so you can finish it when you are ready.

Here is what you are looking for in your confirmation email to complete or edit your survey responses: 


Latest News

A laptop sitting on a desk. In the background, you can see a cup and saucer, some post-it notes and a folder. On the screen is the Scottish Government's website, with a large title that says 'Scottish Good Practice Statement on Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME-CFS).' A red banner is at the bottom of the photo with white writing which says, '#MEAction Scotland responds to the updated Scottish Good Practice Statement on ME.’ The ME Action Scotland logo is in the top left corner.

#MEAction Scotland responds to the updated Scottish Good Practice Statement

The Scottish Government published the updated Scottish Good Practice Statement (SGPS) on ME-CFS on 28th February 2023.  The decision to update the Scottish Good Practice Statement, originally published in 2010, was a result of the Scottish stakeholder review of the 2021 NICE guideline on ME/CFS, and its recommendations for implementing the guideline in Scotland. The

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