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RSVP TODAY: We are hosting a preview party for the new, virtual Home of the #MillionsMissing this Sunday, September 24th,
MEAction UK have been in communication with the BMJ and are delighted to announce that the Journal of Neurology,
#MEAction and Long COVID Justice issued a press statement yesterday about our communities’ deep concerns regarding the rollout of
MEAction UK has sent the following letter to the BMJ Editor in Chief, the JNNP Editor in Chief the
Urge Congress to hold our federal health and research agencies accountable for ME & Long COVID.
Announcing #MEAction and Body Politic’s new collaboration: we are excited to announce that #MEAction will now host Body Politic’s
Below is the text of MEAction UK’s rapid response submitted to the JNNP article that was published 10th July
MEAction UK is preparing a detailed response to the latest published paper attacking the NICE Guideline on ME/CFS. In
I’ve been involved in planning many #MillionsMissing actions during my time with #MEAction, but for me, protesting at the
On 16th May 2023, the Scottish Government published the findings from an analysis of surveys issued to NHS Health
While we are busy working to create a new online experience to highlight all the images and speeches from
This year, #MEAction Scotland’s #MillionsMissing campaign focussed on raising awareness of the reality of living with ME and called
Washington, DC – The ME/CFS and Long COVID communities will demonstrate today with the installation of 300 cots on the National Mall to represent the millions of people missing from their lives due to post-infectious disease. We are the #MillionsMissing.
May is nearly here and that means so is ME Awareness Week and #MillionsMissing! This year, #MEAction Scotland and
DEA should amend its proposed rule to ensure access to care
The Scottish Government published the updated Scottish Good Practice Statement (SGPS) on ME-CFS on 28th February 2023. The decision
Calls for immediate public release of RECOVER’s clinical trial design
#MEAction Colorado Works With Governor’s Office to Create A New Senior Policy Advisor Role on Long COVID and Post Viral Infection Planning–Leading to Statewide Report on Long COVID
#MEAction Colorado’s first legislative effort in Colorado began with an ME/CFS day declaration in the Colorado Legislature on February
UPDATE: We want to provide a brief update on Sami Berry’s case and what she needs help with now.
Reflections on embodying intersecting identities of disease and disability
AIDS, ME/CFS & Long COVID activists demand Biden, Congress fund pandemic plans
White House Must Confront Global Health Nightmare of Colliding Pandemics
Congress launched ARPA-H (the Advanced Research Projects Agency for Health) this past March to focus on high-risk, high-reward research
BOLD ACTION to me, means mobilizing our community to publicly demonstrate our deep and intense—as opposed to shallow and
What Primary Care practitioners need to know about the new NICE guideline for myalgic encephalomyelitis/chronic fatigue syndrome in adults
Caroline Kingdon’s new paper on the NICE guideline for ME was co-written with #MEAction UK volunteer Adam Lowe, as
#MEAction has sent the following email to editors at New York Magazine to request it remove its fallacious article about Long COVID and ME.
Taking BOLD ACTION with our press outreach has led to national media writing about ME.
#MillionsMissing France has been busy.
At #MillionsMissing Scotland many MSPs pledged their support for people with ME, and now they have a chance to
Post-viral conditions like ME/CFS provide guidance for estimating the economic impact of Long COVID.
Code change will ensure US can track diagnosed cases of ME/CFS in newly created electronic health records
On Wednesday 28th September, #MEAction Scotland led a successful #MillionsMissing demonstration outside the Scottish Parliament – the first time
There has been so much happening since the #MillionsMissing protest on September 19th. We’ve shared some of our amazing
People with ME, Long COVID and other complex, chronic diseases have experienced all kinds of healthcare discrimination. Now there