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We did it! This is what the #MillionsMissing Look Like.

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It has been a big week, with over 100 public and virtual events happening across the world! We are honored and grateful to be in this fight for health equality with you. We showed the world that we are the #MillionsMissing - that we will fight for the recognition, treatment, and ...

#MillionsMissing from ME: 2019 Stories

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We asked you, the #MillionsMissing from ME to tell us your stories. We are grateful for all that you've shared with us and each other. We are proud to publish your words. We won't give up the fight. Here is the collection of your stories from 2019. *We tried our best to include all of ...

Remembering the Forgotten: How AMMES Lessens Isolation and Neglect

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Erica Verrillo is the president of the American ME and CFS Society, a 501(c)(3) nonprofit. May is the month for acknowledging the Millions Missing – the millions of ME/CFS patients who, through the years, have suffered from poor medical care, insufficient research into the cause and mechanisms of the disease, and a

Help Simmaron Research AMPlify Therapies for ME!!

Simmaron Research is conducting a one-of-a-kind study to analyze data from ME/CFS patients who respond to treatments like Ampligen®, IVIG, and cidofovir, and we need your help funding this data analysis! Our goal is to publish peer-reviewed data to stimulate treatment trials and inform rigorous trial design ASAP!

Twitch Gaming Show Fundraises for #MEAction!

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Rat Queens, a show on the popular Twitch channel, HyperRPG, is hosting a fundraiser for #MEAction this Wednesday, May 8th at 7pm PST. Twitch is a live streaming platform and anyone can watch and participate from their homes! 100% of  the proceeds will go to #MEAction. Rat Queens (based on the Image Comic

South Carolina Raises Awareness about ME

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My name is Robert Jacobs, MD and I am a retired Physician and caregiver for my wife who has had Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) for more than 9 years. Despite the historical, tourism and quality-of-life allure of this beautiful state, we discovered a paucity of medical care available to patients with ME/CFS,

Urgent – Contact Your Senators Now to Co-sponsor the ME/CFS Awareness Day Resolution

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Please contact your SENATORS and urge them to co-sponsor a ME/CFS Awareness Day Resolution NOW! Although the original co-sponsors would like to receive sign-ons as soon as possible and ideally by COB Wed, May 8th, they’re willing to accept co-sponsors up until the passage of the bill, targeted for this Fri, 5/10. Senators Markey

#MillionsMissing from ME: Your Stories

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Myalgic encephalomyelitis (ME) is a debilitating, chronic disease that steals so much from the person. We received heart felt stories from around the globe chronicling journeys with ME. This week we touched on parenting, aging, marginalization, and careers. Today we want to share more of your stories. While not all

Career and Loss for People with ME

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Myalgic encephalomyelitis (ME) is a debilitating, chronic disease that steals so much from people’s lives. People with ME may struggle with their identity through the loss or great change in their careers. Below are stories of individuals who found their careers greatly changed or taken.   We hope that you will join

Australia: Sign the Petition to Provide Disability Services to People with ME!

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Australians with ME/CFS are routinely rejected from the country’s National Disability Insurance Scheme (NDIS), because the Australian government doesn’t consider ME/CFS to be a permanent condition for most living with the illness. Sign this petition to support Aussies with ME/CFS and demand policy change!

The Unique Challenge of Aging with M.E.

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Aging can be a challenging time for anyone but people with the debilitating, chronic disease of myalgic encephalomyelitis (ME) often find that their symptoms are dismissed as a "normal" part of aging, and so are left without the diagnosis, care and support that they need from their medical providers and community

Parents and Children Missing from their Lives due to M.E.

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Myalgic encephalomyelitis (ME) is a debilitating, chronic disease that steals so much from the person. Parents with ME are missing precious days and years with their children due to the disease, and parents of children with ME are fighting to provide care for their sick children in a world where there

South Carolina Raises Awareness About ME

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May has been declared Myalgic Encephalomyelitis (ME) Awareness Month and May 12, 2019 as ME Awareness Day pursuant to a City of Charleston, South Carolina Proclamation

#MEAction Drafts Response to NIH’s Request for Information

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NINDS, the National Institute for Neurological Disorder and Stroke at the NIH has solicited an RFI, or a Request for Information, from the ME community on how to advance research for myalgic encephalomyelitis.   With only a few weeks’ turn-around, the #MEAction NIH working group met and was able to produce