The public testifies about ME

/ by / 2 Comments
Dozens of people with Myalgic Encephalomyelitis and family members testified about the disease last December before the government agency responsible for advising Health and Human Services on ME/CFS – the Chronic Fatigue Syndrome Advisory Committee. Speaker after speaker testified about the incredible neglect from the government for the millions of Americans suffering ...

U.S. Advisory Committee Holds Meeting on ME/CFS

/ by / 3 Comments
We need you! #MEAction is looking for volunteers who can help our team ensure that the CFSAC recommendations are implemented, and don’t fall through the bureaucratic cracks. If you’ve worked for government agencies before, that is a bonus. We welcome all volunteers who can assist with keeping an eye on ...

One Step Forward Educating the Medical Community about ME

/ by / 0 Comment
A Medical Education Working Group has been created by the Chronic Fatigue Syndrome Advisory Committee (CFSAC) to provide recommendations to the U.S. Secretary of Health on educating healthcare providers on ME/CFS. The working group plans to disseminate resources and clinical guidance to healthcare providers, as well as provide trainings and continuing

OMF Raises $1.2M to Ramp Up Collaborative Research Center at Stanford University

/ by / 0 Comment
Announcing $1.2M in funding for the ME/CFS Collaborative Research Center at Stanford University led by Ronald W. Davis, PhD, Director of OMF's Scientific Advisory Board.

Australia Announces a New ME/CFS Advisory Committee

/ by / 4 Comments
Australia's National Health and Medical Research Council (NHMRC), the Australian equivalent of the NIH, has announced the establishment of an ME/CFS Advisory Committee to advise NHMRC's CEO, Professor Anne Kelso, on current needs for research into ME/CFS, as well as clinical guidance on the diagnosis and treatment of the illness.

Don’t Miss the CFS Advisory Committee Meeting This Wednesday & Thursday

/ by / 0 Comment
CFSAC is Wednesday (12/13) and Thursday (12/14) of this week! Please stand with us as we continue to urge the U.S. government to fund ME fairly and equally. View the calendar event here. This Chronic Fatigue Syndrome Advisory Committee (CFSAC) meeting will take place at the Hubert H. Humphrey Building, 200 Independence

A New Non-Profit for ME & CFS Comes Online

/ by / 2 Comments
The American ME and CFS Society is live, and we need your participation!

OMF Shares Resources to Help Children with ME/CFS Succeed in School

/ by / 0 Comment
Dr. Faith Newton, Deleware State University, has created several resources to help children with ME/CFS improve their educational outcomes including the newest piece, a sample physician's letter.

OMF Welcomes Jonas Bergquist, MD, PhD, to the OMF Scientific Advisory Board

/ by / 0 Comment
#OMFScienceWednesday showcases Dr. Jonas Bergquist.

OMF Science Wednesday – Personalized Medicine

/ by / 0 Comment
What is Personalized Health? - How researchers are using personalized health to understand ME/CFS

Innovative Organizing for UNREST in Boston: Don’t Miss our Nov. 12 Screening

/ by / 3 Comments
This is an exciting time for ME advocacy in Boston, Massachusetts. We are preparing for our November 12th, Sunday afternoon screening of UNREST. For those who are able, join us, because it is going to be an amazing event. (Tickets available here. Note: Healthcare professions can attend for free, and there's

What Did the Parliamentary Unrest Event Achieve?

/ by / 0 Comment
Tuesday 24th Oct., 2017 will long be remembered as a significant day for anyone involved in ME politics.

Solve ME/CFS Initiative Announces 2017 Ramsay Award Recipients

/ by / 0 Comment
The Solve ME/CFS Initiative (SMCI) announced the recipients of the 2017 Ramsay Award Program on Tuesday. The Ramsay Award Program, now in its second year, is a competitive grant that funds ME/CFS researchers at every stage of their careers. The five winning proposals receive one year of funding to research

Finding Ourselves in Others: A Tale of Watching Unrest

/ by / 11 Comments
This past spring I attended a screening for Unrest at the Ted Rogers Cinema in Toronto. Something powerfully transformative happened during the screening. Something that can’t be articulated in a review.