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Attend the 3rd Annual Community Symposium on Molecular Basis of ME/CFS – Register to Attend or Watch

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Stanford University is holding its 3rd Annual Community Symposium on the Molecular Basis of ME/CFS at Stanford University on Saturday, Sept. 7, 2019, sponsored by the Open Medicine Foundation. Patients, caregivers and the community are encouraged to join the community symposium to learn about the most current research, and to meet the scientists and clinicians in ...

#MEAction Welcomes our Social Media Ambassador from South Africa

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We are excited to announce our newest Social Media Ambassador, Clarinda Viviers, from South Africa! A social media ambassador is a volunteer who is knowledgeable, an enthusiastic supporter of the ME community and #MEAction, and has a strong social media presence. Each ambassador amplifies #MEAction’s social media efforts and share ...

U.S School Nurses, Teachers & Counselors can now take Continuing Education Course about Pediatric ME/CFS

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School nurses, counselors, social workers or teachers in any U.S. state can now earn earn 3.25 Continuing Education credits (CNE) for completing a course on pediatric myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS). The course is titled, "“Why Can’t This Child Get to Class? Learn How ME/CFS Keeps Youth from Attending School." The course

Australia to Launch its First ME/CFS Biobank and Patient Registry

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Australian philanthropic trust the Mason Foundation will establish the first Australian national ME/CFS biobank and patient registry, with a $1 million grant. The grant consists of two components: the biobank and patient registry, and a research project which uses the samples stored in the biobank. This is significant news for

Greater London Authority Unrest screenings to raise awareness of ME

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The Greater London Authority’s offices have held two Unrest screenings over the past few months to raise awareness of myalgic encephalomyelitis (ME). The screenings, held for staff, took place at Union Street and City Hall, and were part of ME Awareness Week and the #MillionsMissing campaign. Officers and staffers attended the
Individuals who were lied to and misrepresented by Netflix’s Afflicted include (left to right): Jake, Pilar, Jamison, Jake & Bekah, Jill & Janine

Netflix’s “Afflicted” Cast Sues for Defamation

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Four cast members of the Netflix series, Afflicted, have filed a lawsuit against Netflix and Doc Shop producers for defamation for portraying them as 'hypochondriacs and/or malingerers." The lawsuit indicates that the Doc Shop producers lied to the Afflicted participants “because the series was not a documentary in any sense of
Gigi riding a mobility scooter.

Gigi Update: Lewisham Hospital Removes Gigi’s Pain Medication, Leaving Her in Rising Pain

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An update on Gigi’s situation: Gigi’s family are launching an urgent appeal to find lawyers to bring their daughter, 17, home from Children's Ward in Lewisham Hospital, London. Her family is desperate to bring her home, but the hospital has withdrawn Gigi's pain medication, leaving her in steadily rising pain

#MEAction Welcomes Michelle Pinedo to our Board of Directors

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#MEAction is pleased to welcome Michelle Pinedo to our Board of Directors. Michelle brings over 20 years of senior level experience in leading non-profit organizations to higher degrees of efficiency and impact. Michelle has seen the devastation of this illness up-close and considers herself a strong ally in our fight for recognition

Today, We Honor and Remember those with Severe M.E.

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Today, we honor the millions of people around the world living in darkened rooms where sound and light and touch are beyond reach, where eating, bathing and standing have become impossible. Our community is fighting every day to bring hope, health and justice to people with myalgic encephalomyelitis (ME), and, today,

Researchers, Clinicians and Patients: Submit a Manuscript on ME to WORK Journal

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Researchers, patients and clinicians are invited to submit a manuscript for consideration in a special issue of WORK: A Journal of Prevention, Assessment and Rehabilitation (IOS Press), which will focus exclusively on the area of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). Submissions are due Sept. 13, 2019. Scope The focus of this special edition

Help ME/CFS Research and Clinical Care Research Win the Frontiers Spotlight Award! Download and View the Research!

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A series of 24 papers on ME/CFS called "Advances in ME/CFS Research and Clinical Care," published in 2018-2019 in the online (open access, peer-reviewed) journals Frontiers in Neurology and Frontiers in Pediatrics, is in the running to win a $100,000 prize! The prize money must be used to fund a

Support Severe ME Day: Join the Silence Challenge

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August 8th is Severe ME Day. It is a day of awareness raising for those suffering severe Myalgic Encephalomyelitis as well as a day of remembrance. August 8th was the birthday of Sophia Mirza, a 32 year-old woman who died of ME. One way you can participate and raise awareness for Severe

A petition cloaked in the respectability of research

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#MEAction UK has written a letter with regards to a survey that states it is to protect specialist CFS/ME services in the UK. We do not recommend people fill in this survey. It is written in such a way that it could be misused to support the existing treatment paradigm that

#MEAction Volunteers-of-the-Month: MEpedia Stalwarts

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#MEAction is honored to announce our volunteers-of-the-month, Innie and Pyrrhus, who are extremely dedicated contributors to MEpedia, our wiki encyclopedia for the ME and CFS community.  Powered by #MEAction, MEpedia is crowdsourcing a knowledge base on the history, science and medicine with the goal to create a literature review so accurate, comprehensive, and technical that it