#MEAction receives $50K donation from Pineapple Fund

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#MEAction is thrilled to announce that it has received a $50,000 donation from the Pineapple Fund, an anonymous donor who claims to be one of the largest holders of Bitcoin in the world. "The #MEAction community is incredibly grateful to the Pineapple Foundation for helping our organization support the work of activists ...

PACE Trial ‘medical scandal’ Sparks UK Parliament Debate

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Members of Parliament heard about the flaws of the PACE Trial - and its devastating effects on people with Myalgic Encephalomyelitis (ME) - in a Westminster Hall debate today. Twenty-six MPs attended the debate ...

OMF Announces the New Analyzing Patient Data Study (APS)

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This study will gather and analyze the clinical laboratory tests and results ordered by ME/CFS specialists. OMF is hopeful that analyzing a large number of clinical records using robust statistical methods may reveal new insights.

Watch the Westminster Hall debate on PACE

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A Westminster Hall debate on the PACE trial will take place on Tuesday, 20th Feb., from 11 to 11:30 a.m. Carol Monaghan MP has secured the debate. Watch the Debate or Attend the Debate Follow the debate on Twitter by following @meactnetuk or @MEActNet. The debate will discuss the flawed science behind PACE, and how

What ME Activists Can Learn from the AIDS Crisis

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I read "How To Survive A Plague: The Inside Story of How Citizens and Science Tamed AIDS" by David France to learn lessons from the AIDS movement that could help ME activism, and to summarize it for people without the energy and/or time to read it. The book tells an
Volunteers on Radio Scotland

Volunteers on Radio Scotland

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Guest post by Emma Shorter Listen to MEAction volunteers on Radio Scotland! Available as an MP3 (7Mb) or stream via BBC iPlayer (starts at 36.23) On 14th of February 2018, my mum (Janet) and I were on Radio Scotland to discuss #MEAction’s Millions Missing campaign in Scotland. The piece was instigated after the Millions

When Medicine Fails a Child

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Two years ago, our then 10-year old son started to complain of a stomach ache that did not resolve. Other things seemed wrong, too. I did not want to be an alarmist and waited an appropriate amount of time before calling for an appointment, thinking there would be a simple

Hold On, Firebird

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Once upon a time, I woke up on fire. This burning was one of invisible flames, curling themselves around me and offering nothing but excruciating pain and the sort of exhaustion which bears down on you like a weight your whole body must carry.

Update on the Metabolomics Validation Study by OMF

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OMF funded Metabolomics Validation Study update

OMF receives a $5 Million Gift from the Pineapple Fund – Send a Note of Thanks

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OMF invites the ME/CFS community to join together to thank the Pineapple Fund by adding your appreciation to our online community-wide thank you card.

Post-Exertional Malaise & GET in ME/CFS – a guide to the research

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A member of #MEAction Network Australia has written a primer, outlining the flaws in the GET research and explaining why GET is likely to be harmful for people with ME/CFS.

Have you been harmed by PACE? Send a letter.

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Dr. Sarah Myhill has launched a campaign calling on all patients who feel that they have been harmed by the PACE trial to join her in writing to the General Medical Council (GMC), which oversees doctors in the UK. You do not have to be a UK citizen to participate. Dr. Myhill has

Urge your MP to Attend Westminster Hall Debate on PACE

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A Westminster Hall debate on the PACE trial has been scheduled for Tuesday, 20th Feb., 11-11:30 a.m. Carol Monaghan MP has secured the debate. Please urge your MP to attend the Westminster Hall debate to learn about the flawed science behind PACE, and how it has affected policy on Myalgic Encephalomyelitis

‘Unrest’ at the Scottish Parliament

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The Time for Unrest event at the Scottish Parliament on 30th January was an opportunity to raise awareness of Myalgic Encephalomyelitis (ME) among Members of the Scottish Parliament (MSPs), and ask them to take action to support the 21,000 people with ME in Scotland. Attended by over 70 people, it