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It’s Not “All in My Head”: Living with a Misdiagnosed Disability Five Years on. Volume Two

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"...What literally did not kill me has only made me stronger because giving up was not an option." ...

Who is advising the Australian government on ME and CFS research and treatment guidelines?

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Australian research is underfunded and the government’s clinical guidelines are outdated so the Australian government's ME and CFS advisory committee is welcomed. It provides an important opportunity to call on the government to fund biomedical research and to give Australian doctors desperately needed clinical guidance. However, there are mixed perspectives ...

Just Invisible: Medical Access Issues for Homebound/Bedridden People

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Australian Ricky Buchanan has written a much-needed report about the issues facing bedbound and homebound people in getting access to medical care.

Inquest Rules Merryn Crofts Died Due to Severe ME

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An inquest into the death of Merryn Crofts, 21, concluded that she died from starvation due to severe Myalgic Encephalomyelitis (ME) -  making her the second person in the U.K to have ME listed on a death certificate. Merryn weighed less than six stone (84 pounds) at the time of her

U.S. Congress Introduces Resolution for ME

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Yesterday, the U.S. Congress introduced a resolution in the Senate to show support for research and medical education for Myalgic Encephalomyelitis (ME).

The Global Impact of #MillionsMissing

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The impact of #MillionsMissing 2018 was phenomenal. Protestors took to the streets in 100 countries across the world with demonstrations taking place in North America, South America, Europe, the United Kingdom, South Africa and Asia. Along with people taking action from home, there was a total of 300 visibility actions. More

It’s not “all in your head”: Living with a misdiagnosed disability five years on. Volume One

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Sharing a rare but intimate glimpse of life living with a disability, coping with new diagnosis and healing from the damage of old diagnosis.

Australian Parliament Recognises Urgent Need for Biomedical Research for ME

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The Myalgic Encephalomyelitis (ME) and chronic fatigue syndrome (CFS) patient and research communities are delighted the Australian parliament officially recognise the urgent need for biomedical research in the field, passing a motion in the Senate to mark International ME and CFS Awareness Day.

OMF shares a Patient’s Reflection on UNREST

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This anonymous patient was truly moved by viewing Unrest and is sharing this personal reflection to encourage action.

Why we’re Targeting the NIH for #MillionsMissing

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    The logic is crystal clear for why the National Institutes of Health (NIH) should make a serious commitment to funding research for ME/CFS. The disease affects a high proportion of Americans - estimates range from 1 to 2.5 million people; the disease is highly debilitating, leaving 75 percent unable to

OMF: A look back on 2017 Highlights

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OMF presents a look back on their 2017 highlights in research, outreach, advocacy, recognition, and more.

A song for ME: Blowin’ in the Wind

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    The following arrangement of Blowin’ in the Wind, with alternative lyrics about the struggles faced by people with ME, is performed by patients and their carers from around the world: If you would like to play and/or sing this song at a #MillionsMissing protest on 12 May, or at any other event,

NIH reply to my open letter (and a legal question from a peasant)

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Samuel Wales, who has had ME for many years, has kindly allowed us to republish his latest blog post, which can be found here. Intro My previous post contains my open letter to Francis Collins. It got a lot of readers. Many were from NIH. But who exactly at NIH is

Action Alert: Ask Francis Collins Anything this Friday at 2pm EST

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  The National Human Genome Research Institute (NHGRI) will launch the National DNA Day Reddit "Ask Me Anything" (AMA) Series on Friday, April 20 at 2pm EST. Genomics experts will answer questions at the Reddit Science community forum, "/r/Science". A Reddit AMA is an opportunity to ask interesting individuals questions about anything
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