×

News

Advocacy News | Research News


Never miss a beat! Subscribe to our newsletter and select “Daily Digest” to get a summary of the day’s news & actions delivered to your inbox.


Carol Head of SMCI to step down

/ by / 0 Comment
After five years of advocacy leadership, Carol Head, the President of Solve ME/CFS (SMCI), will be stepping down from her position for health reasons. Head, a graduate of Wellesley and Stanford's School of Business, contracted ME after a viral infection and was deeply affected for years.  However, she describes herself as ...

Fighting for Rigorous Science and Accurate Reporting

/ by / 1 Comment
On March 13, Reuters published an article, "Special Report: Online activists are silencing us, scientists say". Reuters used their platform to promote discredited, pseudoscientific treatments and to frame people with ME as violent activists. The article was also picked up in the New York Post, who re-published the content uncritically. #MEAction ...

Denmark: MPs will Vote whether to Recognise ME as WHO-defined disease!  

/ by / 0 Comment
This past Tuesday, March 12, Danish Health MPs unanimously agreed on a declaration that will recognise myalgic encephalomyelitis (ME) as a distinct disease, remove it from the "functional somatic syndromes" category, and promote the World Health Organization (WHO) diagnostic codes for ME. Parliament will vote on the declaration this Thursday, March
Photo of student taking notes

Australia: School Study on Teenagers with Chronic Fatigue Syndrome

/ by / 0 Comment
A recent study of Australian teenagers with chronic fatigue syndrome found CFS impacted their development of academic, cognitive and social skills. Students with CFS missed an average of 42% of classes over a term, 37% more than their healthy peers. The study recommends school staff be trained to understand chronic
Photo of Professor Don Staines

Meet the Scientists: Australia’s Prof. Don Staines

/ by / 0 Comment
‘Meet the Scientists’ is a series of interviews with researchers working on ME and chronic fatigue syndrome. We ask them about their current research and get to meet the people working to improve our health. The series introduces early career researchers through to interviewing scientists and clinicians who have been working

Denmark Parliament Holds Query on ME

/ by / 2 Comments
#MEAction supports people with ME in Denmark today as the Danish Parliament discusses the treatment of people with myalgic encephalomyelitis (ME). On Tuesday, March 12th a query about the treatment of people with ME will take place in the Danish Parliament. The question being asked is: What initiatives does the government

Plan for #MillionsMissing Now! Read the Toolkit!

/ by / 0 Comment
#MillionsMissing 2019 is fast approaching, and now is the time to get started! Demonstrations calling for health equality for Myalgic Encephalomyelitis (ME) will take place around the globe throughout the week of May 5th - 12th, 2019. We are only two months away! How will you join the movement? Check out

Here’s What to Expect for ME Advocacy Day 2019

/ by / 0 Comment
Last day to register to attend Advocacy Day in Washington, DC on April 2-3rd! If you are wondering if attending Advocacy Day is for you, here is a document that breakdowns what those two days will look like. The document provides steps to take when planning for the trip and a
Look@ME fundraiser #MEAction

Amazing Look@ME fundraiser in the UK!

/ by / 2 Comments
On 3rd, February 2019, Look@ME held a supper quiz in North London to raise awareness for myalgic encephalomyelitis (ME). Look@ME is a committee of family and friends coming together to raise awareness for ME. Over 200 people attended this special dinner and quiz night which was inspired by festive quizzes held at

Advocate for ME on the Hill! Only One Week left to Register!

/ by / 4 Comments
You still have one week left to register for Advocacy Day 2019 in Washington, DC! You may be trying to decide whether or not you should come (and, please, put your health first) or send a loved one in your place, so we thought we would ask some people who have attended about

Announcing #MillionsMissing 2019! Join us!

/ by / 4 Comments
Listen to the article:   We are thrilled to announce #MillionsMissing 2019! This May, we will take to the streets - or demonstrate from our beds - to show the world we are here, we are the #MillionsMissing, we will continue to fight for our demands for people with myalgic encephalomyelitis (ME).

Get involved: support science and advocacy this April

/ by / 0 Comment
April is going to be an incredibly exciting month for advocacy and for research into ME! The NIH is hosting a conference on ME in early April along with a Young Investigators Workshop specifically geared towards early-career investigators with interest in ME.  Concurrently, there will be a Congressional lobbying push hosted

Enrolling: Harvard brain scan PEM study — local only

/ by / 0 Comment
Who:  Michael VanElzakker, PhD, Massachusetts General Hospital/ Harvard Medical School is looking for participants living in, or near the Boston area to join his study. What:  Participants will rest on their backs in a high-resolution MRI machine that is capable of measuring both the concentrations of certain chemicals and the movement of oxygenated

Amy Carlson – an Ally to the ME Community

/ by / 0 Comment
Listen to the article:   Allies are critical to the success of any movement and even more so in the case of people with myalgic encephalomyelitis (ME). So many people with ME are bedridden or housebound and unable to participate in some advocacy and activist actions. While we at #MEAction work hard