#MEAction has created a range of tools to assist you with your advocacy work, including brochures and how-to guides for lobbying your representative for ME, procuring a resolution for ME, and speaking to the press. We’ve also collected a list of reports to inform you about the facts of ME – including its prevalence, disease burden and impact. Read our science summary to learn about the ongoing research, and find information about how Graded Exercise Therapy is harmful to people with ME. 


MEPedia is an excellent place to learn everything about the history, science and medicine of ME, CFS, and related diseases.

Everyone can contribute to MEpedia! Anyone can create pages, write content, add links/citations, fact-check, or even just fix typos. Everyone has something to offer, whatever your skills & experience, even if you have never edited a wiki (like Wikipedia) before. Get involved and help the patient community identify all of the best and most important resources for our disease and its research, treatment and history. Jump in!  Join the Facebook Group.

Connect with our Community Organizer:

Make an appointment with our Community Organizer, Ben HsuBorger, to discuss strategy for your advocacy work, learn how #MEAction can help amplify your efforts, connect to other activists and find resources. Sign up for a 15-minute appointment here.

Subscribe to our newsletter to keep updated about research, advocacy news and actions.

Jump to the following:

Toolkits & guides
     Brochures & Branding

    Reports and Fact Sheets





Congressional Advocacy toolkit |MillionsMissing toolkit | Local advocacy toolkits

How-to Guides

Launch a petition | Make your petition a success Organize a Protest | Talk to the Press about ME | Get a City or State Proclamation for ME

Case Studies and Great Ideas

Learn from our movement’s most successful examples and the examples of other movements.


We have created trifold brochures that you can print and distribute. (Best printed in color. If printing at home, print inside version first, select landscape orientation, print, flip and put back into the printer with the print facing up, print outside version.) 

About ME (general audience) –  inside and outside | I have ME. What’s Next. (For people who think they might have ME.) – inside and outside | A guide for Caregivers – inside and outside | #MillionsMissing leaflet (general, US & UK)


#MillionsMissing posters | Logos | #MEAction style guide | Facebook Tiles | Social media graphics   

Reports and Fact Sheets

Use these fact sheets for education and advocacy. Learn the facts about Myalgic Encephalomyelitis. Read the reports. Delve into the science. Use this information for your advocacy work.

If you are a scientist or science writer, get involved in developing accurate materials to educate the medical field.

#MEAction ME/CFS Research Summary | Disease burden of ME | Prevalence spreadsheet by state (US) |

Reports on Graded Exercise Therapy | View more reports


Photography | Films and books | Press Coverage | Video | Music