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From Bob and Courtney Miller: We are excited to share news that the NIH has elevated its research approach
Editor’s note – this is an emerging news story. Edits will continue to be made to this page as
Editor’s note: Michael Evison of ME Alliance has written this letter to the Danish prime minister about Karina Hansen’s case and
Uniting the ME/CFS community is not easy, but it has never been more important than right now. One thing
Maka a video about ME and make a fuss! (Australia)
The Open Medicine Foundation has just begun a fundraising campaign to raise $8.3K in donations and have it matched 3:1, which will result in $25K + $8.3 = $33.3K!
In the US? Find your state and sign the petition. Not in the US? Sign the global solidarity petition.
I’m working with a national M.E. charity, Action for M.E., as their Volunteer Pharmacist, providing information about pharmacy services, writing health
The Tragic Neglect of Chronic Fatigue Syndrome With a surprisingly broad-ranging and detail-rich article by Olga Khazan entitled “The
Vote DAILY For National ME/FM Action Network To Win $100K In Aviva Contest For Research Of ME And FM!
Vote DAILY between October 6-23, 2015 in the Aviva contest to help the National ME/FM Action Network in Canada win up to $100,000 for research of ME and FM.
USA’s CFS Advisory Committee wants bigger research, aimed at finding diagnostic tests, using Canadian Consensus Criteria and private-public partnerships to find drug treatments. It asks for $250 million annually, estimating ME/CFS costs the US up to $24 billion.
Written by Brent Handel Originally published in The Lawyers Weekly June 26 2015 issue, reprinted with permission Chronic fatigue
New Australian study shows immune difference in moderate and severe patients. It may lead to a test based on these markers.
Stuart Murdoch talking openly about his experiences of M.E., Los Angeles, August 2015 “This is a pop band that
The UK CFS/ME Research Collaborative People with M.E. need better treatment and support. This can only be achieved through
Bestselling Author John Connolly’s Latest Novel Features Girl with ME/CFS “I know some people with ME, and tried hard
It will take more than people with ME/CFS to achieve a world free of ME/CFS. It will take a committed team of many rallying together to effect change – Families, loved ones and friends coming together to make a difference and fund progress. Join Team Solve and help us Solve ME/CFS!
AIDS Research took a death sentence and made it a manageable disease. ME-CFS needs the same level of effort
A month ago, patient advocate Jennifer Spotila discovered that the U.S. Senate was proposing to zero-out the ME/CFS budget at the
The Open Medicine Foundation’s (OMF) Severely Ill Patient Big Data study is now fully funded with $1 million in private research funding thanks to a groundswell of crowdfunding efforts and several generous donations by anonymous donors!
Very little research has been done in the bedbound patients “Hopefully, the more severely ill will have a stronger signal of what’s going wrong.”
The VideoHealth study is currently in its final months of national recruitment for participants and is seeking to enroll eligible patients and their partners. For more information please call 305-355-9200 and press option 5, or email us at [email protected].