#DisabilityPrideMonth: Listen to The Century Foundation’s podcast Off-Kilter

A charcoal grey flag with a diagonal band from the top left to bottom right corner, made up of five parallel stripes in red, gold, pale grey, blue, and green
Disability Pride Month Flag designed by Ann Magill, a disabled woman, with feedback within the disabled community to refine its visual elements

As part of #DisabilityPrideMonth, The Century Foundation’s podcast Off-Kilter has been hosting a series of conversations featuring Disability Economic Justice Collaborative* members and other leaders from the disability community. #MEAction board member Ryan Prior is a guest on the two-part Off-Kilter ADA 2022 Special that dives “into the picture for the millions of Americans now living with Long COVID, the incredible patient advocacy led by COVID long-haulers across the country, and how patient advocates with other chronic illnesses like myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) are teaming up with COVID long-haulers to push for research, policy change, and more.”

Part 1: “The Long Haul”: Inside the Patient Advocacy Revolution of the COVID Era
Rebecca Vallas, senior fellow and co-director of DEJC, speaks with Lisa McCorkell, cofounder of the Patient Led Research Collaborative; Netia McCrery, education director at the COVID-19 Longhauler Advocacy Project; and Ryan Prior, a journalist, a board member of #MEAction and author of The Long Haul. 

Part 2: “The Long Haul”: How Long COVID Fits Into Disability Policy
The conversation continues “to dig into the U.S. policy response thus far on long COVID, the urgent need for research, how long COVID fits into the larger conversation about disability and disability policy and more.” Ryan Prior of #MEAction is joined by Kim Knackstedt, a senior fellow at TCF, co-director of the Disability Economic Justice Collaborative, and who until recently served as director of disability policy at the White House.

*#MEAction is proud to be a member of The Disability Economic Justice Collaborative. This collaborative is a first-of-its-kind initiative that brings together two-dozen leading disability advocacy organizations, Washington, D.C.-based think tanks, and top research organizations. The collaborative is committed to breaking the persistent link between disability and poverty, and to finally achieving economic justice for disabled Americans more than three decades after the Americans with Disabilities Act (ADA) became law.

Facebook
Twitter
WhatsApp
Email

Latest News

hunter green rectangle image with fall leaves around the boarder. in the center the #meaction logo and the words, What we are thankful for

#MEAction Gives Thanks

We have come to the time of year, where we focus on what we are thankful for and what has made a difference in our lives. At #MEAction we will always be thankful for this amazing community, for you truly are OUT OF THIS WORLD! With this focus, #MEAction staff share what they are most

Read More »
square image with a white stars on a black background. there is a key image with a heart shape at the top of the key. the words, community is key underneath image. #MEAction logo at bottom of the image.

Community is Key

#MEAction knows COMMUNITY IS KEY! It is through community that we find strength and feel fully seen and heard by others who know our struggles. When challenges come our way, this community has shown us over and over again that we are stronger together. “#MEAction’s community has made sense of this nonsense world of chronic

Read More »
black rectangle with white squiggles in the background. red bubbles and honeycomb in the corners. in the middle a red box that reads: #MEAction & the Mayo Clinic awarded the Sigma 2024 American Nurses Credentialing Center Evidence-Based Practice Implementation Grant. #MEAction logo in the bottom right hand corner

#MEAction & Mayo Clinic Projects Continue – New Grant Awarded

Given the rapidly changing landscape at the federal level, we recognize that the road ahead may bring some changes for patient advocacy. Even in this evolving environment, we’re excited to share some positive news: #MEAction and the Mayo Clinic have been awarded the Sigma 2024 American Nurses Credentialing Center Evidence-Based Practice Implementation Grant awarded by

Read More »
Scroll to Top