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#MEAction Sends Press Release About #MillionsMissing

#MEAction sent out a press release last week to alert media to the #MillionsMore developing ME following COVID-19.  We invited 651 journalists in the U.S and 552 journalists in the U.K. to join our #MillionsMissing event this Wednesday, May 12th.  Before COVID-19 long haulers there were the #MillionsMissing… Read the US Press Release Read the

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Screenshot showing 4 of the panelists on a Zoom screen with a red paly button in the middle and the MEACtion logo in the corner

Telebriefing was a success!

We were thrilled at the outcome of the #MEAction press briefing last week where we invited a panel of experts to discuss the intersection between long COVID and myalgic encephalomyelitis (ME) to the media. The panelists made it crystal clear that a subset of long haulers are meeting the criteria for ME, and that it

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Headshots of panel with wording to the side about date and time.

Press Telebriefing: long COVID & ME

When: Thursday, March 25, 12 p.m. PT / 3 p.m. ET  Contact: Adriane Tillman, #MEAction, [email protected]  MEDIA Advisory: A Panel of Experts to Explain How Long COVID Intersects with ME/CFS    On March 25, #MEAction will host a telepresser featuring a panel of experts who are uniquely positioned to speak to how long COVID is

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photo of a person holding mobile phone showing news

Meet the Long Haulers Developing ME/CFS

#MEAction sent out a press release last week to 300 major publications in the US introducing them to the long haulers who are experiencing symptoms of myalgic encephalomyelitis (ME), specifically post-exertional malaise. We alerted the press to the terrifying possibility that 1 million more Americans could develop ME following COVID-19 at the current rate of

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Researchers Say COVID-19 Will Lead to Surge in Chronic Illness, ME Sufferers Speak Out.

Researchers Say COVID-19 Will Lead to Surge in Chronic Illness, ME Sufferers Speak Out. FOR IMMEDIATE RELEASE:Contact: Adriane Tillman [email protected] Some post-COVID patients are not recovering as expected, and researchers are predicting the pandemic will lead to a surge in long-term chronic illness, including an uptick in cases of myalgic encephalomyelitis (ME  – also known as

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ME/CFS Protesters Interrupt House Appropriations Hearing

ME/CFS Protesters Interrupt House Appropriations Hearing FOR IMMEDIATE RELEASE:Contact: Adriane Tillman [email protected] Today, #MEAction protesters wearing red #millionsmissing t-shirts interrupted NIH Director Dr. Francis Collins’s opening statement to the House Appropriations LHHS Subcommittee hearing to demand the NIH take urgent, comprehensive action to stem the crisis of ME/CFS that has been growing unchecked for more than three decades. 

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UK Parliament will debate ME in historic House of Commons debate

UK PARLIAMENT WILL DEBATE ME IN HISTORIC HOUSE OF COMMONS DEBATE FOR IMMEDIATE RELEASE Parliament has announced that it will debate the treatment and funding of patients with myalgic encephalomyelitis (ME), a debilitating and serious, multi-systemic disease. The ME debate will take place in the Main Chamber on Thursday afternoon, 24th January. This debate follows

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ACTIVISTS PROTEST SPEAKER AT COLUMBIA UNIVERSITY CONFERENCE

ACTIVISTS PROTEST SPEAKER AT COLUMBIA UNIVERSITY CONFERENCE Human Rights Abuser Per Fink is Not Welcome in New York  Follow the story at: @meactnet and #ScienceNotStigma FOR IMMEDIATE RELEASE October 18, 2018- New York, NY Activists with NY #MEAction  will converge on Columbia University Saturday, October 20that 8:00 a.m. to protest Danish Physician Per Fink’s appearance at the 4thColumbia

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Meet the Millions Missing – Protest to Raise Awareness of ME in Scotland

Press Release  Details of the Event Millions Missing Edinburgh protest is being held from 1200-1400 on Friday 12th May outside the Scottish Parliament to raise awareness of Myalgic Encephalomyelitis  (ME – sometimes called Chronic Fatigue Syndrome) and the devastating impact it has on tens of thousands of people in Scotland.  Protests are being held in

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#MEAction Denounces Use of CBT in Treatment for Chronic Fatigue Syndrome

FOR IMMEDIATE RELEASE: Wednesday, November 2, 2016 CONTACT: L.A. Cooper |[email protected] and [email protected]   #MEAction Denounces Use of CBT in Treatment for Chronic Fatigue Syndrome Patients with ME/CFS Urge NHS to Adopt Scientifically-Sound Approaches to Treatment Study Finds No Difference in Treatment for ME/CFS Patients At Long-Term Follow-Up According to reports in The Guardian and

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#MillionsMissing Holland protest
 against social exclusion

Worldwide protest of patients with ME against social exclusion After being ignored for years and being excluded from participation in society, ME patients have had more than enough of it. With a virtual march on social media and demonstrations from America to Australia patients call for recognition of their disease and demand care and research.

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Washington DC Residents Protest Lack of Support for Patients Suffering with Myalgic Encephalomyelitis / Chronic Fatigue Syndrome

MEDIA ADVISORY FOR:  Tuesday, September 27, 2016 CONTACT: Anna Zuccaro | +1-914-523-9145 | [email protected] TUESDAY 4PM: DC Residents Protest Lack of Support for Patients Suffering with Myalgic Encephalomyelitis / Chronic Fatigue Syndrome Thousands Worldwide Join an International Day of Action Urging Public Health Officials to Ramp Up Funding for ME/CFS Research, Clinical Trials and Education

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Seattle Residents Protest Lack of Support for Patients Suffering with Myalgic Encephalomyelitis / Chronic Fatigue Syndrome

MEDIA ADVISORY FOR:  Tuesday, September 27, 2016 CONTACT:  Anna Zuccaro | +1-914-523-9145 | [email protected] TUESDAY 12PM: Seattle Residents Protest Lack of Support for Patients Suffering with Myalgic Encephalomyelitis / Chronic Fatigue Syndrome Thousands Worldwide Join an International Day of Action Urging Public Health Officials to Ramp Up Funding for ME/CFS Research, Clinical Trials and Education

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SF Bay Area Residents Rally Demanding Support for Patients Suffering with Myalgic Encephalomyelitis / Chronic Fatigue Syndrome

MEDIA ADVISORY FOR:  Tuesday, September 27, 2016 CONTACT:  Anna Zuccaro | +1-914-523-9145 | [email protected] TUESDAY 11AM: Bay Area Residents Rally Demanding Support for Patients Suffering with Myalgic Encephalomyelitis / Chronic Fatigue Syndrome Thousands Worldwide Join an International Day of Action Urging Public Health Officials to Ramp Up Funding for ME/CFS Research, Clinical Trials and Education

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Pittsburgh Residents Rally Demanding Support for Patients Suffering with Myalgic Encephalomyelitis / Chronic Fatigue Syndrome

MEDIA ADVISORY FOR:  Tuesday, September 27, 2016 CONTACT:  Anna Zuccaro | +1-914-523-9145 | [email protected] TUESDAY 11AM: Pittsburgh Residents Rally Demanding Support for Patients Suffering with Myalgic Encephalomyelitis / Chronic Fatigue Syndrome Thousands Worldwide Join an International Day of Action Urging Public Health Officials to Ramp Up Funding for ME/CFS Research, Clinical Trials and Education Myalgic

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NYC Activists Protest Lack of Support for Patients Battling with Myalgic Encephalomyelitis

MEDIA ADVISORY FOR:  Tuesday, September 27, 2016 CONTACT:  Madison Donzis | [email protected] | (210) 488-6220 TUESDAY 4:30PM: NYC Activists Protest Lack of Support for Patients Battling with Myalgic Encephalomyelitis Thousands Worldwide Join In Protests Urging Public Health Officials to Ramp Up Funding for ME/CFS Research, Clinical Trials and Education Myalgic Encephalomyelitis is a Neuroimmune Disease

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Michigan Residents Protest Lack of Support for Patients Suffering with Myalgic Encephalomyelitis / Chronic Fatigue Syndrome

MEDIA ADVISORY FOR:  Tuesday, September 27, 2016 CONTACT:  Madison Donzis | [email protected] | (210) 488-6220 TUESDAY 12PM:  Michigan Residents Protest Lack of Support for Patients Suffering with Myalgic Encephalomyelitis / Chronic Fatigue Syndrome Thousands Worldwide Join an International Day of Action Urging Public Health Officials to Ramp Up Funding for ME/CFS Research, Clinical Trials and

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Dallas Residents Voice Lack of Support for Patients Suffering with Myalgic Encephalomyelitis / Chronic Fatigue Syndrome

MEDIA ADVISORY FOR:  Tuesday, September 27, 2016 CONTACT:  Madison Donzis | [email protected] | (210) 488-6220 TUESDAY 12PM:  Dallas Residents Voice Lack of Support for Patients Suffering with Myalgic Encephalomyelitis / Chronic Fatigue Syndrome Thousands Worldwide Join an International Day of Action Urging Public Health Officials to Ramp Up Funding for ME/CFS Research, Clinical Trials and

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Chicago Residents Protest Lack of Support for Patients Suffering with Myalgic Encephalomyelitis / Chronic Fatigue Syndrome

MEDIA ADVISORY FOR:  Tuesday, September 27, 2016 CONTACT:  Madison Donzis | [email protected] | (210) 488-6220 TUESDAY 11:30AM:  Chicago Residents Protest Lack of Support for Patients Suffering with Myalgic Encephalomyelitis / Chronic Fatigue Syndrome Thousands Worldwide Join an International Day of Action Urging Public Health Officials to Ramp Up Funding for ME/CFS Research, Clinical Trials and

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Boston Residents Protest Lack of Support for Patients Suffering with Myalgic Encephalomyelitis / Chronic Fatigue Syndrome

MEDIA ADVISORY FOR:  Tuesday, September 27, 2016 CONTACT:  Madison Donzis | [email protected] | (210) 488-6220 TUESDAY 12PM: Boston Residents Protest Lack of Support for Patients Suffering with Myalgic Encephalomyelitis / Chronic Fatigue Syndrome Thousands Worldwide Join an International Day of Action Urging Public Health Officials to Ramp Up Funding for ME/CFS Research, Clinical Trials and

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