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#MEAction Swinging Through The Press Jungle
Welcome to the jungle, the press jungle! It’s hot and noisy here, with news fresh off the press. Trying to get the attention of the media is not as impossible as legend had it! This is Adriane, and as your Press Scribe, I’m here to write our way through this next adventure and make sure
Thousands living with chronic illness ME are listened to after years of fighting to be heard – Press Release
Press Release After 14 years of recommending graded exercise therapy to people with myalgic encephalomyelitis (ME), the National Institute for Health and Care Excellence (NICE) has removed this harmful treatment from its new guideline on ME/CFS, released today. Sian Leary, spokesperson for #MEAction UK, highlights the importance of the new guideline: “This is a huge
Where Does Your Donation Go?
Do you ever wonder where your money goes when donating to your favorite charity? We certainly do! Why? Because we want to make sure that every gift we receive generates the greatest impact in our collective fight for research, medical education, and public recognition of myalgic encephalomyelitis/chronic fatigue syndrome. This is why we wanted to
Fury as NICE cancels publication of finalised ME/CFS guideline
There is widespread anger in the ME community today as NICE announced that it will not be publishing their finalised guideline on ME/CFS after pressure from sections of the medical establishment. At #MEAction UK, we are furious that NICE have capitulated to vested interests of those who support graded exercise therapy instead of defending their
#MEAction Sends Press Release About #MillionsMissing
#MEAction sent out a press release last week to alert media to the #MillionsMore developing ME following COVID-19. We invited 651 journalists in the U.S and 552 journalists in the U.K. to join our #MillionsMissing event this Wednesday, May 12th. Before COVID-19 long haulers there were the #MillionsMissing… Read the US Press Release Read the
Telebriefing was a success!
We were thrilled at the outcome of the #MEAction press briefing last week where we invited a panel of experts to discuss the intersection between long COVID and myalgic encephalomyelitis (ME) to the media. The panelists made it crystal clear that a subset of long haulers are meeting the criteria for ME, and that it
Press Telebriefing: long COVID & ME
When: Thursday, March 25, 12 p.m. PT / 3 p.m. ET Contact: Adriane Tillman, #MEAction, [email protected] MEDIA Advisory: A Panel of Experts to Explain How Long COVID Intersects with ME/CFS On March 25, #MEAction will host a telepresser featuring a panel of experts who are uniquely positioned to speak to how long COVID is
U-Turn on ME/CFS Guidelines Could Help Long Covid Patients – Press Release
Harmful graded exercise therapy for people with ME has been dropped in a new draft ME/CFS guideline from the National Institute for Health and Care Excellence (NICE).
Long COVID Patients Warned of Damaging Exercise Programme
#MEAction UK is highlighting the links between “Long Covid” and ME in the press. In particular, we want people at risk to know about the danger of exercise if they have post-exertional malaise.
Meet the Long Haulers Developing ME/CFS
#MEAction sent out a press release last week to 300 major publications in the US introducing them to the long haulers who are experiencing symptoms of myalgic encephalomyelitis (ME), specifically post-exertional malaise. We alerted the press to the terrifying possibility that 1 million more Americans could develop ME following COVID-19 at the current rate of
Researchers Say COVID-19 Will Lead to Surge in Chronic Illness, ME Sufferers Speak Out.
Researchers Say COVID-19 Will Lead to Surge in Chronic Illness, ME Sufferers Speak Out. FOR IMMEDIATE RELEASE:Contact: Adriane Tillman [email protected] Some post-COVID patients are not recovering as expected, and researchers are predicting the pandemic will lead to a surge in long-term chronic illness, including an uptick in cases of myalgic encephalomyelitis (ME – also known as
DISCREDITED VIRUS RESEARCHER PUSHES CORONAVIRUS DISINFORMATION
FOR IMMEDIATE RELEASE Contact InfoLaurie [email protected] A new viral video claiming to be an excerpt from a forthcoming documentary, Plandemic, is the latest in a growing number of Covid-19 disinformation efforts. In it and other videos, discredited virus researcher, Dr. Judy Mikovits, claims among other things that Covid-19 is a manmade virus that cannot be
ME/CFS Protesters Interrupt House Appropriations Hearing
ME/CFS Protesters Interrupt House Appropriations Hearing FOR IMMEDIATE RELEASE:Contact: Adriane Tillman [email protected] Today, #MEAction protesters wearing red #millionsmissing t-shirts interrupted NIH Director Dr. Francis Collins’s opening statement to the House Appropriations LHHS Subcommittee hearing to demand the NIH take urgent, comprehensive action to stem the crisis of ME/CFS that has been growing unchecked for more than three decades.
UK Parliament will debate ME in historic House of Commons debate
UK PARLIAMENT WILL DEBATE ME IN HISTORIC HOUSE OF COMMONS DEBATE FOR IMMEDIATE RELEASE Parliament has announced that it will debate the treatment and funding of patients with myalgic encephalomyelitis (ME), a debilitating and serious, multi-systemic disease. The ME debate will take place in the Main Chamber on Thursday afternoon, 24th January. This debate follows
ACTIVISTS PROTEST SPEAKER AT COLUMBIA UNIVERSITY CONFERENCE
ACTIVISTS PROTEST SPEAKER AT COLUMBIA UNIVERSITY CONFERENCE Human Rights Abuser Per Fink is Not Welcome in New York Follow the story at: @meactnet and #ScienceNotStigma FOR IMMEDIATE RELEASE October 18, 2018- New York, NY Activists with NY #MEAction will converge on Columbia University Saturday, October 20that 8:00 a.m. to protest Danish Physician Per Fink’s appearance at the 4thColumbia
#MEACTION REJECTS SMILE TRIAL OF THE LIGHTNING PROCESS FOR CHRONIC FATIGUE SYNDROME
FOR IMMEDIATE RELEASE: 21/09/17 CONTACT: [email protected] #MEAction Rejects the Findings of the SMILE Trial of The Lightning Process for Chronic Fatigue Syndrome Trial Uses Flawed Methodology That Can Lead To False Positives Following the release of the results of the SMILE trial, Ben HsuBorger of ME Action said: “The SMILE trial of the Lightning Process, a
Meet the Millions Missing – Protest to Raise Awareness of ME in Scotland
Press Release Details of the Event Millions Missing Edinburgh protest is being held from 1200-1400 on Friday 12th May outside the Scottish Parliament to raise awareness of Myalgic Encephalomyelitis (ME – sometimes called Chronic Fatigue Syndrome) and the devastating impact it has on tens of thousands of people in Scotland. Protests are being held in
#MEAction Denounces Use of CBT in Treatment for Chronic Fatigue Syndrome
FOR IMMEDIATE RELEASE: Wednesday, November 2, 2016 CONTACT: L.A. Cooper |[email protected] and [email protected] #MEAction Denounces Use of CBT in Treatment for Chronic Fatigue Syndrome Patients with ME/CFS Urge NHS to Adopt Scientifically-Sound Approaches to Treatment Study Finds No Difference in Treatment for ME/CFS Patients At Long-Term Follow-Up According to reports in The Guardian and
#MillionsMissing Holland protest against social exclusion
Worldwide protest of patients with ME against social exclusion After being ignored for years and being excluded from participation in society, ME patients have had more than enough of it. With a virtual march on social media and demonstrations from America to Australia patients call for recognition of their disease and demand care and research.
Washington DC Residents Protest Lack of Support for Patients Suffering with Myalgic Encephalomyelitis / Chronic Fatigue Syndrome
MEDIA ADVISORY FOR: Tuesday, September 27, 2016 CONTACT: Anna Zuccaro | +1-914-523-9145 | [email protected] TUESDAY 4PM: DC Residents Protest Lack of Support for Patients Suffering with Myalgic Encephalomyelitis / Chronic Fatigue Syndrome Thousands Worldwide Join an International Day of Action Urging Public Health Officials to Ramp Up Funding for ME/CFS Research, Clinical Trials and Education
Seattle Residents Protest Lack of Support for Patients Suffering with Myalgic Encephalomyelitis / Chronic Fatigue Syndrome
MEDIA ADVISORY FOR: Tuesday, September 27, 2016 CONTACT: Anna Zuccaro | +1-914-523-9145 | [email protected] TUESDAY 12PM: Seattle Residents Protest Lack of Support for Patients Suffering with Myalgic Encephalomyelitis / Chronic Fatigue Syndrome Thousands Worldwide Join an International Day of Action Urging Public Health Officials to Ramp Up Funding for ME/CFS Research, Clinical Trials and Education
SF Bay Area Residents Rally Demanding Support for Patients Suffering with Myalgic Encephalomyelitis / Chronic Fatigue Syndrome
MEDIA ADVISORY FOR: Tuesday, September 27, 2016 CONTACT: Anna Zuccaro | +1-914-523-9145 | [email protected] TUESDAY 11AM: Bay Area Residents Rally Demanding Support for Patients Suffering with Myalgic Encephalomyelitis / Chronic Fatigue Syndrome Thousands Worldwide Join an International Day of Action Urging Public Health Officials to Ramp Up Funding for ME/CFS Research, Clinical Trials and Education
Pittsburgh Residents Rally Demanding Support for Patients Suffering with Myalgic Encephalomyelitis / Chronic Fatigue Syndrome
MEDIA ADVISORY FOR: Tuesday, September 27, 2016 CONTACT: Anna Zuccaro | +1-914-523-9145 | [email protected] TUESDAY 11AM: Pittsburgh Residents Rally Demanding Support for Patients Suffering with Myalgic Encephalomyelitis / Chronic Fatigue Syndrome Thousands Worldwide Join an International Day of Action Urging Public Health Officials to Ramp Up Funding for ME/CFS Research, Clinical Trials and Education Myalgic
NYC Activists Protest Lack of Support for Patients Battling with Myalgic Encephalomyelitis
MEDIA ADVISORY FOR: Tuesday, September 27, 2016 CONTACT: Madison Donzis | [email protected] | (210) 488-6220 TUESDAY 4:30PM: NYC Activists Protest Lack of Support for Patients Battling with Myalgic Encephalomyelitis Thousands Worldwide Join In Protests Urging Public Health Officials to Ramp Up Funding for ME/CFS Research, Clinical Trials and Education Myalgic Encephalomyelitis is a Neuroimmune Disease