#MEAction Continues to Get Press for ME

#MEAction continues to prioritize getting ME in the press. We are very thankful to be featured in USA Today, North Jersey, New York Times, Infection Control Today, Times-Herald and Well+Good, all in the last few weeks! 

Our press reach continues to focus on multiple audiences, including scientists and medical practitioners, the disability and chronic illness community, and the general public. 

Good press matters and it affects our advocacy. Bad press matters too because it allows us to correct and educate journalists (or those interviewed if they get it wrong)- and we do! We are contacting every single journalist writing about Long COVID to educate them about ME. To date, we’ve contacted over 2,385 journalists about ME. 

In case you missed the publications, we encourage you to read and share with your networks. 

To read the articles, click on one of the images below.

Press is a crucial part of mobilizing a growing community and ensuring that people with ME get the treatment and care they deserve. 

Onward,
Laurie, Ben, Holly, Erin, Jaime, and Steven

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greyish rectangle image with the words: #MEAction is Excited to Announce: Pillow Writers Anthology Issue 1: Near-Life Experiences. In a small grey square the words Get Your Copy Today! with a black line underneath. On the right hand side of the square is the image of the book cover that has a water color of flowers. the #meaction logo is at the bottom of the image.

Pillow Writers Anthology, Issue 1: Near-Life Experiences Available Now!

The Pillow Writers Anthology, Issue 1: Near- Life Experiences is a new literary magazine in the disability community. This inaugural issue features poems, stories, and essays by 17 writers who call themselves the Pillow Writers. The Pillow Writers are an international group of writers living with the neuro-immune diseases of myalgic encephalomyelitis (ME) and Long

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#MEAction UK’s email/letter to Andrew Gwynne MP

To: Andrew Gwynne, Under Secretary of State for Public Health and Prevention Subject: Treatment of Very Severe ME  email [email protected] Dear Andrew Gwynne,  Thank you for being an ally to people with ME  (myalgic encephalomyelitis) and Long Covid and committing to ensuring publication of the DHSC ME/CFS Delivery Plan without more delay.  We trust your

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