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On June 3rd the CDC held its latest MECFS Stakeholder Engagement and Communication (SEC) Webinar/Conference Call with the ME
#MEAction has announced two CDC-related advocacy actions today and yesterday. We are asking you to contact your Senators to
Jack Croxall is an author, scriptwriter and blogger living in Nottinghamshire, UK. He fights ME both in life and
Listen to the article: #MEAction co-founder, Jennifer Brea, wrote this letter to the community about her remission of
The story so far NINDS, the National Institute for Neurological Disorder and Stroke at the NIH has solicited an RFI,
#MillionsMissing – organised by #MEAction – has been such a successful campaign this year, and we thank everyone in
It has been a big week, with over 100 public and virtual events happening across the world! We are
Erica Verrillo is the president of the American ME and CFS Society, a 501(c)(3) nonprofit. May is the month
Simmaron Research is conducting a one-of-a-kind study to analyze data from ME/CFS patients who respond to treatments like Ampligen®, IVIG, and cidofovir, and we need your help funding this data analysis! Our goal is to publish peer-reviewed data to stimulate treatment trials and inform rigorous trial design ASAP!
***UPDATE: THIS ACTION IS NOW OVER*** Please contact your SENATORS and urge them to co-sponsor a ME/CFS Awareness
Australians with ME/CFS are routinely rejected from the country’s National Disability Insurance Scheme (NDIS), because the Australian government doesn’t consider ME/CFS to be a permanent condition for most living with the illness. Sign this petition to support Aussies with ME/CFS and demand policy change!
Myalgic encephalomyelitis (ME) is a debilitating, chronic disease that steals so much from the person. Parents with ME are
NINDS, the National Institute for Neurological Disorder and Stroke at the NIH has solicited an RFI, or a Request
Join the protest virtually during #MillionsMissing – May 5th to May 12th Use the hashtag: #MillionsMissing Start sharing photos
Senator Jordon Steele-John has announced the Australian Greens’ policy on Myalgic Encephalomyelitis (ME) and Chronic Fatigue Syndrome (CFS), planning to
#MEAction Medical Travel Scholarship Because of the generous donation from a private family foundation, #MEAction has been able
In January 2019, a survey investigating the impact of graded exercise therapy (GET) and cognitive behavioural therapy (CBT) for
Listen to the recording: #MEAction UK Lay Summary of the 2019 Forward ME Group CBT & GET Survey Topline
***UPDATE: THIS ACTION IS NOW OVER*** Senator Markey is currently asking for support from his fellow Senators for TWO
Erica Verrillo is President of the American ME and CFS Society (AMMES) When I was a child, my mother
Australia’s Health Minister Greg Hunt has today announced $3M for research into ME/CFS. Minister Hunt notes that “funding will be provided through the National Health and Medical Research Council (NHMRC) to help researchers develop a better understanding of the cause and condition of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). Diagnosis of ME/CFS is difficult, with no diagnostic test and a diverse range of symptoms. Research will drive a better understanding of the condition along with its causes and the mechanisms that lead to its debilitating symptoms.”
Last week, Dr. Mark Porter wrote an article in The Times under the headline, “Treatment for chronic fatigue syndrome
The Workwell Foundation issued the press release below about its meta-analysis of 20 years of studies that shows “overwhelming evidence” of chronotropic
Last week was a difficult time for the ME community as we watched a few journalists deride and dismiss
Today, exactly a year ago, a report by the Dutch Health council expressed the urgent message that immediate intervention is required regarding ME. And last December the current Minister of Medical Care, Bruno Bruins, stated that he would be following up on all accounts. As someone dealing with ME, I am eagerly awaiting the rest of this project, hoping to live a less restricted life.