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This is an exciting time for ME advocacy in Boston, Massachusetts. We are preparing for our November 12th, Sunday
The Solve ME/CFS Initiative (SMCI) announced the recipients of the 2017 Ramsay Award Program on Tuesday. The Ramsay Award Program, now in its second year, is a competitive grant that funds ME/CFS researchers at every stage of their careers. The five winning proposals receive one year of funding to research a diverse range of topics including immunology, bioenergetics, metabolomics, microbiome and neuroendocrine biology. The awardees hail from six different countries across the globe.
This past spring I attended a screening for Unrest at the Ted Rogers Cinema in Toronto. Something powerfully transformative happened during the screening. Something that can’t be articulated in a review.
Our November and December schedule for the Living w/ ME Support Group has just been announced. Sunday, November 12:
The Stanford Medicine X conference is offering a scholarship to attend the April 28-29, 2018 conference, and receive funding for
The Solve ME/CFS Initiative (SMCI) held its second annual Discovery Forum Saturday October 14. The forum dubbed “a new era in ME/CFS research” brought together leaders from academia, government agencies, private clinics, biotech and research institutions to discuss developments in the field of ME/CFS research.
Keep up-to-date on this issue by following the Twitter accounts @mecvsnieuws and @ME_gids More than 10,400 signatures for the Dutch
OMF expands international outreach. Corrected link to the translation page.
Announcing Discovery Forum 2017: A New Era in ME/CFS Research
Watch individual presentations and Q&A from the Community Symposium on the Molecular Basis of ME/CFS.
The National Institutes of Health (NIH) announced today the outcome of its ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome) competitive consortium grants, marking an unprecedented and tangible commitment from the federal agency to the disease. The NIH announced four recipient teams; one Data Management Coordination Center (DMCC) and three Collaborative Research Centers (CRCs).
With the excitement and attention around the theatrical premiere of ‘Unrest’ in NYC this month now is the time
UPDATE On 20th September, NICE overturned the original proposal and announced it would review its guideline on ME. This
FOR IMMEDIATE RELEASE: 21/09/17 CONTACT: [email protected] #MEAction Rejects the Findings of the SMILE Trial of The Lightning Process for Chronic
On September 8th, Nevada’s full Congressional Delegation sent a letter to Director Collins of the National Institutes of Health urging him to “strengthen and accelerate” its work on ME/CFS.
On Sept. 7, the ME/CFS community breathed a sigh of relief as the Senate Appropriations Committee recommended restoring the $5.4 million Chronic Fatigue Syndrome program under the CDC.
MP’s are urging NICE to review Guideline on ME
During the initial years of having Myalgic Encephalomyelitis (ME), it is common to watch all your interpersonal ties slowly dissolve. Being in my early 20s, those around me craved excitement, adventure, and new experiences. Those things I desired too, but little of which I could do or offer in my current state of health.
If you are hosting a screening of Unrest in your community, you will want to reach out to your
Let us know if you need help recovering from Hurricanes Harvey & Irma. We are planning to share the
This story won’t be particularly unique or shocking to anyone living with ME. Every single one of us has a plethora of stories like this, and far worse than this. It has happened so many times over the last 11 years. What shocks me is the degree to which it still occurs and manages to affect me, no matter how much time I spend trying to advocate for ME.
Severe ME patients publish paper questioning central findings of Dutch CBT/GET trial
#BedFest was quite the occasion. People appeared in PJ’s, crumpled t-shirts, crochet vests, keen to address the wider world; people whose voices are seldom heard, called together by #MEAction and its volunteers to share music, art, photography and multifarious creativity and raise ME-Awareness. We didn’t have to leave the house…
Influential scientific researchers in the ME/CFS community will come together this Saturday, Aug. 12 for a one-day community symposium
The Solve ME/CFS Initiative is disappointed to report that the projected estimates for FY 17 are being reported at lower numbers than expected.
Last week, the House Appropriations Subcommittee on Labor-HHS zeroed out the $5.4 million line item for Chronic Fatigue Syndrome at the CDC….again. Tell your members of congress to restore the funding for ME/CFS for next year’s budget. We cannot abandon the progress we’ve made so far!