NEW YORK ACTION ALERT: NEED NY GOVERNOR KATHY HOCHUL TO SIGN ME/CFS BILL INTO LAW!

Dear New York Community- We need urgent action now to persuade New York Governor Kathy Hochul to sign our ME/CFS bill into law! Take action now! 

Thanks to you and the #MEAction community, bill A7712B/S6928B, which provides for a myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) education and outreach program in New York, finally passed both the New York State Assembly and Senate. Last Wednesday, June 22nd, the bill was delivered to Governor Kathy Hochul, and she now has until midnight on July 4th to sign it.

Adding the mandate for an ME/CFS education and outreach program to the NY Public Health Law would be a huge win for people with ME/CFS, Long COVID, and other complex chronic diseases in New York State. But we must urge Governor Hochul to sign this bill ASAP!

TAKE ACTION NOW:

That is why we need your help! Please take a few minutes this week to email, call, and/or tweet NY State Governor Kathy Hochul and ask her to sign NY State Assembly Bill A7712B/S6928B into law. 

It is critical that we get as many people as possible to take this action. This is why we also ask that if you have the spoons, please ask 5-10 of your friends and family to also contact Gov. Hochul. 

Together, we can make sure that people with ME, Long COVID, and other complex chronic diseases as well as medical providers get the outreach and information they deserve and need. You can help realize that in New York by contacting Governor Hochul this week. Below are templates you can use in your email message, tweet, and phone call. 

P.S.- LET US KNOW YOU TOOK ACTION:  

Help us keep track of how many people contact Gov. Hochul by answering these 2-3 questions below or at this google form link!

CONTACT INFO & TEMPLATES:

  1. Contact Governor Hochul’s office here: https://www.governor.ny.gov/content/governor-contact-form

MESSAGE TEMPLATE:

Topic: Health
Subject: Please sign Assembly bill A7712B/S6928B into law today!

Message: 
Dear Governor Hochul, Please be a champion to the ME/CFS and Long COVID disease communities by signing bill A7712B/S6928B into law today! The bill was delivered to you on June 22, 2022, and it needs your signature. 

ME/CFS, a serious, debilitating, multi-system chronic disease, affects millions of people. Since COVID-19, millions more people with Long COVID have symptoms consistent with ME/CFS and are going on to acquire an ME/CFS diagnosis. 

ME/CFS and Long COVID are major public health concerns in New York state, and yet few medical providers know how to care for or treat patients. By signing this bill, you are ensuring that ME/CFS education and outreach improves, so that we can start to put an end to this clinical care crisis. Please be a champion to our struggling communities by signing bill A7712B/S6928B into law today. Can I count on your support?

  1. Tweet Gov. Hochul @GovKathyHochul

@GovKathyHochul Pls sign bill A7712B/S6928B into law today! #MECFS & #LongCOVID are major public health concerns in NY & yet few medical providers know how to care for #pwME. Sign the bill to ensure ME/CFS education & outreach improves! Ally w us & end this clinical care crisis.

  1. Call Gov. Hochul’s office:

Phone Number: 1-518-474-8390 (Office hours: M-F, 9:00am to 5:00pm)

Phone call script: 
My name is {ENTER NAME} and I’m a {person living or affected} with/by myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) {and/or Long COVID}. 

I am calling because bill A7712B/S6928B is currently sitting on Governor’s Hochul’s desk and I want to urge her to sign it as soon as she can. Please be a champion to the ME/CFS and Long COVID disease communities by signing this bill into law today. 

ME/CFS, a serious, debilitating, multi-system chronic illness, affects millions of people. Since COVID-19, millions more people with Long COVID have symptoms consistent with ME/CFS and are going on to acquire an ME/CFS diagnosis. 

ME/CFS and Long COVID are major public health concerns in New York state, and yet few medical providers know how to care for or treat patients. By signing this bill, the Governor is ensuring that ME/CFS education and outreach happens so that we can start to put an end to this clinical care crisis. Please be a champion to our struggling communities by signing bill A7712B/S6928B into law today. Can I count on your support?

  1. Send a letter to Gov. Hochul: 

Address:
The Honorable Kathy Hochul
Governor of New York State
NYS State Capitol Building
Albany, NY 12224

Letter script: 
Dear Governor Hochul, 

Please be a champion to the ME/CFS and Long COVID disease communities by signing bill A7712B/S6928B into law today! The bill was delivered to you on June 22, 2022, and it needs your signature ASAP. 

ME/CFS, a serious, debilitating, multi-system chronic disease, affects millions of people. Since COVID-19, millions more people with Long COVID have symptoms consistent with ME/CFS and are going on to acquire an ME/CFS diagnosis. 

ME/CFS and Long COVID are major public health concerns in New York state, and yet few medical providers know how to care for or treat patients. By signing this bill, you are ensuring that ME/CFS education and outreach happens so that we can start to put an end to this clinical care crisis. Please be a champion to our struggling communities by signing bill A7712B/S6928B into law today. Can I count on your support?

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