ABOUT #MEAction USA
#MEAction USA works at the national, state and local level to create ME health equity in the US. We’re creating inroads in government agencies, organizing state chapters, and bringing ME education to all 50 states. Learn about all of our ongoing projects and campaigns and how you can get involved.
Our Work
TAKE ACTION NOW
- All CAMPAIGNS
- USA
- UK
Sign our Open Letter to the NIH & CDC
#MEAction has written an open letter to the NIH and CDC. Sign onto our letter to let them know their inaction to advance biomedical research, medical education, and care and treatment for people living with ME/CFS is unacceptable, and we hold them directly responsible for this crisis.
Stop. Rest. Pace.
Join #MEAction's campaign to tell those with Long COVID to Stop. Rest. and Pace!
Enroll in a Research Study
Enroll in a research study as a patient or healthy control. Or, contribute to MEpedia, our crowd-sourced encyclopedia on the science and history of ME.
Postcards to Doctors
Join our campaign to bring ME medical education to medical professionals! Current call - art submissions!
#MillionsMissing: Join the revolution and get organized for 2021!
Each year, #MEAction organizes a global protest on May 12th. #MillionsMissing is an opportunity to mobilize, educate, and assemble virtually or on the streets for ME health equality!
Prevent & Prep for Covid-19
COVID-19 resources for people with ME and people with Long COVID. News, practical tips, in-depth seminars and support.
Latest News
CDC releases post-COVID guidance: 4 takeaways for ME/CFS
The U.S. Centers for Disease Control and Prevention (CDC) has published interim guidance for evaluating and caring for patients with post-COVID conditions.* The CDC will present this guidance to clinicians on a public COCA Call on Thursday, June 17th from 2:00 PM – 3:00 PM ET. This guidance deserves a detailed review of what has
CDC releases flawed review of ME/CFS treatments for public comment
On May 16th the U.S. Centers for Disease Control and Prevention (CDC) published a notice of request for public comments on its systematic review draft report for diagnosis and treatment of ME/CFS which will remain open until August 16, 2021. You might not realize it from the above description, but this is the latest milestone
#MEAction urges Congress to hold NIH accountable
#MEAction has sent a letter to the Congressional House Subcommittee on Health (Energy & Commerce Committee), following their recent congressional hearing on Long COVID. Our letter urges Congress to hold the National Institutes of Health (NIH) accountable for expediting treatments to people with ME/CFS and Long COVID. To make this happen, we urge Congress to
Explore our US resources
Support our work!
Donate now to support #MEAction USA.