ABOUT #MEAction USA
#MEAction USA works at the national, state and local level to create ME health equity in the US. We’re creating inroads in government agencies, organizing state chapters, and bringing ME education to all 50 states. Learn about all of our ongoing projects and campaigns and how you can get involved.
Our Work
TAKE ACTION NOW
- All CAMPAIGNS
- USA
- UK
Tell the CDC to Count Us!
Sign our petition calling for the the U.S. National Center for Health Statistics (NCHS) to accurately code and track ME/CFS. #CodeUsCountUsCureUs.
Take Our Chronic Illness Survey
Take our Chronic Illness Survey to increase our understanding of ME/CFS, Long COVID, POTS, hEDS, and MCAS.
Become an #MEAction Member
Become an #MEAction Member and support our thriving community fighting for recognition, education and research for ME.
Enroll in a Research Study
Enroll in a research study as a patient or healthy control.
Stop. Rest. Pace.
Join #MEAction's campaign to tell those with Long COVID to Stop. Rest. and Pace!
Join our MEpedia team
We are crowd-sourcing a knowledge base on the history, science and medicine of ME, CFS, and related diseases. Jump in!
Latest News
On World AIDS Day, We’re Taking Action at the White House
White House Must Confront Global Health Nightmare of Colliding Pandemics
Infection-associated chronic disease experts needed at ARPA-H
Congress launched ARPA-H (the Advanced Research Projects Agency for Health) this past March to focus on high-risk, high-reward research projects with the goal to solve intractable health problems. As ARPA-H is in the process of hiring its first cohort of program managers, #MEAction and a coalition of chronic disease advocacy groups have published an open
#MEAction Response to NY Magazine’s Egregious Article on ME and Long COVID
#MEAction has sent the following email to editors at New York Magazine to request it remove its fallacious article about Long COVID and ME.
Explore our US resources
Support our work!
Donate now to support #MEAction USA.