ABOUT #MEAction USA
#MEAction USA works at the national, state and local level to create ME health equity in the US. We’re creating inroads in government agencies, organizing state chapters, and bringing ME education to all 50 states. Learn about all of our ongoing projects and campaigns and how you can get involved.
Our Work
TAKE ACTION NOW
- All CAMPAIGNS
- USA
- UK
Tell the CDC to Count Us!
Sign our petition calling for the the U.S. National Center for Health Statistics (NCHS) to accurately code and track ME/CFS. #CodeUsCountUsCureUs.
Take Our Chronic Illness Survey
Take our Chronic Illness Survey to increase our understanding of ME/CFS, Long COVID, POTS, hEDS, and MCAS.
Become an #MEAction Member
Become an #MEAction Member and support our thriving community fighting for recognition, education and research for ME.
Enroll in a Research Study
Enroll in a research study as a patient or healthy control.
Stop. Rest. Pace.
Join #MEAction's campaign to tell those with Long COVID to Stop. Rest. and Pace!
Join our MEpedia team
We are crowd-sourcing a knowledge base on the history, science and medicine of ME, CFS, and related diseases. Jump in!
Latest News
Dept. of Labor hosts dialogue on Long COVID in the workplace
The U.S. Department of Labor (DOL) has opened a national online dialogue on “Understanding and Addressing the Workplace Challenges Related to Long COVID.” The online dialogue is a text-based forum that will remain open for posting ideas and voting and commenting on those ideas until August 10th. In addition to people with Long COVID, #MEAction
New #MEAction Volunteer Survey
#MEAction is excited to announce our new Volunteer Survey! We invite everyone to complete the survey. The survey link will be available on #MEAction’s website until Friday, July 29th. We encourage everyone to thoughtfully consider each question, fill out their responses, and submit the survey by the due date. The survey consists of 12 questions
Dept. of Labor Updates Information on ME/CFS for Workers, Employers
The U.S. Department of Labor’s Office of Disability Employment Policy (ODEP) has updated the information on ME/CFS provided at its Job Accommodation Network website to align with the most current CDC guidance. This action will help workers and employers find accurate information on ME/CFS and combat stigma and improve workplace outcomes. At #MEAction’s recent meeting
Explore our US resources
Support our work!
Donate now to support #MEAction USA.