ABOUT #MEAction USA
#MEAction USA works at the national, state and local level to create ME health equity in the US. We’re creating inroads in government agencies, organizing state chapters, and bringing ME education to all 50 states. Learn about all of our ongoing projects and campaigns and how you can get involved.
Our Work
TAKE ACTION NOW
- All CAMPAIGNS
- USA
- UK
Tell the CDC to Count Us!
Sign our petition calling for the the U.S. National Center for Health Statistics (NCHS) to accurately code and track ME/CFS. #CodeUsCountUsCureUs.
Take Our Chronic Illness Survey
Take our Chronic Illness Survey to increase our understanding of ME/CFS, Long COVID, POTS, hEDS, and MCAS.
Become an #MEAction Member
Become an #MEAction Member and support our thriving community fighting for recognition, education and research for ME.
Enroll in a Research Study
Enroll in a research study as a patient or healthy control.
Stop. Rest. Pace.
Join #MEAction's campaign to tell those with Long COVID to Stop. Rest. and Pace!
Join our MEpedia team
We are crowd-sourcing a knowledge base on the history, science and medicine of ME, CFS, and related diseases. Jump in!
Latest News
New Volunteer Leadership Program Led by Experts!
We are thrilled to announce that Chimére Smith and Terri Wilder will be joining #MEAction as consultants to execute a new volunteer leadership training program funded by the Ford Foundation! We are so thrilled that we will be able to expand our volunteer programs to include robust training and provide fulfilling roles and opportunities for
Research Update: The NIH Intramural ME/CFS Study
National Institutes of Health researchers who began what may be the deepest biological investigation ever of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) are writing up their findings and plan to circulate a draft among their large team of scientists and physicians for feedback soon. “The study will help patients and should move the field forward in
#MEAction Meets with the Department of Labor
#MEAction continues our advocacy for the #MillionsMissing in a recent meeting with the Office of Disability Employment Policy (ODEP) at the U.S. Department of Labor (DOL) where we presented on community issues affecting people with ME and Long COVID and offered policy recommendations that DOL can take to address them. President Biden’s Memorandum tasks DOL
Explore our US resources
Support our work!
Donate now to support #MEAction USA.