ABOUT #MEAction USA
#MEAction USA works at the national, state and local level to create ME health equity in the US. We’re creating inroads in government agencies, organizing state chapters, and bringing ME education to all 50 states. Learn about all of our ongoing projects and campaigns and how you can get involved.
Our Work
TAKE ACTION NOW
- All CAMPAIGNS
- USA
- UK
Tell the CDC to Count Us!
Sign our petition calling for the the U.S. National Center for Health Statistics (NCHS) to accurately code and track ME/CFS. #CodeUsCountUsCureUs.
Take Our Chronic Illness Survey
Take our Chronic Illness Survey to increase our understanding of ME/CFS, Long COVID, POTS, hEDS, and MCAS.
Become an #MEAction Member
Become an #MEAction Member and support our thriving community fighting for recognition, education and research for ME.
Enroll in a Research Study
Enroll in a research study as a patient or healthy control.
Stop. Rest. Pace.
Join #MEAction's campaign to tell those with Long COVID to Stop. Rest. and Pace!
Join our MEpedia team
We are crowd-sourcing a knowledge base on the history, science and medicine of ME, CFS, and related diseases. Jump in!
Latest News
#MEAction’s work in the Forest of Federal Agencies
Hey folks, it’s me Ben. During this week’s #MEAction Giving Adventure we moved through the Forest of Federal Agencies as we surpassed our first fundraising level of US$15,000/UK￡11,178. While this fundraising adventure is all about putting the FUN in Fundraising, the work #MEAction has done within US Federal Agencies has been imperative to improving the
Sign petition To Fix ME/CFS tracking In US!
In August, we shared with you that we and six other ME/CFS organizations had submitted a proposal to the National Center of Health Statistics (NCHS) to fix the coding of ME/CFS in the US International Classification of Diseases (ICD-10-CM). Today, we are writing with an update on that proposal and asking that you sign the
Over 7K Sign #MEAction’s Response to Flawed CDC Review
Over 7K sign #MEAction’s response to CDC
Explore our US resources
Support our work!
Donate now to support #MEAction USA.