ABOUT #MEAction USA
#MEAction USA works at the national, state and local level to create ME health equity in the US. We’re creating inroads in government agencies, organizing state chapters, and bringing ME education to all 50 states. Learn about all of our ongoing projects and campaigns and how you can get involved.
Our Work
TAKE ACTION NOW
- All CAMPAIGNS
- USA
- UK
Tell the CDC to Count Us!
Sign our petition calling for the the U.S. National Center for Health Statistics (NCHS) to accurately code and track ME/CFS. #CodeUsCountUsCureUs.
Take Our Chronic Illness Survey
Take our Chronic Illness Survey to increase our understanding of ME/CFS, Long COVID, POTS, hEDS, and MCAS.
Become an #MEAction Member
Become an #MEAction Member and support our thriving community fighting for recognition, education and research for ME.
Enroll in a Research Study
Enroll in a research study as a patient or healthy control.
Stop. Rest. Pace.
Join #MEAction's campaign to tell those with Long COVID to Stop. Rest. and Pace!
Join our MEpedia team
We are crowd-sourcing a knowledge base on the history, science and medicine of ME, CFS, and related diseases. Jump in!
Latest News
Dept. of Labor Updates Information on ME/CFS for Workers, Employers
The U.S. Department of Labor’s Office of Disability Employment Policy (ODEP) has updated the information on ME/CFS provided at its Job Accommodation Network website to align with the most current CDC guidance. This action will help workers and employers find accurate information on ME/CFS and combat stigma and improve workplace outcomes. At #MEAction’s recent meeting
Email Doctor Unger about the Misinformation at CDC
People with ME deserve accurate & clear ME/CFS education from the Centers for Disease Control, not recycling of discredited recommendations for Cognitive Behavioral Therapy (CBT) and Graded Exercise Therapy (GET). The invited speaker at May 13th’s CDC Stakeholder Engagement & Communication (SEC) Call presented this slide on ME/CFS management. Failing the #MillionsMissing yet again! Information
Exciting news about Mayo Clinic!
We’ve got some very exciting news this week! Clinicians working at the Long COVID clinic at Mayo Clinic’s campus in Rochester, Minnesota met with #MEAction to discuss treatment, research and improved community engagement for people with ME! They reached out to us because they were interested in engaging with a national patient-led organization with strong
Explore our US resources
Support our work!
Donate now to support #MEAction USA.