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Thousands Protest in 24 Cities Worldwide Demanding Support for People Suffering with Myalgic Encephalomyelitis / Chronic Fatigue Syndrome
MEDIA ADVISORY FOR: Tuesday, September 27, 2016 CONTACT: Brett Abrams | +1-516-841-1105 | [email protected] 09/27: Thousands Protest in 24
This is a blog created by spanish-talking pwme to spread the knowledge about ME/CFS and increase activism. Este es un blog sobre SFC/EM en español para visibilizar la enfermedad y aumentar el activismo!
Patients and statisticians have used the recently released data from the PACE trial to show that cognitive behavioural therapy
The time for decency in the face of the overwhelming failure of PACE for many has justifiably passed you by, but potential futility aside, I make this appeal regardless. Every day there is a new ME/CFS patient. Today you can spare that patient from harm. You can spare them from being accused of malingering by their own friends and family. You can spare them from wrongful imprisonment in a psychiatric ward. Today you can set ME/CFS research on an expedited path that leads to real treatments and ultimately a cure. End this tragedy now.
The Chicago protest #MillionsMissing will feature talks by Dr. Leonard Jason, Dr. Marcie Zinn, well-known epidemiologists; Carol Head, of
The NYC #MillionsMissing Protest has a full agenda and they are excited to announce several major speakers in attendance including local NYC ME/CFS physician (and Chair of the Chronic Fatigue Syndrome Advisory Committee), Dr. Susan Levine. In addition, local physician-scientist Dr. Mady Hornig from the Columbia University Center for Infection and Immunity (and the ME/CFS Microbe Discovery Project) will also be in attendance. NYC will also have several patients and caregivers tell their personal stories. If you plan to attend and would like to share your story at the protest, please contact them. Finally, as opposed to the shoe display used at other locations, NYC will be doing a unique display using balloons and posters.
After months of hard work from #MEAction, #MEAction Network UK, and many others including advocates, government officials, lawyers, and
Experts, Advocates and Patients Call Release of UK QMUL PACE Data “A Gamechanging Win for People with Myalgic Encephalomyelitis / Chronic Fatigue Syndrome
FOR IMMEDIATE RELEASE: Monday, September 12, 2016 CONTACT: Brett Abrams | +1-516-841-1105 | [email protected] Experts, Advocates and Patients Call
Members of Congress Urge NIH Director Francis Collins to Strengthen Biomedical Research into Myalgic Encephalomyelitis / Chronic Fatigue Syndrome
FOR IMMEDIATE RELEASE: Monday, September 12, 2016 CONTACT: Brett Abrams | 516-841-1105 | [email protected] Members of Congress Urge
A total of 55 members of Congress have signed on to a letter asking NIH Director Francis Collins: 1)
Bateman Horne Center has moved into a new, larger facility; plans to expand staff to accommodate increasing numbers of patients, will increase research enrollment, and is expanding patient and provider education efforts.
The #MillionsMissing are using Thunderclap to amplify our message. Between now and September 27, sign up here and promote
Robert Naviaux, at researcher at University of California, San Diego, published a landmark paper yesterday on the metabolites of
For many months the Canadian Institutes of Health Research, the Canadian equivalent to the NIH, has advised that: “The
#MEAction reported recently that the #MillionsMissing protests led to a number of meetings with government officials, including a meeting
A few years after getting ill, I discovered that I can write interesting stories about things that happen inside or close to my home. For instance about birds or cats visiting our garden (preferably not at the same time), books, music or even what we had for dinner. This time it is about my shoes, my empty shoes. Who needs shoes while lying on the sofa, anyway?
On ME Awareness day this year, 12th May, the London School of Hygiene and Tropical Medicine (LSHTM) opened the
Columbia University – Center for Infection and Immunity has seriously upped the ante on the initial microbe discovery project in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. Their impressive, rigorous new study could point the way to diagnostic tests, and even treatments – but first they need the funds to complete the work.
Science writer Julie Rehmeyer presented a critique of the PACE trial to North America’s largest gathering of statisticians in
As reported earlier this week, Jen Brea, Terri Wilder, Carol Head, Jennie Spotila, and Mary Dimmock met with Dr.
Want to get involved, but aren’t sure how to proceed? Here is a living document you can use to
Last week, MEAction announced that Jen Brea, Terri Wilder, Carol Head, Jennie Spotila, and Mary Dimmock would be meeting
On May 24, 2016, the National Institutes of Health (NIH) released the first ever Request for Information (RFI) regarding ME/CFS, requesting submissions addressing new research strategies for the disease. Solve ME/CFS Initiative (SMCI) submitted a unique and pointed response to this RFI in the form of an imitation funding announcement.
Note: the deadline has been extended until next Friday, August 12! We are soliciting feedback from the entire community
Ryan Prior first made waves with his article in USA Today about his experience with ME/CFS that was shared
Wednesday, August 3rd, 7pm Mountain – Free Livestream. Lucinda Bateman MD, Founder and Chief Medical Officer of the Bateman Horne Center, will present methods used at the BHC to partner with patients and help them achieve the best possible function and symptom reduction.
A meeting with Karen B. DeSalvo, the Acting Assistant Secretary for Health at the US Health and Human Services
Hi, I’m Mike Harley from the UK, and for the last 18 months I’ve been raising awareness and funds
The Solve ME/CFS Initiative (SMCI) is now accepting applications for the Ramsay Award Program in basic, preclinical, clinical, and epidemiology research. This competitive grant award is open to scientists and researchers at any career stage who are interested in studying myalgic encephalomyelitis (ME)/chronic fatigue syndrome (CFS).