#MEAction Scotland holds its first community call

Last week, #MEAction Scotland volunteers held the first in a series of community calls. The online meetings will take place quarterly and have been set up to connect us with more people with ME and allies across Scotland.

Our first call was a success! We were delighted to be joined by a mix of old friends who have supported #MEAction for many years, as well as new faces looking to get involved in advocacy in Scotland. We talked through #MEAction Scotland’s strategic priorities up until March 2023 and then had a lively discussion about what needs to change for people with ME.

We know that many people with ME aren’t able to volunteer or take part in advocacy in the way they might want, so we’re excited to introduce this new way to catch up with us and be part of our work in Scotland. 

The next call will be in July and we’ll be discussing our plans for Millions Missing September. Of course, before that we’re looking forward to seeing some of you next week at the global virtual event for Millions Missing May! There’s still time to RSVP and let us know you’re joining.

To stay up to date with #MEAction Scotland you can follow us on Facebook, Twitter and Instagram, or email us on [email protected] if you would like to find out more.


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A laptop sitting on a desk. In the background, you can see a cup and saucer, some post-it notes and a folder. On the screen is the Scottish Government's website, with a large title that says 'Scottish Good Practice Statement on Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME-CFS).' A red banner is at the bottom of the photo with white writing which says, '#MEAction Scotland responds to the updated Scottish Good Practice Statement on ME.’ The ME Action Scotland logo is in the top left corner.

#MEAction Scotland responds to the updated Scottish Good Practice Statement

The Scottish Government published the updated Scottish Good Practice Statement (SGPS) on ME-CFS on 28th February 2023.  The decision to update the Scottish Good Practice Statement, originally published in 2010, was a result of the Scottish stakeholder review of the 2021 NICE guideline on ME/CFS, and its recommendations for implementing the guideline in Scotland. The

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