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The Dutch ME/CFS Association (ME/CVS Vereniging) has posted the 80th in its video interview series, “Science to Patients” (“Wetenschap
Sonya Myalgic Encephalomyelitis (ME) Patient 5/25/16 Washington, DC #MillionsMissing Protest Speech Transcript In April of 2011, I was thriving
I’m Carol Head, President of the Solve ME/CFS Initiative, here with Linda Tannenbaum. Our organization conducts innovative research to
Hello, and a very warm welcome to #MillionsMissing London. My name is L.A. Cooper, I founded and run Change
Belfast, Ireland and Bergen, Norway will be joining their voices to the #MillionsMissing protest this June. In Belfast, shoes
My name is Ryan Prior. I’m a filmmaker and a journalist and an entrepreneur from Atlanta, and I’ve come
#MEAction co-founder Jennifer Brea at the #MillionsMissing protest in Washington, DC, May 25, 2016 “Okay awesome. Wow this is
Chairman: For open session, this is a concept clearance, and just to remind you, normally we’re expected to spend our
On Wednesday, May 25, ME/CFS patients, caregivers and advocates in nine cities around the world gathered for a global
My name is Terri Wilder and I’m a person living with ME. I was only diagnosed with ME about
I’m Ron Davis and my son is missing… Linda Tannenbaum has really helped us a lot in raising funding.
The US Trans-NIH (National Institutes of Health) ME/CFS Working Group will present its proposal to advance research into the
A petition for more biomedical research funding for ME/CFS that was started in January is only 2,000 signatures short
The Center for Infection and Immunity (CII) at the Mailman School of Public Health in New York is internationally recognized as the world’s largest and most advanced academic center in microbe discovery, identification and diagnosis. Dr. Lipkin and Dr. Hornig and the CII team are thoroughly on the case of ME/CFS but they need our community support.
Melbourne’s #MillionsMissing event is on 25 May from 12-2pm on the lawns of Melbourne’s State Library of Victoria, Australia. Part of the globlal protest movement!
Dr Hornig went into more depth about their published cytokine work, as well as what they are working on and trying to achieve. The talk was jam-packed with great science and information. Dr Hornig talks about the crisis in funding, looking at gene expression and gene variants, screening for up to 1.7 million vertebrate viruses, metabolomics, looking at how the immune system and the microbiome could affect metabolism and the brain – and much, much more!
Australian researchers have found an abnormal centre in the brain which may explain problems with the signalling around the body.
This M.E. Awareness Month, our is simple: don’t ignore M.E. To spread this message, Action for M.E. launched three films as part of M.E. Awareness Week. Starring Sharon and Douglas, who have M.E., Sharon’s partner Connor, and our medical advisers Dr Gregor Purdie and Prof Julia Newton, each focuses on a different aspect of M.E. and its impact.
Professor Vincent Racianello of Columbia University has said of the PACE trial controversy, “I think they are going to
The idea behind Walk for ME is that friends and family of an ME sufferer do a sponsored walk, run or swim on their behalf, hence the name Walk for ME or Walk for me.
ME/CFS patient and science blogger Simon McGrath has produced a patient-friendly version of a recent peer-reviewed editorial on the disease that
This year’s conference of the International Association for CFS/ME (IACFS/ME) in Fort Lauderdale, Florida on 27–30 October will include
Australia’s University of NSW’s Psychiatry Department tested a graded activity program on 25 patients with chronic fatigue syndrome. Before the study, patients could complete around 4 hours of ‘moderate intensity exercise’ a week (self-reported). It was not measured or recorded at the end of the program but the study found small improvements in cognitive performance, with some caveats.
Dr Kenneth J. Friedman will discuss the CFS Advisory Committee’s (CFSAC’s) upcoming proposal for ME/CFS Centers of Excellence and
A new study was published recently in the journal Chronic Illness, entitled Housebound versus nonhousebound patients with myalgic encephalomyelitis
The Norwegian Research Council has announced that it received 737 research proposals from ME/CFS patients and their families in
Progressive Brain Changes in Patients with Chronic Fatigue Syndrome: Are our brains starved of oxygen?
A recent Australian study, Progressive Brain Changes in Patients With Chronic Fatigue Syndrome: A Longitudinal MRI Study finds that
Introducing the #MillionsMissing Profile Filter App! This app was designed to help raise awareness for the millions of people