Last chance to vote for your top ten ME/CFS research priorities in the UK

Author:

Last chance to vote

Over 1,700 people have now voted for their top ten ME/CFS research priorities in the UK. With the deadline fast approaching this is your last chance to join them and vote.

Deadline Monday 13th December 5pm

This process gives greater voice to people affected by ME/CFS to decide the direction of ME/CFS research and funding than has ever happened before.

The ME/CFS Priority Setting Partnership is led by people with ME/CFS, their supporters and carers, and healthcare professionals working in this area. Through a three stage process the partnership will find the top ten research priorities of people affected by ME/CFS.

How to take part

  • ONLINE: 
  • BY PHONE: 
    • If you need to complete the survey by phone, please call Helen at the 25% ME Group on 0739 240 3591 

Help spread the word

The more people who take part the more power this process will hold. Do your bit to help share the survey before it closes.

If you have a family member or friend who supports someone with ME/CFS, they can take part too. Ask them to fill in the survey today.

What happens to my votes?

This tried and tested process has one more stage. A workshop is held to finalise the top ten research priorities. This is done to ensure every perspective is considered, including, for example, people with very severe ME. The partnership will put out more details and give everyone an opportunity to apply to be part of this workshop after the survey closes.

Find out more at www.psp-me.co.uk

Facebook
Twitter
WhatsApp
Email

Latest News

a collection of millionsmisisng pictures featuring people protesting over the years in red shirts and with protest signs. white dashses connect the photos. the words words "the Story of the #MillionsMissing" is in white font in the top lefthand corner with the #MEAction logo there. The words "Coming Soon" is handwriting font is in the top righthand corner.

“#MillionsMissing is our drumbeat”–Preview Party 9/24

RSVP TODAY: We are hosting a preview party for the new, virtual Home of the #MillionsMissing this Sunday, September 24th, at 12 pm PT/ 3 pm ET/ 8 pm BST! RSVP & Get Zoom Link Here We have always had to be creative in telling Our Story – the story of M.E. – to the world

Read More »

JNNP to publish edited rapid response by MEAction UK.

MEAction UK have been in communication with the BMJ and are delighted to announce that the Journal of Neurology, Neurosurgery & Psychiatry (JNNP) are publishing an edited version of our rapid response to  ‘Anomalies in the review process and interpretation of the evidence in the NICE guideline for chronic fatigue syndrome and myalgic encephalomyelitis’. We

Read More »