Last chance to vote for your top ten ME/CFS research priorities in the UK

Author:

Last chance to vote

Over 1,700 people have now voted for their top ten ME/CFS research priorities in the UK. With the deadline fast approaching this is your last chance to join them and vote.

Deadline Monday 13th December 5pm

This process gives greater voice to people affected by ME/CFS to decide the direction of ME/CFS research and funding than has ever happened before.

The ME/CFS Priority Setting Partnership is led by people with ME/CFS, their supporters and carers, and healthcare professionals working in this area. Through a three stage process the partnership will find the top ten research priorities of people affected by ME/CFS.

How to take part

  • ONLINE: 
  • BY PHONE: 
    • If you need to complete the survey by phone, please call Helen at the 25% ME Group on 0739 240 3591 

Help spread the word

The more people who take part the more power this process will hold. Do your bit to help share the survey before it closes.

If you have a family member or friend who supports someone with ME/CFS, they can take part too. Ask them to fill in the survey today.

What happens to my votes?

This tried and tested process has one more stage. A workshop is held to finalise the top ten research priorities. This is done to ensure every perspective is considered, including, for example, people with very severe ME. The partnership will put out more details and give everyone an opportunity to apply to be part of this workshop after the survey closes.

Find out more at www.psp-me.co.uk

Facebook
Twitter
WhatsApp
Email

Latest News

Text across top of image reads: "Experts in infection associated chronic illness" with "WE WANT YOU!" bolded below it. Hand with finger pointed out at viewer. "Apply now" buttons to the left and right with mouse cursor clicking on them.

Infection-associated chronic disease experts needed at ARPA-H

Congress launched ARPA-H (the Advanced Research Projects Agency for Health) this past March to focus on high-risk, high-reward research projects with the goal to solve intractable health problems. As ARPA-H is in the process of hiring its first cohort of program managers, #MEAction and a coalition of chronic disease advocacy groups have published an open

Read More »

Help keep our work going

We rely on donations from people like you to keep fighting for equality for people with ME.

Donate

Get actions alerts and news direct to your inbox

You can choose what you want to be kept up to date on.

Subscribe
Scroll to Top