If you’re new to myalgic encephalomyelitis (ME), commonly referred to as chronic fatigue syndrome (CFS), we’re here to tell you that you are not alone. There are millions of others like you. At #MEAction, our mission is to advocate for people with ME to raise awareness, educate, and fight for better access, better treatments, and ultimately a cure. Whether you’re new to this disease or you’ve been living with it for decades, there’s something here for you.
Steven Molony is an actor, writer, and filmmaker who makes all of #MEAction’s videos in addition to supplying voiceover. He is an ally to people with myalgic encephalomyelitis, Long COVID, and other chronic illnesses.
Jaime Seltzer is #MEAction’s director of scientific and medical outreach and she does research for Stanford University on ME and other complex chronic diseases. She is a person living with ME, and ME runs in her family with both her mother and sister affected.
We’ll be interviewing some of the most influential voices in ME/CFS and Long COVID, discussing books and articles on complex chronic disease, having candid chats about life with ME, #MillionsMissing and what it means to #StopRestPace, disability activism and advocacy, art and music from disabled artists you love, and so much more.
If you’re looking for an outlet on the road of chronic illness, you’ve come to the right place. This podcast is available on Apple Podcasts, Spotify, Audible, or wherever you prefer to listen to podcasts. If you like what you hear, please leave us a rating and a review as this will help to extend our reach. Thank you, as always, for your support!
Episode 1: Meghan O’Rourke and the Invisible Kingdom
Meghan is a graduate of Yale University, a New York Times bestselling author, a poet, essayist, and memoirist. She worked as an editor at The New Yorker, Slate, and The Paris Review. Her work has been featured in The Atlantic, The New York Times, Harvard Radcliffe Institute, The New Yorker, Scientific American, and The Wall Street Journal. Her written works include Halflife, The Long Goodbye, Once, Sun in Days, and most recently, she’s put out her brand new book, The Invisible Kingdom: Reimagining Chronic Illness. We discuss her latest book as well as her experience as a mother and accomplished writer living with chronic illness.
Episode 2: Fiona Lowenstein
Fiona is an award-winning independent journalist whose works have been published in The New York Times, Vox, The Guardian, and many other publications. In 2018, they founded Body Politic, a queer feminist wellness collective and events series, which has become a grassroots patient-led health justice organization. Then in 2020, They co-founded Body Politic’s COVID-19 support group which serves over 11,000 COVID-19 patients. Most recently, Fiona embarked on a book project — The Long COVID Survival Guide — now available for pre-order. Follow their incredible work on Instagram and Twitter.
Episode 3 Coming September 1st
Special Thanks to Our Sponsors
Outside In is an evolving force in equitable and transformative storytelling. Through multi-platform theatrical experiences, Outside In produces daring, dynamic, and authentic work that speaks to intersectional communities and amplifies content created by and for underrepresented voices. You can find more information on their website at outsideintheatre.org, or follow them on social media at @OutsideInTHTR.
The Goodman Center is devoted to helping your organization reach more people with more impact. Known for their workshops in storytelling, presenting, and strategic communications, they’ve been helping good causes large and small since 1998. #MEAction had the pleasure of working with The Goodman Center for our #MillionsMissing 2022 storytelling campaign and we know the value of their work firsthand. Check them out at thegoodmancenter.com.
Get in Touch
Do you have a guest you’d like to suggest we invite on the podcast? We’d love to hear from you! Your contribution will help us to continue the work we do here at #MEAction, and we will advertise your business on the podcast, social media, and here on our site. Drop us a line below, and we will get back to you with more details!