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The ME community is rallying around 17-year-old Jehan “Gigi” who has been hospitalized with severe myalgic encephalomyelitis (ME) in
Bateman Horne center is opening applications for the #MEAction Blue Ribbon Fellowship. Announcing clinical clerkship opportunity for 4th-year medical
The #MEAction Blue Ribbon Fellowship is excited to announce that medical student, Christopher Larrimore of Nova Southeastern University, has
The final report from Australia’s National Health and Medical Research Council’s (NHMRC’s) ME/CFS Advisory Committee, established in late 2017, has been released. The committee was tasked with advising NHMRC’s CEO on current needs for research and clinical guidance for ME/CFS in Australia.
Hello EU! The best way to combat a hopeless situation is to act! Please help us by signing a
The love of my life battles ME/CFS. It’s a disease that my father has also struggled with since I
A Bay area-based photographer is seeking people with myalgic encephalomyelitis (ME) who are willing to share their stories and to be
Originally published on ME Australia. by Sam* Sam (*not her real name) is a teenager living in Australia’s largest
By Christopher Armstrong, PhD, OMF Science Liaison When the Harvard ME/CFS Collaborative at Harvard Affiliated Hospitals was initiated last
We’re so excited to announce we’re growing our community’s impact through the expansion of #MEAction USA’s formal State Chapters.
Volunteers are at the heart of everything #MEAction Scotland does. We are always looking for more people to help
I’m Hannah Bowlus and I’m the administrative assistant at #MEAction. I take care of basic things like mailing
On June 3rd the CDC held its latest MECFS Stakeholder Engagement and Communication (SEC) Webinar/Conference Call with the ME
#MEAction has announced two CDC-related advocacy actions today and yesterday. We are asking you to contact your Senators to
Jack Croxall is an author, scriptwriter and blogger living in Nottinghamshire, UK. He fights ME both in life and
Listen to the article: #MEAction co-founder, Jennifer Brea, wrote this letter to the community about her remission of
The story so far NINDS, the National Institute for Neurological Disorder and Stroke at the NIH has solicited an RFI,
#MillionsMissing – organised by #MEAction – has been such a successful campaign this year, and we thank everyone in
It has been a big week, with over 100 public and virtual events happening across the world! We are
Erica Verrillo is the president of the American ME and CFS Society, a 501(c)(3) nonprofit. May is the month
Simmaron Research is conducting a one-of-a-kind study to analyze data from ME/CFS patients who respond to treatments like Ampligen®, IVIG, and cidofovir, and we need your help funding this data analysis! Our goal is to publish peer-reviewed data to stimulate treatment trials and inform rigorous trial design ASAP!
***UPDATE: THIS ACTION IS NOW OVER*** Please contact your SENATORS and urge them to co-sponsor a ME/CFS Awareness
Australians with ME/CFS are routinely rejected from the country’s National Disability Insurance Scheme (NDIS), because the Australian government doesn’t consider ME/CFS to be a permanent condition for most living with the illness. Sign this petition to support Aussies with ME/CFS and demand policy change!
Myalgic encephalomyelitis (ME) is a debilitating, chronic disease that steals so much from the person. Parents with ME are
NINDS, the National Institute for Neurological Disorder and Stroke at the NIH has solicited an RFI, or a Request
Join the protest virtually during #MillionsMissing – May 5th to May 12th Use the hashtag: #MillionsMissing Start sharing photos