#MEAction Presents: Not Going Quietly Screening & Panel

We have a very exciting opportunity to come together and watch the award-winning documentary Not Going Quietly. We also have an amazing live panel set up to discuss it with us immediately afterwards. Terri Wilder will be moderating and she shares her enthusiasm with us in this short video:

We can learn so much from another movement’s fight for what they believe in! Our movement has goals in terms of our own health equity and we are determined that people with ME get the access they deserve for clinical care, research, and treatments. 

Ady Barkan received a diagnosis of ALS at age 32. “But after a confrontation with powerful Senator Jeff Flake on an airplane goes viral, catapulting him to national fame, Ady and a motley crew of activists ignite a once-in-a-generation political movement called “Be a Hero.”

Through his journey, Ady discovers that collective action and speaking truth to power offers hope for his family and millions of others.” You can watch the trailer below:

When Ady is lying in bed, explaining the day he was diagnosed with ALS, We can’t help but be reminded of Jen Brea and Unrest. Let’s see what we can learn from these activists and how we can apply it to our own movement. 

Join #MEAction for a screening of Not Going Quietly followed by a panel discussion on activism and health equity. Both the screening and the panel will be held on Thursday, April 21 starting at 3pm PT/6pm ET, with the panel immediately following the screening. Tickets are $5.00*. This is a live event and we are unable to share a recorded video later. It is also US only due to licensing requirements. 

The panel will be hosted by Terri Wilder and currently scheduled to speak is:

  • Nicholas Bruckman, Filmmaker, Director
  • Tracey Corder, activist and subject of the film
  • Jamila Headley, Co-Executive Director, Be A Hero

*If you are unable to pay the ticket price, please email us at [email protected] and we will happily work with you. 

Facebook
Twitter
WhatsApp
Email

Latest News

greyish rectangle image with the words: #MEAction is Excited to Announce: Pillow Writers Anthology Issue 1: Near-Life Experiences. In a small grey square the words Get Your Copy Today! with a black line underneath. On the right hand side of the square is the image of the book cover that has a water color of flowers. the #meaction logo is at the bottom of the image.

Pillow Writers Anthology, Issue 1: Near-Life Experiences Available Now!

The Pillow Writers Anthology, Issue 1: Near- Life Experiences is a new literary magazine in the disability community. This inaugural issue features poems, stories, and essays by 17 writers who call themselves the Pillow Writers. The Pillow Writers are an international group of writers living with the neuro-immune diseases of myalgic encephalomyelitis (ME) and Long

Read More »

#MEAction UK’s email/letter to Andrew Gwynne MP

To: Andrew Gwynne, Under Secretary of State for Public Health and Prevention Subject: Treatment of Very Severe ME  email [email protected] Dear Andrew Gwynne,  Thank you for being an ally to people with ME  (myalgic encephalomyelitis) and Long Covid and committing to ensuring publication of the DHSC ME/CFS Delivery Plan without more delay.  We trust your

Read More »
Scroll to Top