#MEAction Presents: Not Going Quietly Screening & Panel

We have a very exciting opportunity to come together and watch the award-winning documentary Not Going Quietly. We also have an amazing live panel set up to discuss it with us immediately afterwards. Terri Wilder will be moderating and she shares her enthusiasm with us in this short video:

We can learn so much from another movement’s fight for what they believe in! Our movement has goals in terms of our own health equity and we are determined that people with ME get the access they deserve for clinical care, research, and treatments. 

Ady Barkan received a diagnosis of ALS at age 32. “But after a confrontation with powerful Senator Jeff Flake on an airplane goes viral, catapulting him to national fame, Ady and a motley crew of activists ignite a once-in-a-generation political movement called “Be a Hero.”

Through his journey, Ady discovers that collective action and speaking truth to power offers hope for his family and millions of others.” You can watch the trailer below:

When Ady is lying in bed, explaining the day he was diagnosed with ALS, We can’t help but be reminded of Jen Brea and Unrest. Let’s see what we can learn from these activists and how we can apply it to our own movement. 

Join #MEAction for a screening of Not Going Quietly followed by a panel discussion on activism and health equity. Both the screening and the panel will be held on Thursday, April 21 starting at 3pm PT/6pm ET, with the panel immediately following the screening. Tickets are $5.00*. This is a live event and we are unable to share a recorded video later. It is also US only due to licensing requirements. 

The panel will be hosted by Terri Wilder and currently scheduled to speak is:

  • Nicholas Bruckman, Filmmaker, Director
  • Tracey Corder, activist and subject of the film
  • Jamila Headley, Co-Executive Director, Be A Hero

*If you are unable to pay the ticket price, please email us at [email protected] and we will happily work with you. 


Latest News

A laptop sitting on a desk. In the background, you can see a cup and saucer, some post-it notes and a folder. On the screen is the Scottish Government's website, with a large title that says 'Scottish Good Practice Statement on Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME-CFS).' A red banner is at the bottom of the photo with white writing which says, '#MEAction Scotland responds to the updated Scottish Good Practice Statement on ME.’ The ME Action Scotland logo is in the top left corner.

#MEAction Scotland responds to the updated Scottish Good Practice Statement

The Scottish Government published the updated Scottish Good Practice Statement (SGPS) on ME-CFS on 28th February 2023.  The decision to update the Scottish Good Practice Statement, originally published in 2010, was a result of the Scottish stakeholder review of the 2021 NICE guideline on ME/CFS, and its recommendations for implementing the guideline in Scotland. The

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