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BOLD ACTION to me, means mobilizing our community to publicly demonstrate our deep and intense—as opposed to shallow and
What Primary Care practitioners need to know about the new NICE guideline for myalgic encephalomyelitis/chronic fatigue syndrome in adults
Caroline Kingdon’s new paper on the NICE guideline for ME was co-written with #MEAction UK volunteer Adam Lowe, as
#MEAction has sent the following email to editors at New York Magazine to request it remove its fallacious article about Long COVID and ME.
Taking BOLD ACTION with our press outreach has led to national media writing about ME.
#MillionsMissing France has been busy.
At #MillionsMissing Scotland many MSPs pledged their support for people with ME, and now they have a chance to
Post-viral conditions like ME/CFS provide guidance for estimating the economic impact of Long COVID.
Code change will ensure US can track diagnosed cases of ME/CFS in newly created electronic health records
On Wednesday 28th September, #MEAction Scotland led a successful #MillionsMissing demonstration outside the Scottish Parliament – the first time
There has been so much happening since the #MillionsMissing protest on September 19th. We’ve shared some of our amazing
People with ME, Long COVID and other complex, chronic diseases have experienced all kinds of healthcare discrimination. Now there
Amazing news! #MEAction and Mayo Clinic applied for a grant together from the Society to Improve Diagnosis in Medicine to transform the diagnostic and treatment process at Mayo Clinic Rochester for people with ME/CFS!
Protesters disabled by Long COVID and myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS) lay down on the White House sidewalk today risking arrest to tell President Biden that the pandemic is not over, and that millions are being disabled from post-viral disease, including Long COVID and ME/CFS.
Protesters disabled by Long COVID and myalgic encephalomyelitis (ME/CFS) are protesting at the White House sidewalk TODAY at 12 p.m. ET to say that the “pandemic is not over,” and to call on President Biden to declare Long COVID and ME/CFS a national emergency.
The LONG COVID and ME/CFS community are planning a protest in front of the White House this Monday, Sept.
Virtual Actions For #Millions Missing London-Social Media Action and Letters/emails to Wellcome Trust
We are asking all our supporters, people with ME and people with other complex chronic conditions to lobby the
It has been over a year since the COVID-19 vaccine became available, and a subset of people with myalgic
Whether or not you can join us in person at this year’s #MillionsMissing, you can help to make it
Earlier this month #MEAction collaborated with Patient-Led Research Collaborative (PLRC) to suggest changes that the U.S. Department of Labor
On the 12 May, World ME Day, the former Secretary of State for Health and Social Care, Sajid Javid,
#MEAction is excited to share a new and much-needed resource just in time for back to school! We are
As we announced in February, the Scottish Government has committed to implementing the new NICE guideline for diagnosis and
The U.S. Department of Labor (DOL) has opened a national online dialogue on “Understanding and Addressing the Workplace Challenges
As part of #DisabilityPrideMonth, The Century Foundation’s podcast Off-Kilter has been hosting a series of conversations featuring Disability Economic
#MEAction recognizes and celebrates Pride Month! As a community that welcomes and encompasses all, this Pride Month, we asked
#MEAction has been hard at work continuing to advocate to the Department of Health and Human Services (HHS) on
Dear New York Community- We need urgent action now to persuade New York Governor Kathy Hochul to sign our
The U.S. Department of Labor’s Office of Disability Employment Policy (ODEP) has updated the information on ME/CFS provided at
After taking #MEAction’s photography workshop with photographer Lucia Doynel for #MillionsMissing, Terra Dumont produced these stunning photos as a
Since 2015, the 1-2.5 million Americans with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) have been effectively nonexistent, at least as
People with ME deserve accurate & clear ME/CFS education from the Centers for Disease Control, not recycling of discredited
This year’s #MillionsMissing, our community created some amazing videos that we are privileged to highlight. This is just a
#MEAction’s Director of Scientific and Medical Outreach, Jaime Seltzer, sat down with Dr. Liisa Selin, MD, PhD, and Dr.
We have a golden opportunity to secure substantial funds to address the clinical care crisis in ME/CFS and Long
#MEAction is advancing ME/CFS advocacy efforts through our ongoing engagement with U.S. federal agencies, including at the Department of
We have a very exciting opportunity to come together and watch the award-winning documentary Not Going Quietly. We also