Caregivers

Caring for people with ME and caring for yourself, too.

How does ME impact caregivers?

Myalgic encephalomyelitis is a complex, challenging disease for everyone involved – not least the caregiver or carer. Caring for someone with ME requires adaptibility, patience, commitment and compassion. We hope the resources below will help you better navigate the care of your loved one, your own self-care, and connect with others on a similar journey.

support & advocacy groups

Caregivers Facebook Support Group

Facebook Support Group

A space for caregivers to support one another, find community and exchange ideas. This is a space for caregivers only.

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Find A Medical Provider

View our crowdsourced, global directory of health care providers.

Global Directory

View our crowdsourced, global directory of health care providers.

Global Directory

Volunteer

Dive deep into our projects with your expertise and skills.

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Sign up for newsletter

Stay up-to-date about science, advocacy and community news.

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All Groups

View all our local and affinity groups.

All Groups

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Caregiver Resources

#MEAction has crowdsourced advice in the guide below from caregivers who care for both adults and children. We hope they will equip you to better navigate the long, convoluted journey of this disease. You can browse for more brochures, fact sheets, and other tools below.