Caregivers

Caring for people with ME and caring for yourself, too. 

Caregiving for people with ME

How does ME impact caregivers?

Myalgic encephalomyelitis is a complex, challenging disease for everyone involved – not least the caregiver or carer. Caring for someone with ME requires adaptibility, patience, commitment and compassion. We hope the resources below will help you better navigate the care of your loved one, your own self-care, and connect with others on a similar journey.

support & advocacy groups

Find A Clinician

View our crowdsourced, global directory of health care providers.

Doctor Directory

Global Directory

Volunteer

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All Groups

View all our local and affinity groups.

All Groups

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Caregiver Resources

#MEAction has crowdsourced advice in the guide below from caregivers who care for both adults and children. We hope they will equip you to better navigate the long, convoluted journey of this disease. You can browse for more brochures, fact sheets, and other tools below.

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