Advocacy News
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#MEAction State Chapters Have been Busy
#MEAction State Chapters have been busy this year working to expand awareness, build support for House Bill H.R. 7057, and contribute to the Stop. Rest. and Pace. campaign, and provide much needed support to their communities during this unpredictable time. We are excited to share what they have been working on and remind those reading
6 ways to have your say in the NICE ME/CFS guideline consultation
You can steer #MEAction UK’s response to the draft ME/CFS guideline consultation. Join a community call, respond to our social media polls, volunteer to read the evidence reviews and more!
HERE’S WHAT HAPPENED AT THE CDC’S SEP. 2020 ME/CFS MEETING
On Wednesday, September 23 the CDC held its ME/CFS Stakeholder Engagement and Communication (SEC) conference call and the #MEAction community showed up to make our voices heard! Here is our initial summary of what you need to know.
NATIONAL VOTER REGISTRATION DAY- SEPTEMBER 22, 2020
Today is National Voter Registration Day! #MEAction along with many other organizations are sharing with their communities the importance of registering to vote for November’s general election.
WHAT TO LOOK OUT FOR AT THE CDC’S SEP. 2020 ME/CFS MEETING
Mark your calendars! The CDC will hold its next ME/CFS Stakeholder Engagement and Communication (SEC) conference call on Wednesday, Sept. 23 at 3 pm Eastern Time. Find information on how to call into the meeting here. The CDC program staff only hold SEC meetings a couple of times a year so now is your chance to participate! These
MAYO CLINIC REMOVES GET AND CBT FROM CFS WEBPAGE
The Mayo Clinic recently removed harmful recommendations of Graded Exercise Therapy (GET) and Cognitive Behavioral Therapy (CBT) for myalgic encephalomyelitis (ME) from their website, a win for people with ME and their families. The site still contains problematic language and misleading information, but this recent change could help many individuals seeking care for their ME. For