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Advocacy News

A petition cloaked in the respectability of research

#MEAction UK has written a letter with regards to a survey that states it is to protect specialist CFS/ME services ...

#MEAction Responds to Attacks on ME Community in The Guardian and Psychology Today

In the past two weeks, The Observer and Psychology Today US have published articles portraying the myalgic encephalomyelitis (ME) community ...

Australia’s ME/CFS Advisory Committee Releases Final Report

In late 2017, Australia’s National Health and Medical Research Council (NHMRC) – the Australian equivalent of the US National Institutes ...
Sign the petition to ask the EU for increased funding for biomedical research into ME

Sign a petition to ask the EU for funding for biomedical research

Hello EU! The best way to combat a hopeless situation is to act! Please help us by signing a petition that ...

#MEAction Launches its U.S. State Chapter Initiative

We’re so excited to announce we’re growing our community’s impact through the expansion of #MEAction USA’s formal State Chapters.  #MEAction USA’s ...

I’m angry, but I’m not alone. 

I’m angry, but I’m not alone.  Hi, my name is Ben HsuBorger, Director of Global Community and Campaigns for #MEAction, and ...
People travelled from all over Scotland to attend #MillionsMissing Glasgow

Hundreds gather for #MillionsMissing Glasgow

#MillionsMissing Glasgow on 12 May, 2019, was a huge success, and took place in glorious sunshine which is fairly unusual ...

Read #MEAction’s Request for Information response to the NIH

The story so far NINDS, the National Institute for Neurological Disorder and Stroke at the NIH has solicited an RFI, or a ...

We are building a movement at #MEAction UK. Join us!

#MillionsMissing - organised by #MEAction - has been such a successful campaign this year, and we thank everyone in the ...

South Carolina Raises Awareness about ME

My name is Robert Jacobs, MD and I am a retired Physician and caregiver for my wife who has had Myalgic ...