Advocacy News

Never miss a beat! Subscribe to our newsletter and select “Daily Digest” to get a summary of the day’s news & actions delivered to your inbox.

Multiple pictures of people faces in red shirts behind a red overlay with a MEAction logo and the words #MillionsMissing Activism from Home in a gray box over the pictures.
#MillionsMissing
#MEAction

#MillionsMissing 2022: Activism From Home Was Beyond Impressive

There has been so much happening since the #MillionsMissing protest on September 19th. We’ve shared some of our amazing press wins. You tuned into the live stream on Twitter. You saw the article that cover our government’s response. We are thrilled.  And we want to take a moment to acknowledge all of the amazing activism

Read More »
hand holding a paper sheet with injustice, unfairness symbol over crowded street background.
Advocacy
Ben HsuBorger

Tell HHS about your experience of healthcare discrimination

People with ME, Long COVID and other complex, chronic diseases have experienced all kinds of healthcare discrimination. Now there is an opportunity for you to share your story and urge our government to move forward with improved protections to secure access to healthcare that is free from discrimination or prejudice. The deadline to submit a

Read More »
#MillionsMissing
Adriane Tillman

#MillionsMissing Press Hits are Rolling In!

The press hits are rolling in! The media showed up in a big way yesterday to cover our #MillionsMissing protest in front of the White House.   One day after President Biden declared the “pandemic is over,” our community was at the gates of the White House to send Biden a message that a pandemic of chronic

Read More »
Red box at the top says Join us at #MillionsMissing Scotland! Then there is a picture of people gathered at a protest holding signs and wearing read shirts, some are in wheelchairs. Low bottom of the image has a red box that says New Date: Wednesday, 28th September 12:30-2:30pm
#MillionsMissing
#MEAction Scotland

New date for #MillionsMissing Scotland

Following the postponement of #MillionsMissing Scotland, the demonstration has been rescheduled to Wednesday 28th September. #MillionsMissing Scotland will now take place on Wednesday 28th September, from 12.30-2.30pm. We appreciate this isn’t a lot of notice but we are keen to build on the momentum the event has already gained and to hold it while it

Read More »
Red #MilllionsMissing words with a red string underneath, laid upon a image of books on shelves. Red square with the #MEAction Scotland Logo and the words #MillionsMissing Scotland 14th September- POSTPONED!
#MillionsMissing
#MEAction Scotland

#MillionsMissing Scotland postponed

The #MillionsMissing Scotland demonstration, due to take place on Wednesday 14th, has had to be postponed. Following the death of Her Majesty the Queen, the Scottish Parliament is suspended, which means we won’t be able to achieve the aims of the event. We appreciate that it’s disappointing and apologise for any inconvenience caused, particularly to

Read More »
Advocacy
Ben HsuBorger

NIH Extends Funding for ME/CFS Research Centers

The National Institutes of Health (NIH) has taken steps to fix a “funding gap” in the timing of research awards for the ME/CFS Collaborative Research Centers (CRC) and the Data Management and Coordinating Center (DMCC). The currently-funded research centers which apply, and are approved, for another 5-year term will no longer face a 7-month funding

Read More »
Scroll to Top