COVID-19 and Long haul COVID Resources

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Advocacy News

mayo clinic building

Mayo Clinic Removes GET and CBT from CFS Webpage

The Mayo Clinic recently removed harmful recommendations of Graded Exercise Therapy (GET) and Cognitive Behavioral Therapy (CBT) for myalgic encephalomyelitis ...

Training opportunity to join our UK and Scotland social media teams

Being able to communicate information effectively and efficiently is key to much of the work #MEAction does. We are looking ...
Summer Update

Our Summer in Review: Advocacy and Education

What a Summer for Advocacy and Education! We know the summer isn’t over yet, but A LOT has been happening ...

Good Morning Britain gets it wrong on post-COVID treatment and ME

#MEAction UK has written a letter of complaint to Good Morning Britain in response to recent statements from Dr Hilary ...

Last week in review: CNN, Long-Covid Seminar, Severe ME Day & more!

Last week was inspiring and eventful! We had a huge turn-out for our US Advocacy Meeting about the National Institutes ...

Open letter demands action to safeguard people with ME, not just post-COVID patients

#MEAction UK have once again written to the National Institute for Health and Care Excellence (NICE) imploring them to act ...
researcher in lab examines chemical compounds

Report Part 2: NIH lacks coordinated response for long COVID research

The NIH is shaping research initiatives to study the long-term consequences of COVID-19 (long COVID), but it lacks the coordinated, ...
health technician with blood tubes in the clinical lab

Report Part 1: NIH is not advancing ME/CFS research

The NIH is doing little to expedite a coordinated, outcomes-focused plan for ME/CFS research, an enormous missed opportunity in the ...
Birds-eye view of crowd encircling around empty space where NIH logo is

Report Summary: What NIH is (and isn’t) doing for ME/CFS & long COVID research

As more and more COVID-19 survivors report disabling, multi-system symptoms lasting months on end, the National Institutes of Health (NIH) ...
COVID viral particles float around a person wearing a facemask that says MillionsMissing

Take action: graded exercise harming people with ME and COVID long haulers

#MEAction UK has sent an open letter to Matt Hancock asking him to recognise the harm caused by graded exercise ...