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Advocacy News

Read the new parliamentary briefing

Next Thursday, Parliament will hold a 3-hour Westminster Hall debate on Myalgic Encephalomyelitis treatment and research in a monumental victory ...

#MEAction Scotland Speaks at Scottish Parliament Petitions Committee – Watch the Video

#MEAction Scotland appeared before the Scottish Parliament Petitions Committee on June 7th to give evidence on its petition to review treatment of ME ...

Learn More About the UK Parliamentary Briefing

A key briefing to help parliamentarians understand the issues facing people affected by M.E. has been co-authored by #MEAction UK, ...

MPs Fight for House of Commons debate on ME in UK

MPs across the parties in the U.K. came together today to argue the case for scheduling a debate about Myalgic ...

Victory for ME Disability Claim – U.S. Court Upholds Plaintiff’s Lawsuit After Being Denied Disability

Today marked a victory for people with Myalgic Encephalomyelitis (ME) in the U.S. who are fighting against insurance companies to ...

Victory for #MEAction NY Activists: State Publishes Webpage about ME

The New York State Department of Health has recently established a new webpage about Myalgic Encephalomyelitis (ME) on its website, ...

NIH reply to my open letter (and a legal question from a peasant)

Samuel Wales, who has had ME for many years, has kindly allowed us to republish his latest blog post, which ...

Reanalysis of PACE Trial Shows GET and CBT are Ineffective

What would have been the outcome of the PACE trial had the investigators followed its original protocol instead of relaxing ...

Call-to-Action: Urge your State Health Department to Track ME!

Urge your state health department to track myalgic encephalomyelitis/ chronic fatigue syndrome! U.S. Call-to-Action: Please email your state health department and request ...

Post-Exertional Malaise & GET in ME/CFS – a guide to the research

“Post-Exertional Malaise & Graded Exercise Therapy in ME/CFS” Primer, December 2017 A member of #MEAction Network Australia has written a primer, ...