×

Advocacy News

People travelled from all over Scotland to attend #MillionsMissing Glasgow

Hundreds gather for #MillionsMissing Glasgow

#MillionsMissing Glasgow on 12 May, 2019, was a huge success, and took place in glorious sunshine which is fairly unusual ...

Read #MEAction’s Request for Information response to the NIH

The story so far NINDS, the National Institute for Neurological Disorder and Stroke at the NIH has solicited an RFI, or a ...

We are building a movement at #MEAction UK. Join us!

#MillionsMissing - organised by #MEAction - has been such a successful campaign this year, and we thank everyone in the ...

South Carolina Raises Awareness about ME

My name is Robert Jacobs, MD and I am a retired Physician and caregiver for my wife who has had Myalgic ...

Urgent – Contact Your Senators Now to Co-sponsor the ME/CFS Awareness Day Resolution

***UPDATE: THIS ACTION IS NOW OVER***   Please contact your SENATORS and urge them to co-sponsor a ME/CFS Awareness Day Resolution NOW! Although ...

What A Day…

What A Day… ME Advocacy Day 2019 was a huge success! #MEAction and Solve ME/CFS Initiative were very excited to partner for ...
Calculator on top of graph paper with pen to the right

CBT and GET survey results published by Forward-ME Group

In January 2019, a survey investigating the impact of graded exercise therapy (GET) and cognitive behavioural therapy (CBT) for people ...

GET and CBT are not safe for ME – summary of survey results

Listen to the recording:  #MEAction UK Lay Summary of the 2019 Forward ME Group CBT & GET Survey Topline findings A new patient ...

Plan for #MillionsMissing Now! Read the Toolkit!

#MillionsMissing 2019 is fast approaching, and now is the time to get started! Demonstrations calling for health equality for Myalgic ...

Here’s What to Expect for ME Advocacy Day 2019

Last day to register to attend Advocacy Day in Washington, DC on April 2-3rd! If you are wondering if attending Advocacy ...