United Kingdom News

Never miss a beat! Subscribe to our newsletter and select “Daily Digest” to get a summary of the day’s news & actions delivered to your inbox.

#MEAction

JNNP to publish edited rapid response by MEAction UK.

MEAction UK have been in communication with the BMJ and are delighted to announce that the Journal of Neurology, Neurosurgery & Psychiatry (JNNP) are publishing an edited version of our rapid response to  ‘Anomalies in the review process and interpretation of the evidence in the NICE guideline for chronic fatigue syndrome and myalgic encephalomyelitis’. We

Read More »
Update
#MEAction

#MEAction UK interim update on JNNP complaint.

#MEAction UK has now received a reply to our complaint about the removal of our rapid response from the Journal of Neurology, Neurosurgery & Psychiatry (JNNP).  ‘Thank you for your email. I can confirm that your complaint has been received and is currently under review by the Content Integrity team at BMJ. We will endeavour

Read More »
#MEAction

DHSC interim delivery plan on ME/CFS

My full reality: the interim delivery plan on ME/CFS is a great opportunity for the ME community to make our voices heard. Reading the interim plan and completing the survey is a big committment for #pwME so we have put together a document with advice on how to save your answers, a list of FAQs

Read More »
#MEAction

MEAction UK challenges removal of rapid response from JNNP website.

MEAction UK has sent the following letter to the BMJ Editor in Chief, the JNNP Editor in Chief the and the JNNP Editorial Office Team to request more information following the removal of our rapid response to the paper published in the JNNP this month. We are disappointed that the JNNP decided to remove our

Read More »
#MEAction

MEAction UK submits a rapid response to the JNNP in support of NICE.

Below is the text of MEAction UK’s rapid response submitted to the JNNP article that was published 10th July 2023. In the article ‘Anomalies in the review process and interpretation of the evidence in the NICE guideline for chronic fatigue syndrome and myalgic encephalomyelitis’ published in the Journal of Neurology, Neurosurgery & Psychiatry on 10th

Read More »
#MEAction

MEAction UK’s response to the Guardian article 11 July 2023

MEAction UK is preparing a detailed response to the latest published paper attacking the NICE Guideline on ME/CFS. In the meantime this is the response sent to The Guardian in reply to their article covering the publication. MEAction UK was shocked to read the article ‘ME/CFS guidance that discourages exercise is flawed, say researchers’ published

Read More »
the words " #MillionsMissing 2023: Scotland calls for healthcare education" appear in white on a red-muted background with the #MEAction Scotland UK logo in the bottom right hand corner.
#MEAction Scotland

#MillionsMissing 2023: Scotland calls for healthcare education

This year, #MEAction Scotland’s #MillionsMissing campaign focussed on raising awareness of the reality of living with ME and called for education and training for healthcare professionals to improve support for people with ME across Scotland. Ahead of ME Awareness week, we put out a call, alongside #MEAction UK, to ask members of the ME community

Read More »
Group of ME Action volunteers standing outside the Scottish Parliament at Millions Missing 2022, wearing red ME Action t-shirts and smiling at the camera. Two in the middle are holding a large sign which says Millions Missing spaced in between outlines of people.
#MEAction Scotland

#MEAction Scotland’s plans for #MillionsMissing

This year, #MEAction Scotland will be doing smaller, more focused activities for #MillionsMissing than previous years, and we are asking the community to take part in the digital campaign, rather than joining us in person. We also need people to email their MSPs, which there is information about below. Volunteers are planning two main activities

Read More »
2023 #MillionsMissing in white and black on a red background. The words, Join the UK and Scotland Digital Campaign in black marker font towards the bottom. The #MEAction UK and Scotland logos are the bottom left and right hand corners.
#MEAction Scotland

Join the UK and Scotland’s digital campaign this #MillionsMissing

May is nearly here and that means so is ME Awareness Week and #MillionsMissing! This year, #MEAction Scotland and #MEAction UK are returning to the central theme of #MillionsMissing – drawing attention to the people missing from their previous lives and wider society because of ME. Most people don’t understand how widespread ME is, or

Read More »
#MEAction Scotland

DHSC released a new progress Report

DHSC has released an update on the progress of the work underway to support the development of a Delivery Plan on Myalgic Encephalomyelitis / Chronic Fatigue. This is dated from December 2022.You can read the full report using the link below: DHSC Information Bulletin Dec 22 FINAL MECFS updated

Read More »
A photo from Millions Missing Scotland of a group of 20 protestors outside the Scottish Parliament. They’re looking serious and holding signs that say Millions Missing, and a pledge signed by MSPs. Many are wearing red ME Action t-shirts. A yellow icon of a person is overlaid next to them with an arrow pointing to it and the words ‘Could it be your MSP?’ A red banner along the bottom says ‘Share your story and ask your MSPs to stand up for people with ME.’
#MEAction Scotland

Ask your MSPs to stand up for people with ME

Sue Webber MSP’s motion about ME will be debated in the Scottish Parliament on Thursday 2nd February – and your MSPs should be there! The motion calls on the Scottish Parliament to recognise the outcomes and recommendations of the stakeholder report on ME, including education of healthcare professionals and development of specialist services. We’re pleased

Read More »
Red graphic with white text which says '#MEAction Scotland’s November community call.' Below is a graphic of a pair of hands typing on a laptop. On the screen is nine people on a video call and there are speech bubbles on either side.
#MEAction Scotland

#MEAction Scotland’s November Community Call

#MEAction Scotland’s latest community call took place on Wednesday, 23rd November. People with ME from across Scotland joined four volunteers to catch up on what #MEAction Scotland has been doing since the summer. First up was feedback on a very successful #MillionsMissing event at the end of September. The main focus of that event was

Read More »