COVID-19 and Long haul COVID Resources



Tools for awareness, education, self-advocacy and activism.

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Fact Sheets: 
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Support, Education, and Awareness

Medical & Scientific Fact Sheets

Diagnostic criteria:
Other resources:

Advocacy Handouts

#MillionsMissing 2019
UK Leaflet

#MillionsMissing 2019
EU Leaflet

Advocacy Toolkits

Unrest Screening Toolkits

Educational video

Video: Diagnosis and Management of Myalgic Encephalomyelitis and Chronic Fatigue Syndrome

This video is a part of the Unrest Continuing Education module for healthcare providers. While technical, it can also be used as standalone introduction to the diagnosis and management of ME. To encourage healthcare providers to take the Unrest CME, download this flyer and share it with doctors, nurses, and social workers


MEPedia is an excellent place to learn everything about the history, science and medicine of ME, CFS, and related diseases.

Everyone can contribute to MEpedia! Anyone can create pages, write content, add links/citations, fact-check, or even just fix typos. Everyone has something to offer, whatever your skills & experience, even if you have never edited a wiki (like Wikipedia) before. Get involved and help the patient community identify all of the best and most important resources for our disease and its research, treatment and history. Jump in!  Join the Facebook Group.


#MEAction Press Kit

Press KitPress releases | #MEAction in the News | Our Photos | Our VideosContact

Media Resources

What is ME? |  Selected Media Coverage of ME |  Films and books about ME

How-to Guides

Launch a Petition | Make your Petition a Success Organize a Protest | Talk to the Press about ME | Get a City or State Proclamation for ME | Make your Events Accessible | Making Your Activism Accessible

Case Studies and Great Ideas

Learn from our movement’s most successful examples and the examples of other movements.


#MillionsMissing Toolkits