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Photo is of Rosie with her niece 10 years ago. Today we honor the life of Rosie Bayman who died
The National Institute for Health and Care Excellence (NICE) are updating their guidelines on ME. As part of this
#MEAction advocate, Terri Wilder, and #MEAction board member, Ryan Prior, are co-presenting at the Stanford MEDx conference this weekend
Great news! Remember the petition that asks the EU to fund biomedical research on ME? It will be discussed
This month, #MEAction is honored to nominate Wilhelmina Jenkins as our Volunteer-of-the-Month. Wilhelmina has been fighting for recognition and
We were excited to see #MEAction’s Director of Scientific and Medical Outreach, Jaime Seltzer, give a talk about “Big
#MEAction’s Postcards to Doctors initiative has been successful beyond our wildest hopes! Since August 1, we’ve received requests for
As part of our ongoing advocacy work, #MEAction UK has been campaigning for the National Institute for Clinical Excellence
The U.S. Center for Disease Control and Prevention (CDC) has initiated various projects focused on myalgic encephalomyelitis / chronic
California advocates for myalgic encephalomyelitis (ME) are fighting for the state to institute a statewide Centers of Excellence program
Attend the 3rd Annual Community Symposium on Molecular Basis of ME/CFS – Register to Attend or Watch
Stanford University is holding its 3rd Annual Community Symposium on the Molecular Basis of ME/CFS at Stanford University on Saturday, Sept. 7,
We are excited to announce our newest Social Media Ambassador, Clarinda Viviers, from South Africa! A social media ambassador
U.S School Nurses, Teachers & Counselors can now take Continuing Education Course about Pediatric ME/CFS
School nurses, counselors, social workers or teachers in any U.S. state can now earn earn 3.25 Continuing Education credits (CNE) for
Australian philanthropic trust the Mason Foundation will establish the first Australian national ME/CFS biobank and patient registry, with a $1 million grant. The grant consists of two components: the biobank and patient registry, and a research project which uses the samples stored in the biobank. This is significant news for the Australian ME/CFS community, and has been picked up by mainstream media.
The Greater London Authority’s offices have held two Unrest screenings over the past few months to raise awareness of
An update on Gigi’s situation: Gigi’s family are launching an urgent appeal to find lawyers to bring their daughter,
Listen to the article: #MEAction is pleased to welcome Michelle Pinedo to our Board of Directors. Michelle brings over 20
Today, we honor the millions of people around the world living in darkened rooms where sound and light and
Researchers, patients and clinicians are invited to submit a manuscript for consideration in a special issue of WORK: A Journal
Help ME/CFS Research and Clinical Care Research Win the Frontiers Spotlight Award! Download and View the Research!
A series of 24 papers on ME/CFS called “Advances in ME/CFS Research and Clinical Care,” published in 2018-2019 in
#MEAction UK has written a letter with regards to a survey that states it is to protect specialist CFS/ME
#MEAction is honored to announce our volunteers-of-the-month, Innie and Pyrrhus, who are extremely dedicated contributors to MEpedia, our wiki encyclopedia for the
Listen to the article: Part 1: Part 2: In the past two weeks, The Guardian/The Observer and Psychology
The ME community is rallying around 17-year-old Jehan “Gigi” who has been hospitalized with severe myalgic encephalomyelitis (ME) in
Bateman Horne center is opening applications for the #MEAction Blue Ribbon Fellowship. Announcing clinical clerkship opportunity for 4th-year medical
The #MEAction Blue Ribbon Fellowship is excited to announce that medical student, Christopher Larrimore of Nova Southeastern University, has
The final report from Australia’s National Health and Medical Research Council’s (NHMRC’s) ME/CFS Advisory Committee, established in late 2017, has been released. The committee was tasked with advising NHMRC’s CEO on current needs for research and clinical guidance for ME/CFS in Australia.
Hello EU! The best way to combat a hopeless situation is to act! Please help us by signing a
The love of my life battles ME/CFS. It’s a disease that my father has also struggled with since I
A Bay area-based photographer is seeking people with myalgic encephalomyelitis (ME) who are willing to share their stories and to be
Originally published on ME Australia. by Sam* Sam (*not her real name) is a teenager living in Australia’s largest
By Christopher Armstrong, PhD, OMF Science Liaison When the Harvard ME/CFS Collaborative at Harvard Affiliated Hospitals was initiated last
We’re so excited to announce we’re growing our community’s impact through the expansion of #MEAction USA’s formal State Chapters.
Volunteers are at the heart of everything #MEAction Scotland does. We are always looking for more people to help
I’m Hannah Bowlus and I’m the administrative assistant at #MEAction. I take care of basic things like mailing