ABOUT #MEACTION SCOTLAND
#MEAction Scotland is a volunteer-led group determined to raise awareness of ME in Scotland and campaign for health equality for the patient community. We are an affiliate of #MEAction UK.
Responsibility for delivery of health services and policy decisions in Scotland are devolved to the Scottish Parliament. By being Scotland-specific, #MEAction Scotland can engage directly with Members of Scottish Parliament (MSPs) and NHS Scotland health boards. Where projects affect the whole of the UK, we work closely with the UK team.
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#MEAction UK’s press team was instrumental in getting an excellent article published in the Daily Mail at the beginning of January. The article criticises the blanket advice of GPs to recommend exercise for long COVID patients without taking into consideration those with symptoms of ME, particularly post-exertional malaise.
Moving short film “This is ME” shares more in nine minutes than most people with ME can begin to share in words alone.
#MEAction UK volunteers have worked to produce a robust and comprehensive response to the draft ME/CFS guideline from NICE.