ABOUT #MEACTION SCOTLAND
#MEAction Scotland is a volunteer-led group determined to raise awareness of ME in Scotland and campaign for health equality for the patient community. We are an affiliate of #MEAction UK.
Responsibility for delivery of health services and policy decisions in Scotland are devolved to the Scottish Parliament. By being Scotland-specific, #MEAction Scotland can engage directly with Members of Scottish Parliament (MSPs) and NHS Scotland health boards. Where projects affect the whole of the UK, we work closely with the UK team.
Our Work
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Choose your top ten ME/CFS research priorities – UK survey launched
Take the survey The ME/CFS Priority Setting Partnership (PSP) is giving you the opportunity to define your top ten priorities for future ME/CFS research. In partnership with the James Lind Alliance, the ME/CFS Priority Setting Partnership is launching their second survey today. The research questions in this survey are based on over 5300 ideas submitted
Get Involved in Campaigning
To get involved in any aspect of our work in Scotland, click on the image to contact us and arrange a chat with one of our volunteers.
You can also click here to join our #MEAction Scotland Facebook group.
MEET YOUR MSP
#MEAction Scotland has developed a guide to give you the basic tools to help you feel confident in meeting your MSP. Click the photo above to read it now.
Explore OUR RESOURCES
Take a look through the resources our volunteers have created to help you understand our work, as well as factsheets and guides to enable you to take action.
LATEST News
Choose your top ten ME/CFS research priorities – UK survey launched
Take the survey The ME/CFS Priority Setting Partnership (PSP) is giving you the opportunity to define your top ten priorities for future ME/CFS research. In partnership with the James Lind Alliance, the ME/CFS Priority Setting Partnership is launching their second survey today. The research questions in this survey are based on over 5300 ideas submitted
Statement from Forward-ME on NICE Roundtable
After NICE held its roundtable to discuss the new ME/CFS guideline, Forward-ME (which #MEAction UK is a member of) have produced the below statement. Clinician and Patient Support Confirmed for new NICE Guideline on ME/CFS. On Monday, Forward-ME and member charities attended a roundtable to review the new ‘NICE guideline on ME/CFS’ with representatives from
“The treatment of ME has been Dickensian” – NICE’s roundtable on the ME/CFS guideline
After NICE’s roundtable, Janet Sylvester tells us: “I felt this was a positive meeting. There were large areas of agreement from all attendees, including all acknowledging the terrible experiences people with ME have had to endure. Together, the representatives from ME patient organisations were able to strongly get across the reality for people living with ME. I’m optimistic the guidelines will be published.”
EXPLORE OUR SCOTTISH RESOURCES
Contact the Scottish team
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