ABOUT #MEACTION SCOTLAND
#MEAction Scotland is a volunteer-led group determined to raise awareness of ME in Scotland and campaign for health equality for the patient community. We are an affiliate of #MEAction UK.
Responsibility for delivery of health services and policy decisions in Scotland are devolved to the Scottish Parliament. By being Scotland-specific, #MEAction Scotland can engage directly with Members of Scottish Parliament (MSPs) and NHS Scotland health boards. Where projects affect the whole of the UK, we work closely with the UK team.
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#MEAction has been hard at work continuing to advocate to the Department of Health and Human Services (HHS) on behalf of people with ME and Long COVID since our last update in May. HHS has been directed by the White House to play a leading role in coordinating the response to Long COVID and associated
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Last week, #MEAction Scotland volunteers held the first in a series of community calls. The online meetings will take place quarterly and have been set up to connect us with more people with ME and allies across Scotland. Our first call was a success! We were delighted to be joined by a mix of old
NICE news for Scotland! Throughout the development of the NICE guideline for ME/CFS, #MEAction Scotland has been in regular contact with the Scottish Government about the change needed in Scotland. Now that the guideline has been published, the government has got in touch to involve us in a development. What is the plan?The government plans
UPDATE: The research team have let us know that they’ve received a huge response to this request and they now have the information they need. They’ll be in touch with people individually if they are eligible to participate in the study. If you got involved, thanks for your support! Researchers at the University of the