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Blogger

Blogger Help us write news and opinion content for #MEAction and join a vibrant community of patient activists. Description:

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Community organizer

Community organizer Help us organize and expand the capacity of the ME community. Description: #MEAction’s community organizer is responsible for

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Editor

Editor Help us develop and coordinate a strategy for a more informed ME community. Description: #MEAction’s editor is responsible for

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Join Team Solve – Fundraising for ME/CFS Research

It will take more than people with ME/CFS to achieve a world free of ME/CFS. It will take a committed team of many rallying together to effect change – Families, loved ones and friends coming together to make a difference and fund progress. Join Team Solve and help us Solve ME/CFS!

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OMF Severely Ill Patient Study Raises $1 Million

The Open Medicine Foundation’s (OMF) Severely Ill Patient Big Data study is now fully funded with $1 million in private research funding thanks to a groundswell of crowdfunding efforts and several generous donations by anonymous donors!
Very little research has been done in the bedbound patients “Hopefully, the more severely ill will have a stronger signal of what’s going wrong.”

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DePaul Fatigue Study: ME, CFS, MS, Lupus, and Cancer

DePaul University researchers invite persons with ME, CFS, MS, Lupus, and Cancer to participate in a voluntary research study to determine which symptoms may be commonly experienced by individuals in multiple fatiguing illness groups, and which symptoms may be unique to each illness. Participation includes completion of a confidential online questionnaire, which takes approximately 45 minutes to complete.

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Study overturns old ideas on mitochondria

“Scientists are reporting the first clear evidence that muscle cells distribute energy primarily by the rapid conduction of electrical charges through a vast, interconnected network of mitochondria — the cell’s “powerhouse” — in a way that resembles the wire grid that distributes power throughout a city.”

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Help Shape Research in the NHS

The UK’s National Institute for Health Research (NIHR) is asking for suggestions from patients, carers and members of the public for tests and treatments that need to be researched.

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