Exciting news about Mayo Clinic!

We’ve got some very exciting news this week!

Clinicians working at the Long COVID clinic at Mayo Clinic’s campus in Rochester, Minnesota met with #MEAction to discuss treatment, research and improved community engagement for people with ME! They reached out to us because they were interested in engaging with a national patient-led organization with strong community ties.

Mayo Clinic is a leader in clinical care in the United States. Many healthcare providers in the US and beyond look to Mayo Clinic for guidance on diagnosis and treatment. But ensuring they offer the best clinical care for people with chronic complex disease is also personal: our own staff and volunteers have identified a need to collaborate with Mayo Clinic.

Now, we are making that happen. Our Director of Scientific and Medical Outreach, Jaime Seltzer, and our US Advocacy Director, Ben Hsuborger, have had detailed, respectful, and frank conversations with Mayo Clinic, and discussions around what should change.  

 At every point we’ve been met with enthusiasm and receptiveness to our feedback. The leadership of doctors and researchers we’ve met have demonstrated a commitment and passion to have the Mayo Clinic lead the way in treatment and research for people with ME. 

While success is never guaranteed, we are grateful for this amazing opportunity to make a difference, and moved by the possibilities with this collaboration with Mayo Clinic.

Our success is all because of you. The support you’ve continued to give us year after year has made us the kind of trusted community organization that clinicians at Mayo want to talk to.

 We will be sharing more with you as soon as more becomes available.

Facebook
Twitter
WhatsApp
Email

3 thoughts on “Exciting news about Mayo Clinic!”

  1. I hope #MEACTION waits to see if the Mayo clinic actually does anything positive for ME/CFS patients before giving the Mayo clinic any free positive publicity. They need to earn the support and trust of the ME/CFS community given their history of neglecting and belittling our illness.

  2. Mayo has very long been horrifically bad about spreading dangerous misinformation about ME and other contested illnesses. I think this should be acknowledged by you and them. If they start being competent, I will be thrilled and very happy to give credit where credit is due.

Comments are closed.

Latest News

Text across top of image reads: "Experts in infection associated chronic illness" with "WE WANT YOU!" bolded below it. Hand with finger pointed out at viewer. "Apply now" buttons to the left and right with mouse cursor clicking on them.

Infection-associated chronic disease experts needed at ARPA-H

Congress launched ARPA-H (the Advanced Research Projects Agency for Health) this past March to focus on high-risk, high-reward research projects with the goal to solve intractable health problems. As ARPA-H is in the process of hiring its first cohort of program managers, #MEAction and a coalition of chronic disease advocacy groups have published an open

Read More »

Help keep our work going

We rely on donations from people like you to keep fighting for equality for people with ME.

Donate

Get actions alerts and news direct to your inbox

You can choose what you want to be kept up to date on.

Subscribe
Scroll to Top