Exciting news about Mayo Clinic!

We’ve got some very exciting news this week!

Clinicians working at the Long COVID clinic at Mayo Clinic’s campus in Rochester, Minnesota met with #MEAction to discuss treatment, research and improved community engagement for people with ME! They reached out to us because they were interested in engaging with a national patient-led organization with strong community ties.

Mayo Clinic is a leader in clinical care in the United States. Many healthcare providers in the US and beyond look to Mayo Clinic for guidance on diagnosis and treatment. But ensuring they offer the best clinical care for people with chronic complex disease is also personal: our own staff and volunteers have identified a need to collaborate with Mayo Clinic.

Now, we are making that happen. Our Director of Scientific and Medical Outreach, Jaime Seltzer, and our US Advocacy Director, Ben Hsuborger, have had detailed, respectful, and frank conversations with Mayo Clinic, and discussions around what should change.  

 At every point we’ve been met with enthusiasm and receptiveness to our feedback. The leadership of doctors and researchers we’ve met have demonstrated a commitment and passion to have the Mayo Clinic lead the way in treatment and research for people with ME. 

While success is never guaranteed, we are grateful for this amazing opportunity to make a difference, and moved by the possibilities with this collaboration with Mayo Clinic.

Our success is all because of you. The support you’ve continued to give us year after year has made us the kind of trusted community organization that clinicians at Mayo want to talk to.

 We will be sharing more with you as soon as more becomes available.

Facebook
Twitter
WhatsApp
Email

3 thoughts on “Exciting news about Mayo Clinic!”

  1. I hope #MEACTION waits to see if the Mayo clinic actually does anything positive for ME/CFS patients before giving the Mayo clinic any free positive publicity. They need to earn the support and trust of the ME/CFS community given their history of neglecting and belittling our illness.

  2. Mayo has very long been horrifically bad about spreading dangerous misinformation about ME and other contested illnesses. I think this should be acknowledged by you and them. If they start being competent, I will be thrilled and very happy to give credit where credit is due.

Comments are closed.

Latest News

blue rectangle image with the NIH logo in the top left hand corner. the words: NIH MECFS Research Roadmap Update Public comments open until March 8th appear in the middle of the image. the meaction logo is in the bottom right hand corner.

NIH ME/CFS Research Roadmap Update–Public Comment Period Now Open

The NIH ME/CFS Research Roadmap public comment period is open now with a deadline of March 8th.  #MEAction is a member of the ME/CFS Research Roadmap Working Group and for the past several months we have been advocating on behalf of this community within this group. Our Executive Director, Laurie Jones, served on the nervous

Read More »
a rectangle image with multiple small hearts in the corners. The words, Valentine's Day Interview with Jamison Hill and Book Promotion. The cover of the book is next to the words. The #MEAction logo at the bottom.

Valentine’s Day Interview with Jamison Hill & Book Promotion

We are excited to bring you a special Valentine’s Day promotion of Jamison Hill’s most recent book, Something’s Wrong with Micah.  #MEAction had the pleasure of having a Twitter chat with Jamison when his memoir When Force Meets Fate came out. We now get to bring this Q&A about his newest book to you. Jamison

Read More »
on a red sparkly rectangle image. The words "#MEAction's Volunteer Program Revamped!" are written in an arcade/game font. Sign-Up Today! The #MEAction logo in the bottom right corner

#MEAction’s Volunteer Program Revamped

Exciting news: #MEAction revamped our volunteer program for the new year! We are honored to have wonderful volunteers including people with ME, Long Covid, and other associated conditions as well as our caregivers, allies, and wider communities. Volunteering with #MEAction can and does make all the difference. We invite you to join our program! Our

Read More »
Scroll to Top