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Excerpts from Llewellyn King’s article Virus Hunters Turn to Social Media — and Chili Peppers posted on Huffington Post,
Australian Parliament is asking for public submissions into chronic disease prevention and management in primary health care, let’s tell them about ME and ask for help!
Open Medicine Foundation (OMF) End ME/CFS Project This is a game-changing initiative to find a cure for ME/CFS, a
Palo Alto Online recently published a series of three articles highlighting the struggles faced by Mylagic Encephalomyelitis (Chronic Fatigue
I have started a petition as I feel the general public need to be more educated on chronic illnesses.
Meet Mike, the man behind Mike’s EU Marathon Challenge Mike has pledged to run 28 marathons for Myalgic Encephalomyelitis
Compare real sufferers of FM, CFS and MCS to models who ‘portray’ these illnesses for magazines and articles on the net is very easy (and sad)
BBC Interview about ME Awareness and Fundraising! We have been overwhelmed by the response to Tom’s Marathon for ME
Why $250,000,000 in research funding? The #MEAction flagship Funding Equality Petition is called “Tell Congress to Support Funding Equality
#MEawarenesshour: first symptom-themed hour, 24th June Next Wednesday (24th june) we’ve decided to try something a little different for
Tune in to the LIVE webcast on July 1st, 1:00PM EST and watch Dr Ian Lipkin and Dr Mady
Researchers at Columbia CII have taken on the #chilliMEchallenge – and they just made it a whole lot spicier!
We have our next update on END ME/CFS’s Big Data study of severely ill patients and the sum raised so far is an amazing $103,840, from 235 donations.
#MEAwarenesshour uses Twitter to reach beyond the ME/CFS patient community From the organizer, Amanda Carroll: The 10th of June
The Artist book consists of a set of loose A5 sheets, gathered in a custom-made wooden box, reflecting on life with chronic illness seen through art and nature.
Online art and health exhibition featuring extracts from “The State of ME” As part of London Creativity and Wellbeing
We humbly ask for the community’s help to fundraise for a field worker in Auckland, New Zealand. We hope to set a precedent for the international community, providing a platform for other countries to campaign for their own field workers
Excerpted from Science and Popular Science A new test called VirScan would allow a patient to be tested for
Every Wednesday #MEawarenesshour is a set time to tweet and share stories about the illness, personal experiences, research, funding
Contact your Congressional Delegation – Share Llewellyn King’s article and ask them to speak up for ME/CFS Please find
I have learned to cope with M.E., a serious and potentially disabling chronic disorder, through art and creativity. Excerpted
The NIH Pathways to Prevention workshop panel will hold a press telebriefing to discuss their findings and answer questions
28 Marathons for Myalgic Encephalomyelitis Awareness and Research I’ll be running a marathon in each of the 28 EU
The demonstration has kicked off yesterday June 1st, with a great start, at the Justice Department in Washington DC.
It’s rare that new research means rewriting textbooks. But new information discovered by University of Virginia School of Medicine researchers
ME/CFS Illness Management Survey Results “No Decisions about me without me” The ME Association just released the results of
My brother has made a video to promote his participation in the Edinburgh marathon (31st May) in aid of ME Research UK. Although partly a fundraising initiative, the video also delivers a powerful message and can be used as a tool for raising awareness. It has been viewed over 4,000 times in one week, and so far raised roughly the same amount in £. Please share as widely as possible. https://www.youtube.com/watch?v=dgovI7Q273g (or go to YouTube and search for ‘ME awareness – Tom’s appeal”
We are conducting a research study because we are trying to learn more about what occurs before and during post-exertional malaise for individuals with Myalgic encephalomyelitis (ME) or chronic fatigue syndrome (CFS), as well as how these individuals define the term post-exertional malaise. We are asking you to be in the research because you have a diagnosis of ME or CFS, speak English, and are 18 years of age or older. If you agree to be in this study, you will be asked to complete a survey. The survey will include questions about your post-exertional malaise experiences related to your ME or CFS. We will also collect some personal and demographic information about you, such as age, gender, race, marital status, income, level of schooling, disability information, and work status. The full survey can be completed online. If there is a question you do not want to answer, you may skip it.