#MEAction Denounces Use of CBT in Treatment for Chronic Fatigue Syndrome

Share on facebook
Share on twitter
Share on email

FOR IMMEDIATE RELEASE: Wednesday, November 2, 2016
CONTACT: L.A. Cooper |[email protected] and [email protected]
 
#MEAction Denounces Use of CBT in Treatment for Chronic Fatigue Syndrome
Patients with ME/CFS Urge NHS to Adopt Scientifically-Sound Approaches to Treatment
Study Finds No Difference in Treatment for ME/CFS Patients At Long-Term Follow-Up
According to reports in The Guardian and BBC yesterday, hundreds of young patients in the UK suffering from myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS) are set to receive online psychological therapy. FITNET will cost £1million, to be funded by British taxpayers — yet the Dutch study on which the trial is based found no difference in patients at long-term follow-up.  
#MEAction, an international network of ME patients, along with other patient groups and scientists from around the world, condemn the waste of resources on such inherently flawed studies.  Arguing that an intervention that consistently shows null results at long-term follow-up is not worth pursuing further.
The proposed study – known as ‘FITNET’ – shares many flaws with the debunked PACE trial, which was described as “the height of clinical trial amateurism” by Dr. Bruce Levin of Columbia University. It was subsequently discovered that scientists misrepresented the efficacy of cognitive behaviour therapy and graded exercise therapy in ME patients — but only after a protracted battle to obtain the open-sourced data.
It’s “more meaningless research based on flawed assumptions and bad studies,” said David Tuller, of University of California, Berkeley.  “What a huge waste of time and money!  When will these people let go of their dysfunctional and delusional belief that CBT is the pathway to ‘recovery’ from this disease?  It’s complete nonsense.”
“Time and again, research has shown that graded exercise and cognitive behavioral therapy are not effective treatments for those suffering from ME,” said L.A. Cooper of #MEAction Network UK.  “To state that it is curative would be misleading, and ultimately very damaging.”
Meanwhile, researchers worldwide continue to forge ahead with groundbreaking discoveries in ME/CFS: Fluge and Mella of Haukeland University have shown that an anti-cancer drug causes remission in a significant percentage of patients; Ian Lipkin and Mady Hornig of Columbia University have shown disturbed cytokine production patterns that differ early versus late in the illness; and numerous researchers in the US and UK have identified metabolic abnormalities in patients that differ vastly from controls, including Naviaux, who memorably stated that patients’ cells appear to be in a form of metabolic hibernation.  Last year’s US Institute of Medicine Report unequivocally stated that ME/CFS is not a psychological illness after critically reviewing over 9000 pieces of scientific literature. The US Agency for Healthcare Research and Quality downgraded its recommendations for CBT and GET, stating that there was not enough evidence to label them effective treatments for ME/CFS.  
“We can’t continue to feign ignorance and pretend other countries aren’t speeding ahead. The concept that ME can be improved with solely behavioural techniques is decades old, and frankly, an embarrassment to the nation’s scientific and patient community,” added Cooper.

Share on facebook
Facebook
Share on twitter
Twitter
Share on whatsapp
WhatsApp
Share on google
Google+
Share on email
Email

3 thoughts on “#MEAction Denounces Use of CBT in Treatment for Chronic Fatigue Syndrome”

  1. What a succinct and well-written article.
    I live in the UK and was intending to comment on some of the stories appearing in the newspapers recently, but have refrained because I have been struggling to formulate a short but authoritative rebuttal which encompasses the important details. This is perfect. Thank you once again folks. You’re doing an AMAZING job!

  2. A really well written very clear article that covers everything that needs covering. This should be printed in the major UK Newspaper.
    It is clear, concise and takes a firm stand as is needed.
    No more nonsense – the UK a very quickly making themselves the mockery of the scientific world.
    Thank you for all your hard work.

  3. Really excellent. Sometime, someone will have to start listening, and well written articles like this are massively helpful in spreading the word to everyone.

Leave a Comment

Your email address will not be published. Required fields are marked *

Latest News

Sign petition To Fix ME/CFS tracking In US!

In August, we shared with you that we and six other ME/CFS organizations had submitted a proposal to the National Center of Health Statistics (NCHS) to fix the coding of ME/CFS in the US International Classification of Diseases (ICD-10-CM). Today, we are writing with an update on that proposal and asking that you sign the

Read More »

NICE announces roundtable event to ensure implementation of ME/CFS guideline

NICE announced today that it will hold a roundtable in September as the next step in the publication of the ME/CFS guideline. The roundtable will include representatives from patient organisations and charities, relevant professional societies, NHS England and NHS Improvement, NICE and the guideline committee. It aims to, “better understand the issues raised and determine

Read More »

#MEAction & 6 ME Orgs Call for CDC to Change How it Tracks ME/CFS

Together with six other organizations, we have submitted a proposal to the National Center for Health Statistics (NCHS) to add myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) to the neurological chapter of the International Classification of Diseases (ICD-10-CM).  Today, ME/CFS does not exist in the US ICD-10-CM. Instead,  most US doctors assign the code for chronic fatigue

Read More »

Help keep our work going

We rely on donations from people like you to keep fighting for equality for people with ME.

Donate

Get actions alerts and news direct to your inbox

You can choose what you want to be kept up to date on.

Subscribe
Scroll to Top