Send TGIF Letters to Francis Collins

Since the NIH missed its December deadline for releasing the Funding Opportunity Announcements (FOAs) for ME and has set a new deadline for the end of January, I am going to email Dr Collins every Friday to remind him of the urgency of this matter.
It would be wonderful if he received LOTS of these Friday letters.
Some ideas: Aloha Friday –TGIF but not for ME — What are you doing this weekend? I will be home in bed.
Whatever people decide to say, he needs to hear from LOTS of us until the FOAs are released. We must hold his feet to the fire.
Send your emails to:
[email protected], [email protected]
Thanks,
Jane Pannell

Facebook
Twitter
WhatsApp
Email

6 thoughts on “Send TGIF Letters to Francis Collins”

  1. I will be doing this with you, Jane! I’m very very sick. Have been for 27 long years, with little help from my government.
    — Rivka

Comments are closed.

Latest News

Blue square image with starbursts in the corners. the words, submit long covid drug recommendations to recover -tlc! are in the middle of the image, surrounded by thin white lines. the meaction logo is at the top of the image.

Submit Long COVID Drug Recommendations to RECOVER-TLC!

Last month, RECOVER TLC met at NIH headquarters in Bethesda. The goal was to initiate a drug development strategy for Long COVID clinical trials. Now, RECOVER TLC has opened the RECOVER-TLC Intervention Information Request Form, where you can make suggestions about which drugs and other interventions to trial!  Anyone can submit a therapeutic for consideration

Read More »
A classroom of people watching a panel discussion.

The RECOVER-Treating Long COVID (RECOVER TLC) The Path Forward

The RECOVER-Treating Long COVID (RECOVER TLC) Kick-off Meeting was Sept 23-25 in person and over Zoom. I had the privilege of attending over Zoom and Jaime Seltzer, #MEAction’s Scientific Director, represented the needs of the ME community in person and as an invited member of a panel on clinical trial design. There were many speakers

Read More »
greyish rectangle image with the words: #MEAction is Excited to Announce: Pillow Writers Anthology Issue 1: Near-Life Experiences. In a small grey square the words Get Your Copy Today! with a black line underneath. On the right hand side of the square is the image of the book cover that has a water color of flowers. the #meaction logo is at the bottom of the image.

Pillow Writers Anthology, Issue 1: Near-Life Experiences Available Now!

The Pillow Writers Anthology, Issue 1: Near- Life Experiences is a new literary magazine in the disability community. This inaugural issue features poems, stories, and essays by 17 writers who call themselves the Pillow Writers. The Pillow Writers are an international group of writers living with the neuro-immune diseases of myalgic encephalomyelitis (ME) and Long

Read More »
Scroll to Top