Take Lenny Jason's survey on emotional impact of having ME

Lenny Jason‘s recent research paper, Mortality in patients with ME and CFS, found patients are significantly at risk for earlier all-cause mortality with the top three causes of death being suicide, cardiovascular problems, and cancer.  Jason is well-known for his epidemiology work, with over 80 articles on ME; he was also involved in the creation of the DePaul questionnaire.  Jason is also a patient.

In order to further examine suicide as a risk factor in ME, Jason’s team at DePaul University in Chicago is performing a survey-study entitled An Assessment of Demoralization and Depression-like Symptoms Experienced by Individuals with ME and CFS.

There has been a great deal of debate around whether or not mood disturbances do or can contribute to the development of ME.  However, little research has been performed on the effects of ME — both its symptoms and its stigma — on the individual’s emotional well-being.

The survey is for all individuals 18 or older who have been diagnosed with ME, CFS, or ME/CFS.  It assesses several factors that could potentially affect emotional well-being, including access to and quality of healthcare, illness severity, financial impact, and social interactions with both supportive and non-supportive people.  Jason’s team hopes to use this data to better understand the patient experience, and the types of barriers to receiving quality care and support.

This questionnaire will take approximately 90 minutes to complete.

You can access the survey by clicking on the button below:

[button_color url=”https://redcap.is.depaul.edu/surveys/?s=TNPC3XR8HE” content=”Take survey now” target=”https://redcap.is.depaul.edu/surveys/?s=TNPC3XR8HE”]

Please contact Stephanie McManimen ([email protected]; 773-325-4962) with any questions.

Facebook
Twitter
WhatsApp
Email

3 thoughts on “Take Lenny Jason's survey on emotional impact of having ME”

  1. A 90 minute survey?! I am very sick, there is very little chance that I could complete this survey. The very sickest will be self-selected out of this study.

  2. How do I return to my survey. It is so long winded I don’t wantt to fill it all out again.
    I cant find a Returning? Button.

Comments are closed.

Latest News

Graphic of yellow canary over black and white photo of a coal mine. Text reads "Canary Corps"

CANARY CORPS – Alison’s Story

Have you registered yet to join us this Wednesday, December 6th at 4pm ET / 1pm PT for a community presentation introducing the Canary Corps program? Ahead of Wednesday’s event we wanted to share with you Alison’s story. Alison Sbrana will be co-presenting this event, and much of the design of Canary Corps has been

Read More »
A rectangle image with a blueish/purple background. The words, "A Year of Exciting Medical Education Achievements" is in white font on the left hand side with the #MEAction logo underneath. On the righthand side is an image of Jaime Seltzer with a step and repeat and poster at the SDMI conference.

A Year of Exciting Medical Education Achievements

A year ago, we were proud to announce that #MEAction and Mayo Clinic Rochester had won a grant for diagnostic improvement, with Ravindra Ganesh, and Stephanie Grach, and I on the grant as co-investigators. Our project, Improving Diagnostic Accuracy of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Through Implementation of an Enhanced Education Protocol and Care Process Model

Read More »
a light orange rectangle with a burnt orange outline. in the box, there are orange flag garlands hanging in both top corners with orange confetti in the middle and at the top. in the bottom corners fall leaves. in the middle of the box the word, "OUR BOLDEST THANKS" in burnt orange. the #MEAction logo at the bottom.

#MEAction Shares Our Thanks for Your BOLD ACTIONS

During this time of thankfulness and gratitude, #MEAction staff wants to share what BOLD ACTIONS we are thankful our volunteers and community have taken throughout the year. We thought we could reflect together on all that we have accomplished this year and how every single one of us is important in this powerful community. A

Read More »