Take Lenny Jason's survey on emotional impact of having ME

Share on facebook
Share on twitter
Share on email

Lenny Jason‘s recent research paper, Mortality in patients with ME and CFS, found patients are significantly at risk for earlier all-cause mortality with the top three causes of death being suicide, cardiovascular problems, and cancer.  Jason is well-known for his epidemiology work, with over 80 articles on ME; he was also involved in the creation of the DePaul questionnaire.  Jason is also a patient.

In order to further examine suicide as a risk factor in ME, Jason’s team at DePaul University in Chicago is performing a survey-study entitled An Assessment of Demoralization and Depression-like Symptoms Experienced by Individuals with ME and CFS.

There has been a great deal of debate around whether or not mood disturbances do or can contribute to the development of ME.  However, little research has been performed on the effects of ME — both its symptoms and its stigma — on the individual’s emotional well-being.

The survey is for all individuals 18 or older who have been diagnosed with ME, CFS, or ME/CFS.  It assesses several factors that could potentially affect emotional well-being, including access to and quality of healthcare, illness severity, financial impact, and social interactions with both supportive and non-supportive people.  Jason’s team hopes to use this data to better understand the patient experience, and the types of barriers to receiving quality care and support.

This questionnaire will take approximately 90 minutes to complete.

You can access the survey by clicking on the button below:

[button_color url=”https://redcap.is.depaul.edu/surveys/?s=TNPC3XR8HE” content=”Take survey now” target=”https://redcap.is.depaul.edu/surveys/?s=TNPC3XR8HE”]

Please contact Stephanie McManimen ([email protected]; 773-325-4962) with any questions.

Share on facebook
Facebook
Share on twitter
Twitter
Share on whatsapp
WhatsApp
Share on email
Email

3 thoughts on “Take Lenny Jason's survey on emotional impact of having ME”

  1. A 90 minute survey?! I am very sick, there is very little chance that I could complete this survey. The very sickest will be self-selected out of this study.

  2. How do I return to my survey. It is so long winded I don’t wantt to fill it all out again.
    I cant find a Returning? Button.

Leave a Comment

Your email address will not be published. Required fields are marked *

Latest News

In Memory of Dr. Ronald G. Tompkins MD, ScD

Mourning the loss of Dr. Ron Tompkins

Today #MEAction joins the community in mourning the loss of Dr. Ronald G. Tompkins, MD, ScD, who passed away this week. Ron Tompkins was a clinician, clinical researcher, and friend and ally to people with ME. He was the Sumner M. Redstone Professor of Surgery at Harvard Medical School, Founding Director of the Center for

Read More »
National Institutes of Health campus buildings from above

NIH Long COVID research lacks clear plan to identify and track ME/CFS

MEAction has written to the National Institutes of Health (NIH) expressing our deep concern that the RECOVER Initiative research agenda lacks a clear plan for how to accurately identify or consistently track the onset of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) cases among patients with Long COVID. This is of particular importance because a sizable fraction

Read More »

The Last Two Years Changed the World…

What a year 2021 was! People with ME have always faced formidable challenges: every day combatting stigma, lack of understanding from clinicians, NIH’s and CDC’s low budgetary commitments, and a world of challenges navigating disability on top of symptoms.  It’s no exaggeration to say that 2020 and 2021 changed the world – and the world of chronic,

Read More »

Help keep our work going

We rely on donations from people like you to keep fighting for equality for people with ME.

Donate

Get actions alerts and news direct to your inbox

You can choose what you want to be kept up to date on.

Subscribe
Scroll to Top