Take Lenny Jason's survey on emotional impact of having ME

Lenny Jason‘s recent research paper, Mortality in patients with ME and CFS, found patients are significantly at risk for earlier all-cause mortality with the top three causes of death being suicide, cardiovascular problems, and cancer.  Jason is well-known for his epidemiology work, with over 80 articles on ME; he was also involved in the creation of the DePaul questionnaire.  Jason is also a patient.

In order to further examine suicide as a risk factor in ME, Jason’s team at DePaul University in Chicago is performing a survey-study entitled An Assessment of Demoralization and Depression-like Symptoms Experienced by Individuals with ME and CFS.

There has been a great deal of debate around whether or not mood disturbances do or can contribute to the development of ME.  However, little research has been performed on the effects of ME — both its symptoms and its stigma — on the individual’s emotional well-being.

The survey is for all individuals 18 or older who have been diagnosed with ME, CFS, or ME/CFS.  It assesses several factors that could potentially affect emotional well-being, including access to and quality of healthcare, illness severity, financial impact, and social interactions with both supportive and non-supportive people.  Jason’s team hopes to use this data to better understand the patient experience, and the types of barriers to receiving quality care and support.

This questionnaire will take approximately 90 minutes to complete.

You can access the survey by clicking on the button below:

[button_color url=”https://redcap.is.depaul.edu/surveys/?s=TNPC3XR8HE” content=”Take survey now” target=”https://redcap.is.depaul.edu/surveys/?s=TNPC3XR8HE”]

Please contact Stephanie McManimen ([email protected]; 773-325-4962) with any questions.

Facebook
Twitter
WhatsApp
Email

3 thoughts on “Take Lenny Jason's survey on emotional impact of having ME”

  1. A 90 minute survey?! I am very sick, there is very little chance that I could complete this survey. The very sickest will be self-selected out of this study.

  2. How do I return to my survey. It is so long winded I don’t wantt to fill it all out again.
    I cant find a Returning? Button.

Comments are closed.

Latest News

Text across top of image reads: "Experts in infection associated chronic illness" with "WE WANT YOU!" bolded below it. Hand with finger pointed out at viewer. "Apply now" buttons to the left and right with mouse cursor clicking on them.

Infection-associated chronic disease experts needed at ARPA-H

Congress launched ARPA-H (the Advanced Research Projects Agency for Health) this past March to focus on high-risk, high-reward research projects with the goal to solve intractable health problems. As ARPA-H is in the process of hiring its first cohort of program managers, #MEAction and a coalition of chronic disease advocacy groups have published an open

Read More »

BOLD ACTION is a Commitment to Healthcare Justice for People with ME

BOLD ACTION to me, means mobilizing our community to publicly demonstrate our deep and intense—as opposed to shallow and passive—commitment to seeing healthcare justice for people with ME. It is about bringing our issues to the forefront of public consciousness and putting strong pressure on our leaders to act. Taking BOLD ACTION is both a

Read More »

Help keep our work going

We rely on donations from people like you to keep fighting for equality for people with ME.

Donate

Get actions alerts and news direct to your inbox

You can choose what you want to be kept up to date on.

Subscribe
Scroll to Top