U.S.

Share on facebook
Share on twitter
Share on email

U.S.: Join us for a training on bird-dogging with Paul Davis, National Advocacy Coordinator for Housing Works on Sunday, Feb. 19 at 2:30pm E.T.
The call will run for 90 minutes.
The focus of this training will be on how to speak truth to power and protect (to the best of our ability) the Affordable Care Act (ACA), Medicaid, and Medicare. We must demand that any ACA replacement must cover more people with less out-of-pocket costs, and we must make these demands directly and publicly to our elected officials.
RSVP for the call – and get call-in details – here:
https://my.meaction.net/…/us-attend-the-me-activist-bird-do…
Learn skills that will help you DEMAND that elected officials craft health policy that (among other things) covers more people, decreases out of pocket expenses, and does not discriminate against people with pre-existing conditions.
Bird-dogging is a strategy used by activists who seek out elected officials, pin them down with specific questions or information, and retrieve their views. Because of the effectiveness of face-to-face interaction, contact with elected officials at town hall meetings, tele-town halls, and local offices cannot be over-valued.
New and seasoned activists are highly encouraged to attend; those just wanting to learn more are also very welcome.
We must build relationships with our elected officials by communicating with them regularly. Remember, we are mighty when we raise our voices together. Please join us and invite others!

Share on facebook
Facebook
Share on twitter
Twitter
Share on whatsapp
WhatsApp
Share on google
Google+
Share on email
Email

6 thoughts on “U.S.”

  1. Hi, I have signed up for this Webinar next Sunday. Would it be OK if I posted this event in one (or several) Facebook groups that I am working with in NYC? I attended Paul’s onsite training in NYC last Wednesday and thought it was terrific. Friends I’ve talked to have asked about getting the training also. On the other hand, I don’t want to overwhelm your servers.

  2. Heard one of Jennifer Brea’s pod casts. In 2009 I developed H1N1, then pneumonia and on to respiratory failure. Took 3 months but recovered some. I was a high functioning mom of 3, wife… RN and so much more. I relapsed 1 week after returning to work and then developed most of the symptoms described in the pod cast. It has been many years and I am not getting better. I have had injuries or problems with most of my organs since mostly due to the severe chronic infections I kept getting. I was diagnosed with CFS. It was recommended that I see psych. I recently was diagnosed with hypersomnia ?narcolepsy. I am not getting better. My whole life has been destroyed in so many ways. Some days I can barely get to the kitchen because I become so tired and have severe joint pain. I am definitely not the mom I want to be and am unable to work. No one understands. I don’t know if I am getting the appropriate treatments. This is not in my head and I am not making it up. Do you know of support groups? Have any recommendations on how to improve my quality of life? Someone I could talk with to to help validate my symptoms and compare journeys? I cannot afford to see MD’s out of my insurance network. I feel pretty lost and like such a failure. Everyone keeps saying “when you get back to yourself”, I just don’t thing that will happen. Any resources or recommendations would be so appreciated. Just talking to someone “like” me. IDK. Searching for anything that might help. I have seen so many doctors, been given weird meds that make me sick, but no one seems to be able to help me. Thank you.

    1. Hi Wendy-
      Thank you so much for posting. I am going to respond to you via email to connect you with some ME groups where you can talk with people who have gone through similar journeys.

Leave a Comment

Your email address will not be published. Required fields are marked *

Latest News

Sign petition To Fix ME/CFS tracking In US!

In August, we shared with you that we and six other ME/CFS organizations had submitted a proposal to the National Center of Health Statistics (NCHS) to fix the coding of ME/CFS in the US International Classification of Diseases (ICD-10-CM). Today, we are writing with an update on that proposal and asking that you sign the

Read More »

NICE announces roundtable event to ensure implementation of ME/CFS guideline

NICE announced today that it will hold a roundtable in September as the next step in the publication of the ME/CFS guideline. The roundtable will include representatives from patient organisations and charities, relevant professional societies, NHS England and NHS Improvement, NICE and the guideline committee. It aims to, “better understand the issues raised and determine

Read More »

#MEAction & 6 ME Orgs Call for CDC to Change How it Tracks ME/CFS

Together with six other organizations, we have submitted a proposal to the National Center for Health Statistics (NCHS) to add myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) to the neurological chapter of the International Classification of Diseases (ICD-10-CM).  Today, ME/CFS does not exist in the US ICD-10-CM. Instead,  most US doctors assign the code for chronic fatigue

Read More »

Help keep our work going

We rely on donations from people like you to keep fighting for equality for people with ME.

Donate

Get actions alerts and news direct to your inbox

You can choose what you want to be kept up to date on.

Subscribe
Scroll to Top