U.S.: Join us for a training on bird-dogging with Paul Davis, National Advocacy Coordinator for Housing Works on Sunday, Feb. 19 at 2:30pm E.T.
The call will run for 90 minutes.
The focus of this training will be on how to speak truth to power and protect (to the best of our ability) the Affordable Care Act (ACA), Medicaid, and Medicare. We must demand that any ACA replacement must cover more people with less out-of-pocket costs, and we must make these demands directly and publicly to our elected officials.
RSVP for the call – and get call-in details – here:
https://my.meaction.net/…/us-attend-the-me-activist-bird-do…
Learn skills that will help you DEMAND that elected officials craft health policy that (among other things) covers more people, decreases out of pocket expenses, and does not discriminate against people with pre-existing conditions.
Bird-dogging is a strategy used by activists who seek out elected officials, pin them down with specific questions or information, and retrieve their views. Because of the effectiveness of face-to-face interaction, contact with elected officials at town hall meetings, tele-town halls, and local offices cannot be over-valued.
New and seasoned activists are highly encouraged to attend; those just wanting to learn more are also very welcome.
We must build relationships with our elected officials by communicating with them regularly. Remember, we are mighty when we raise our voices together. Please join us and invite others!
#MillionsMissing 2023: Scotland calls for healthcare education
May 25, 2023
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This year, #MEAction Scotland’s #MillionsMissing campaign focussed on raising awareness of the reality of living with ME and called for education and training for healthcare professionals to improve support for people with ME across Scotland. Ahead of ME Awareness week, we put out a call, alongside #MEAction UK, to ask members of the ME community
6 thoughts on “U.S.”
Hi, I have signed up for this Webinar next Sunday. Would it be OK if I posted this event in one (or several) Facebook groups that I am working with in NYC? I attended Paul’s onsite training in NYC last Wednesday and thought it was terrific. Friends I’ve talked to have asked about getting the training also. On the other hand, I don’t want to overwhelm your servers.
Sorry for the delayed response– Please feel free to share!
Heard one of Jennifer Brea’s pod casts. In 2009 I developed H1N1, then pneumonia and on to respiratory failure. Took 3 months but recovered some. I was a high functioning mom of 3, wife… RN and so much more. I relapsed 1 week after returning to work and then developed most of the symptoms described in the pod cast. It has been many years and I am not getting better. I have had injuries or problems with most of my organs since mostly due to the severe chronic infections I kept getting. I was diagnosed with CFS. It was recommended that I see psych. I recently was diagnosed with hypersomnia ?narcolepsy. I am not getting better. My whole life has been destroyed in so many ways. Some days I can barely get to the kitchen because I become so tired and have severe joint pain. I am definitely not the mom I want to be and am unable to work. No one understands. I don’t know if I am getting the appropriate treatments. This is not in my head and I am not making it up. Do you know of support groups? Have any recommendations on how to improve my quality of life? Someone I could talk with to to help validate my symptoms and compare journeys? I cannot afford to see MD’s out of my insurance network. I feel pretty lost and like such a failure. Everyone keeps saying “when you get back to yourself”, I just don’t thing that will happen. Any resources or recommendations would be so appreciated. Just talking to someone “like” me. IDK. Searching for anything that might help. I have seen so many doctors, been given weird meds that make me sick, but no one seems to be able to help me. Thank you.
Hi Wendy-
Thank you so much for posting. I am going to respond to you via email to connect you with some ME groups where you can talk with people who have gone through similar journeys.
So I missed the webinar yesterday…is there a recording or replay available?
Hi Ellen- A recording should be up in the next couple of days.
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