The federal CFS Advisory Committee (CFSAC) will hold an in-person meeting on January 12 and January 13, 2017. CFSAC advises the Assistant Secretary for Health about issues relevant to the ME community, such as research, definition, access to care, and medical education.
As part of each meeting, CFSAC allows time for public comment. Anyone can sign up for a comment slot, and you can deliver comment in person or over the telephone. You can speak on any topic you like, although the Committee specifically invites comment at this meeting on:
- school accommodation issues
- methods/programs for meaningful stakeholder engagement
- clinical care and medical education challenges
- and/or the stigma associated with this disease
CFSAC meetings are one of the places where ME patients and activists can speak directly to the federal representatives from agencies, including NIH and CDC. It is a unique opportunity to provide input on current government efforts, and on what further action is needed.
The Committee welcomes input on any topic related to ME/CFS.
Don’t let this opportunity go to waste. It would be a shame (and an embarrassment) for us not to fill or exceed the capacity for comment slots.