ME/CFS Clinician Coalition Releases Recommendations for Tests & Treatments

Share on facebook
Share on twitter
Share on email

We are thrilled to see that the ME/CFS Clinician Coalition has released recommendations for medical providers on specific tests and treatments to use for caring for people with ME/CFS. 

This is a highly valuable tool for both COVID-19 long haulers experiencing ME/CFS symptoms (including post-exertional malaise, fatigue and cognitive dysfunction) to share with their doctors, and for long-term ME/CFS patients, the majority of whom have not been able to access an ME/CFS specialist. 

There is no biomarker for ME/CFS and standard medical tests often show up as “normal,” so these recommended tests enable the medical provider to understand better the abnormalities occurring in a patient with ME/CFS, and to target those with treatments. The recommended tests also includes tests for identifying common co-morbidities, such as postural orthostatic intolerance. 

The treatment recommendations are broken down by various aspects of ME/CFS, such as orthostatic intolerance, sleep and cognitive impairment, pain and immune impairment, and include both pharmacological and non-pharmacological treatments. In the Coalition’s recommendations, it is made clear that some people with ME/CFS may have a heightened sensitivity to medications, and for these patients, drugs should be started at low doses and increased slowly to avoid triggering drug sensitivities common in ME/CFS.


The U.S. ME/CFS Clinician Coalition is a group of US clinical disease experts who have collectively spent hundreds of years treating many thousands of ME/CFS patients. They have authored primers on clinical management, have served on CDC medical education initiatives, and are actively involved in ME/CFS research.

*Note: These treatment recommendations are intended as general guidance for medical providers and are not a substitute for clinical care by a physician.

Share on facebook
Facebook
Share on twitter
Twitter
Share on whatsapp
WhatsApp
Share on google
Google+
Share on email
Email

Leave a Comment

Your email address will not be published. Required fields are marked *

Latest News

Connecting Black People with ME and/or long Covid in the UK

Darren Randon, a poet, qualified teacher, community builder, facilitator, host and co-founder of Well Versed Ink from Thornton Heath, is launching a new group aimed at supporting Black and Black-mixed people with ME and/or long Covid in the UK. The group plans to create a safe space to share experiences and create community with the

Read More »

Severe ME Artists Project

#MEAction is excited to announce our Severe ME Artists Project which will feature work from those within the severe ME community in honor of Severe ME Day on August 8th! This project will be an opportunity for those with severe ME to showcase their artwork (whether it be writing, photography, drawing, singing, or any other medium that illustrates their talents) with multiple ways to participate based on a person’s energy levels.

Read More »

Help keep our work going

We rely on donations from people like you to keep fighting for equality for people with ME.

Donate

Get actions alerts and news direct to your inbox

You can choose what you want to be kept up to date on.

Subscribe
Scroll to Top