Solve M.E.’s Advocacy Week and the Long Covid Alliance

Solve M.E. Advocacy week will be from Sunday, April 18th, 2021 to Saturday, April 24th, 2021. As a core member of the Long Covid Alliance and a partner on Advocacy Day, #MEAction would like to encourage you to participate in this important event if you are able. The keystone event is Advocacy Day, on Tuesday, April 20. It is an entirely virtual event that connects you to your member of Congress. This is a completely virtual event. 

To register for a virtual meeting with Congress, click here. Sign up by Tuesday, March 23!

#MEAction State Chapters have long been participants in Advocacy Day and find connecting with members of congress to be of vital importance.

#MEAction partnered with Solve ME on Advocacy Day 2019. Featured are advocates from California meeting with then Senator Kamala Harris’s office.

“As a person living with ME/CFS, I participated in Advocacy Day 2019 along with my husband and teenage son. It was an incredibly empowering experience to know that as a severely ill and disabled person can have power to effect direct change in my life and the lives of many others. Making my voice and the voice of millions of others heard was truly rewarding” Carly Goldberg, #MEAction PA State Chapter Leader

“We need to make our collective voices heard. If they don’t hear us, they won’t do anything. And there is plenty we need them to do.” Art Mirin, #MEAction CA State Chapter Leader

“When most days you feel utterly powerless to create change in your life, Advocacy Day is a beacon of real empowerment” Timbre Livesay, #MEAction GA 

Register here before the deadline. 

Want to learn more about the long COVID alliance? Click here.

Facebook
Twitter
WhatsApp
Email

Latest News

Press Release: UNC Closes its Long COVID Clinic – the Only One in the State

The University of North Carolina closed its Long COVID clinic last week after its federal funding ran out. It was the sole Long COVID clinic in North Carolina.  The clinic has been a lifeline to thousands of people living with complex conditions often triggered by infection, including Long COVID, myalgic encephalomyelitis / chronic fatigue syndrome

Read More »
rectangle image with a greyish background. three white pillows stacked from smallest to largest. the words, Pillow Writers en Español in black font. the #MEAction logo in the bottom right corner.

Pillow Writers en Español

#MEAction is thrilled to announce Pillow Writers Network has expanded once again! This time with a dedicated group for Spanish speakers: Join us for our Pillow Writers En Español meetings! A place where ME/CFS/Long Covid patients are welcome to participate through writing. This #MEAction-sponsored event has been held in English for over three years. We

Read More »

Happy Juneteenth + Black Disabled Authors Reading List

Happy Juneteenth from all of us here at #MEAction! Juneteenth commemorates June 19th, 1865 when slavery of African-Americans was officially enforced. To celebrate we have put together a summer reading list of books by disabled Black authors. Keah Brown is an American author who was born with cerebral palsy. She created the popular hashtag #disabledandcute

Read More »
Scroll to Top