Solve M.E.’s Advocacy Week and the Long Covid Alliance

Solve M.E. Advocacy week will be from Sunday, April 18th, 2021 to Saturday, April 24th, 2021. As a core member of the Long Covid Alliance and a partner on Advocacy Day, #MEAction would like to encourage you to participate in this important event if you are able. The keystone event is Advocacy Day, on Tuesday, April 20. It is an entirely virtual event that connects you to your member of Congress. This is a completely virtual event. 

To register for a virtual meeting with Congress, click here. Sign up by Tuesday, March 23!

#MEAction State Chapters have long been participants in Advocacy Day and find connecting with members of congress to be of vital importance.

#MEAction partnered with Solve ME on Advocacy Day 2019. Featured are advocates from California meeting with then Senator Kamala Harris’s office.

“As a person living with ME/CFS, I participated in Advocacy Day 2019 along with my husband and teenage son. It was an incredibly empowering experience to know that as a severely ill and disabled person can have power to effect direct change in my life and the lives of many others. Making my voice and the voice of millions of others heard was truly rewarding” Carly Goldberg, #MEAction PA State Chapter Leader

“We need to make our collective voices heard. If they don’t hear us, they won’t do anything. And there is plenty we need them to do.” Art Mirin, #MEAction CA State Chapter Leader

“When most days you feel utterly powerless to create change in your life, Advocacy Day is a beacon of real empowerment” Timbre Livesay, #MEAction GA 

Register here before the deadline. 

Want to learn more about the long COVID alliance? Click here.

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A laptop sitting on a desk. In the background, you can see a cup and saucer, some post-it notes and a folder. On the screen is the Scottish Government's website, with a large title that says 'Scottish Good Practice Statement on Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME-CFS).' A red banner is at the bottom of the photo with white writing which says, '#MEAction Scotland responds to the updated Scottish Good Practice Statement on ME.’ The ME Action Scotland logo is in the top left corner.

#MEAction Scotland responds to the updated Scottish Good Practice Statement

The Scottish Government published the updated Scottish Good Practice Statement (SGPS) on ME-CFS on 28th February 2023.  The decision to update the Scottish Good Practice Statement, originally published in 2010, was a result of the Scottish stakeholder review of the 2021 NICE guideline on ME/CFS, and its recommendations for implementing the guideline in Scotland. The

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