Scottish Sunday Express Publishes Comment Piece about ME

The Scottish Sunday Express published a Comment piece by Emma Shorter who shared her experience of getting a virus nine years ago and never recovering – as a warning and wake-up call for the government to adequately address long haulers who are not recovering from Covid-19.   Read the article. 

Emma talks about how the practice of prescribing graded exercise therapy (GET) has irreparably harmed the ME community in the UK, and she cried with relief when she read the NICE draft guidelines on ME released last month recommended against it.

“The human impact of GET in Scotland has been heartbreaking,” writes Emma in her Comment piece. “When #MEAction Scotland petitioned the Scottish Parliament in 2018, we were inundated with personal stories. There was the child in Dundee who was made to exercise until they blacked out; the adult who was given GET as a child and never recovered; and the parents who were being threatened by child protection services, unless their child continued GET, even as they watched their child deteriorate. These cases are not isolated to Scotland. In global patient surveys going back decades, the majority of patients have consistently reported deteriorating.” 

Emma ends her editorial with a call for the Scottish government to invest in the future of people with ME – and long haulers – by investing in research. 

“Invest in research. Invest in care. Give us a chance to be part of Scotland’s future,” Emma writes.

Facebook
Twitter
WhatsApp
Email

Latest News

A laptop sitting on a desk. In the background, you can see a cup and saucer, some post-it notes and a folder. On the screen is the Scottish Government's website, with a large title that says 'Scottish Good Practice Statement on Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME-CFS).' A red banner is at the bottom of the photo with white writing which says, '#MEAction Scotland responds to the updated Scottish Good Practice Statement on ME.’ The ME Action Scotland logo is in the top left corner.

#MEAction Scotland responds to the updated Scottish Good Practice Statement

The Scottish Government published the updated Scottish Good Practice Statement (SGPS) on ME-CFS on 28th February 2023.  The decision to update the Scottish Good Practice Statement, originally published in 2010, was a result of the Scottish stakeholder review of the 2021 NICE guideline on ME/CFS, and its recommendations for implementing the guideline in Scotland. The

Read More »

Help keep our work going

We rely on donations from people like you to keep fighting for equality for people with ME.

Donate

Get actions alerts and news direct to your inbox

You can choose what you want to be kept up to date on.

Subscribe
Scroll to Top