Scottish Sunday Express Publishes Comment Piece about ME

The Scottish Sunday Express published a Comment piece by Emma Shorter who shared her experience of getting a virus nine years ago and never recovering – as a warning and wake-up call for the government to adequately address long haulers who are not recovering from Covid-19.   Read the article. 

Emma talks about how the practice of prescribing graded exercise therapy (GET) has irreparably harmed the ME community in the UK, and she cried with relief when she read the NICE draft guidelines on ME released last month recommended against it.

“The human impact of GET in Scotland has been heartbreaking,” writes Emma in her Comment piece. “When #MEAction Scotland petitioned the Scottish Parliament in 2018, we were inundated with personal stories. There was the child in Dundee who was made to exercise until they blacked out; the adult who was given GET as a child and never recovered; and the parents who were being threatened by child protection services, unless their child continued GET, even as they watched their child deteriorate. These cases are not isolated to Scotland. In global patient surveys going back decades, the majority of patients have consistently reported deteriorating.” 

Emma ends her editorial with a call for the Scottish government to invest in the future of people with ME – and long haulers – by investing in research. 

“Invest in research. Invest in care. Give us a chance to be part of Scotland’s future,” Emma writes.

Facebook
Twitter
WhatsApp
Email

Latest News

Happy Pride Month 2022 with rainbow ribbon in a heart

#MEAction Recognizes & Celebrates Pride Month 2022!

#MEAction recognizes and celebrates Pride Month! As a community that welcomes and encompasses all, this Pride Month, we asked members of our LGBTQIA+ community to share what Pride means to them and what they have learned from this movement that they bring with them to the ME movement. Here are a few responses: Kristina Osobka-Stier

Read More »
Severe ME Artist Project 2022 over swatches of gold paint

Severe ME Artists Project 2022!

#MEAction is once again excited to announce our Severe ME Artists Project 2022 that will feature work from those within the severe ME community and will be in recognition of Severe ME Day on August 8th! This project will be an opportunity for those with severe ME to showcase their art work (whether it be

Read More »

Help keep our work going

We rely on donations from people like you to keep fighting for equality for people with ME.

Donate

Get actions alerts and news direct to your inbox

You can choose what you want to be kept up to date on.

Subscribe
Scroll to Top