Scottish Sunday Express Publishes Comment Piece about ME

Share on facebook
Share on twitter
Share on email

The Scottish Sunday Express published a Comment piece by Emma Shorter who shared her experience of getting a virus nine years ago and never recovering – as a warning and wake-up call for the government to adequately address long haulers who are not recovering from Covid-19.   Read the article. 

Emma talks about how the practice of prescribing graded exercise therapy (GET) has irreparably harmed the ME community in the UK, and she cried with relief when she read the NICE draft guidelines on ME released last month recommended against it.

“The human impact of GET in Scotland has been heartbreaking,” writes Emma in her Comment piece. “When #MEAction Scotland petitioned the Scottish Parliament in 2018, we were inundated with personal stories. There was the child in Dundee who was made to exercise until they blacked out; the adult who was given GET as a child and never recovered; and the parents who were being threatened by child protection services, unless their child continued GET, even as they watched their child deteriorate. These cases are not isolated to Scotland. In global patient surveys going back decades, the majority of patients have consistently reported deteriorating.” 

Emma ends her editorial with a call for the Scottish government to invest in the future of people with ME – and long haulers – by investing in research. 

“Invest in research. Invest in care. Give us a chance to be part of Scotland’s future,” Emma writes.

Share on facebook
Facebook
Share on twitter
Twitter
Share on whatsapp
WhatsApp
Share on google
Google+
Share on email
Email

Leave a Comment

Your email address will not be published. Required fields are marked *

Latest News

Choose your top ten ME/CFS research priorities – UK survey launched

Take the survey The ME/CFS Priority Setting Partnership (PSP) is giving you the opportunity to define your top ten priorities for future ME/CFS research. In partnership with the James Lind Alliance, the ME/CFS Priority Setting Partnership is launching their second survey today. The research questions in this survey are based on over 5300 ideas submitted

Read More »

Statement from Forward-ME on NICE Roundtable

After NICE held its roundtable to discuss the new ME/CFS guideline, Forward-ME (which #MEAction UK is a member of) have produced the below statement. Clinician and Patient Support Confirmed for new NICE Guideline on ME/CFS. On Monday, Forward-ME and member charities attended a roundtable to review the new ‘NICE guideline on ME/CFS’ with representatives from

Read More »

Is NIH blowing another opportunity to advance ME/CFS research?

Be sure to attend the telebriefing by the Trans-NIH ME/CFS Working Group this Friday (10/22) at 3PM ET. The National Institutes of Health (NIH) has many questions to answer about its lack of tangible progress or strategic acceleration of medical research for people with ME. Read Our Questions for NIH ME/CFS research opportunity being missed

Read More »

Help keep our work going

We rely on donations from people like you to keep fighting for equality for people with ME.

Donate

Get actions alerts and news direct to your inbox

You can choose what you want to be kept up to date on.

Subscribe
Scroll to Top