We’re Asking Congress To NOT Forget ME!

COVID-19 has significantly changed our lives in so many ways. With the recent increase in funding to study long COVID, there is understandably mixed-feelings in the ME community. While everyone wants those with long COVID to have the success people with ME so desperately deserve, for some, there is a fear of ME being lost in the search for answers for long COVID. 

#MEAction has worked hard to make sure that people with ME are not lost in the narrative of long COVID, and those newly diagnosed with ME or comorbid conditions after having COVID get the care they need. Our goal is that by joining together, with those experiencing long COVID symptoms, and with those with comorbid conditions, will help us all- that together, we can all get the care and research needed to make all of this suffering history. It’s why we launched the #StopRestPace campaign. It’s why we’ve urged NIH to accelerate ME research, renew funding for and expand the number of CRCs, and catalyze necessary clinical treatment trials. And it’s why we joined in coalition with 20 other organizations to provide recommendations regarding the 2020 COVID relief package in December. 

Now, #MEAction and 10 other ME organizations wrote an additional letter to congress asking them to study very specific aspects of long COVID drawing upon the combined knowledge and expertise the ME community brings to these issues. We know this is crucial, and we are not wasting any time. 

Image of US Capitol Building

Congressional Letter
#MEAction joined 10 other ME organizations including Solve M.E., Open Medicine Foundation, Institute for Neuro-Immune Medicine Nova Southeastern University, Bateman Horne Center, Simmaron Research, Whittemore Peterson Institute, Pandora, Minnesota ME/CFS Alliance, Florida ME/CFS Patient United, and Massachusetts ME/CFS & FM Association, to urge Congress to consider additional priorities for the upcoming federal 2021 COVID-19 relief package to continue building on the momentum of the $1.15 billion investment announced in December. Our hope is that these broad requests will be a start in the allocation of funding to the research priorities our community has been asking for.

Facebook
Twitter
WhatsApp
Email

Latest News

DHSC released a new progress Report

DHSC has released an update on the progress of the work underway to support the development of a Delivery Plan on Myalgic Encephalomyelitis / Chronic Fatigue. This is dated from December 2022.You can read the full report using the link below: DHSC Information Bulletin Dec 22 FINAL MECFS updated

Read More »
Gold fireworks lighting up over a black background. The words, TOP HITS 2022 is in the center in white lettering. the words: #MEAction accomplished a lot last year is undernether with the #MEAction logo

Let’s Look at #MEAction’s Top Hits from 2022

As we ring in the new year, it is a wonderful time to reflect on how much #MEAction accomplished in a very busy and exciting 2022! There are so many wins to share, so we decided to narrow down the list to our TOP HITS! ——————- #MILLIONSMISSING 2022: * Bringing together the powerful Virtual #MillionsMissing

Read More »
A photo from Millions Missing Scotland of a group of 20 protestors outside the Scottish Parliament. They’re looking serious and holding signs that say Millions Missing, and a pledge signed by MSPs. Many are wearing red ME Action t-shirts. A yellow icon of a person is overlaid next to them with an arrow pointing to it and the words ‘Could it be your MSP?’ A red banner along the bottom says ‘Share your story and ask your MSPs to stand up for people with ME.’

Ask your MSPs to stand up for people with ME

Sue Webber MSP’s motion about ME will be debated in the Scottish Parliament on Thursday 2nd February – and your MSPs should be there! The motion calls on the Scottish Parliament to recognise the outcomes and recommendations of the stakeholder report on ME, including education of healthcare professionals and development of specialist services. We’re pleased

Read More »

Help keep our work going

We rely on donations from people like you to keep fighting for equality for people with ME.

Donate

Get actions alerts and news direct to your inbox

You can choose what you want to be kept up to date on.

Subscribe
Scroll to Top