Read More from the Writing from our ME Lives Group

Read More Pieces of Work from The Writing From Our ME Lives Group
Read More Pieces of Work from The Writing From Our ME Lives Group

#MEAction is excited to share more two more pieces generated from the Writing From Our ME Lives writing group! Scroll down to read these beautiful pieces.

If you are interested in joining the next Writing From Our ME Lives meeting, they meet on every Thursday at 11am PST. Check out the calendar posting here

ME Haiku
by Lisa G.


Lightning strikes
A euphony of shhhhh
Bruised jellyfish

Heavy-lidded petals
Hang closed in daylight
Wake up!  Wake up!

Hurricane Shoulder
Barreling down on me now
Where’s my umbrella

When I Wake Up in the Morning    
by Betsy

I wake up in the morning after surviving my first year of forced retirement, I welcome the day. My day always begins with my warm cat meowing loudly for his back rub. He loves me whether or not my head is aching or my shoulders are stiff. Gently rubbing his back seems like small payment for the comfort his company brings me against the loneliness of living alone during the pandemic. 

After breakfast, I cradle my giant cup of Constant Comment tea, the tea that my grandmother always served us. I remember how she loved me and always gave me her warmest smiles. Then I pump myself full of spiritual readings and emails with affirmations to hold onto my world view of the glass half full. Some days I am overtaken by mourning for having my energy drop from forty hours a week of work to maybe four hours a day (in two-hour segments) with long naps in between. 

Mostly I have learned how to roll with whatever energy I have each day, and to listen to my body to know when I absolutely must rest. I try to stay awake during various Zoom meetings about quilting or writing, and designing computer games. I have to mark my day as a good day if I can quilt for two hours or be coherent enough to remember what I heard in a Zoom about writing children’s books. Often, I can’t do these both on the same day. 

My goal is to accept where I am today with ME. I want to travel the world and to be awake all day, but that’s not my reality. Now that I’m on my fourth trip down the ME road, I want to balance the energy I spend each day so it’s sustainable. So, I read my affirmations and I practice making lemonade from life’s lemons. 

Facebook
Twitter
WhatsApp
Email

2 thoughts on “Read More from the Writing from our ME Lives Group”

  1. Each deeply touched as they spoke to the reality I observe and live in with my wife who has had Me/CFS for over 15 years. Katie also has her “care cat” who seems to appear when she is in need of him. How amazing and to me sad that so many humans, particularly in the medical community, can look past or be dismissive of the inexplicable reality of those with ME, while cats perceive and respond. Keep on writing, friends, as your ability to articulate provides a window for all of us to see more clearly.

Comments are closed.

Latest News

reddish rectangle image with different color stripes of red coming out at a diagonal from the center. In the center is the TeachMETreatME logo. The words celebrating an impactful campaign in white font underneath the logo.

#TeachMETreatME: Celebrating An Impactful Campaign

We are THRILLED to share the rolling successes of our #TeachMETreatME campaign with you, as we report back on the amazing medical education events that have taken place so far – with many more to come in the upcoming months! (And don’t miss the global #MillionsMissing events later in the article!) Over the past several

Read More »

#MillionsMissing Week is Here: #TeachMETreatME in Action!

We are excited to announce the kick-off of #MillionsMissing 2024 – our ongoing campaign to Teach ME and Treat ME by educating medical providers across our nation’s hospital systems and medical schools about myalgic encephalomyelitis (ME).  Throughout the spring, summer and fall, #MEAction teams are hosting 13 medical education events to encourage medical providers to

Read More »

#MEAction’s Jaime Seltzer Selected for TIME100 Health 2024

We are thrilled to share with you that Jaime Seltzer, #MEAction’s Scientific Director, has been selected for TIME100 Health 2024, TIME’s new annual list of 100 individuals who most influenced global health this year! This is a huge honor based on years of work fighting for equity for people with ME.  We intimately know the

Read More »
Scroll to Top